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8/5/2019

You Are Invited to the 2019 PCORI Annual Meeting

I’m writing to invite you to join me and others from across the healthcare community at the 2019 Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting, being held September 18-20 at the Marriott Wardman Park Hotel in Washington, DC. As a member of PCORI’s Advisory Panel on Patient Engagement, I know firsthand that PCORI’s staff is…

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7/18/2019

Managing Celiac Disease in School

All over the country, parents are getting ready to send their children back to school. Our children, Alexander Solomon, Amanda Solomon, and Draya Ramer, have celiac disease. Returning to school presents special challenges every year…challenges that are magnified if a child is starting a new school or even moving to a new classroom. That is why we are…

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6/3/2019

June 2019 Senate Testimony By CEO Marilyn G. Geller

      Outside Witness Testimony – Fiscal Year 2020 Appropriations Prepared By Marilyn G. Geller, CEO, Celiac Disease Foundation Prepared for the Subcommittee on Labor, Health and Human Services, Education and Related Agencies Committee on Appropriations United States Senate June 3, 2019 ______________________________ Chairman Blunt, Ranking Member Murray, and distinguished Members of the Subcommittee,…

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5/7/2019

Campaign Goes for the Gut

Cupcakes with razorblades. Pizza with scorpions. Pasta Salad with thumbtacks. In the eyes of someone suffering from celiac disease, this is what food with gluten looks like because it’s also what it feels like.

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