The Celiac Disease Foundation was proud to be a sponsor of the MedAboutData Hackathon in Haifa, Israel. During the hackathon, the ‘CeliACT’ team presented an innovative product that can assist in early detection of celiac disease.

You know better than anyone the challenges of living with celiac disease. As CEO of the Celiac Disease Foundation, I am scheduled to testify on April 9th in front of the Congressional Appropriations Subcommittee responsible for NIH funding.

Our vision is clear: the Celiac Disease Foundation seeks to accelerate research to identify treatments and a cure for celiac disease. Since our founding almost 30 years ago, we have known that successful fulfillment of this vision demanded that we be the voice of the celiac community in the corridors of power in and around…

Led by the Celiac Disease Foundation, patients have been demanding for decades that researchers, government officials, and pharmaceutical companies understand it is nearly impossible to live in the real world and maintain a "strict" gluten-free diet. Thanks to your impactful support, the Foundation has developed, and now offers to medical researchers, the tools, data, access to patients, and strategic investments to advance promising drugs through the development pipeline.

Celiac.org has a new look. With more than 6.5 million unique visitors annually, Celiac.org is, by far, the most visited celiac disease site in the world. This new look, created specifically for our online community of celiac disease patients and caregivers, healthcare professionals and researchers, as well as our general visitors, offers a streamlined design,…

I am pleased to announce that I have been selected to be on the Patient-Centered Outcomes Research Institute [PCORI] Advisory Panel on Patient Engagement. I was nominated by the Consumers United For Evidence-Based Healthcare (CUE) organization. CUE is a national coalition of health and consumer advocacy organizations committed to empowering consumers to make the best…

In honor of Celiac Disease Awareness Month. I share my National Conference Welcome remarks: I have been the Celiac Disease Foundation for six years now. I have to say, it’s been quite a journey. I was gifted this position by Elaine Monarch, our visionary Founder. Thanks in large part to her efforts, celiac disease began…

TO NETFLIX AND MARVEL: In a recent episode of the Netflix series, “Jessica Jones,” celiac disease was, yet again, trivialized. Saying that celiac disease “doesn’t matter” is cruel and insensitive to the tens of millions of people around the world to whom it matters a great deal. It matters because celiac disease is a serious, genetic…

“Fail faster” is a saying in drug research. In 2014, the Tufts Center for the Study of Drug Development estimated that the average cost of bringing a new drug through the development pipeline and Food and Drug Administration (FDA) approval process to market is $2.6 billion. More than 90 percent of all drugs being developed…

As we begin this season of giving, I am proud to share with you the work that your gifts and support make possible. In our 2016-2017 Annual Report, you can learn about: iCureCeliac®, the nation’s only celiac disease patient registry, helping researchers to find new treatments and a cure for celiac disease Our Patient Advocacy…