Skip to main content
10/22/2018

Marilyn’s Message October 2018

Celiac.org has a new look. With more than 6.5 million unique visitors annually, Celiac.org is, by far, the most visited celiac disease site in the world. This new look, created specifically for our online community of celiac disease patients and caregivers, healthcare professionals and researchers, as well as our general visitors, offers a streamlined design,…

Continue Reading
8/29/2018

Marilyn’s Message August 2018

I am pleased to announce that I have been selected to be on the Patient-Centered Outcomes Research Institute [PCORI] Advisory Panel on Patient Engagement. I was nominated by the Consumers United For Evidence-Based Healthcare (CUE) organization. CUE is a national coalition of health and consumer advocacy organizations committed to empowering consumers to make the best…

Continue Reading
5/1/2018

Marilyn’s Message May 2018

In honor of Celiac Disease Awareness Month. I share my National Conference Welcome remarks: I have been the Celiac Disease Foundation for six years now. I have to say, it’s been quite a journey. I was gifted this position by Elaine Monarch, our visionary Founder. Thanks in large part to her efforts, celiac disease began…

Continue Reading
3/15/2018

Marilyn’s Message March 2018

TO NETFLIX AND MARVEL: In a recent episode of the Netflix series, “Jessica Jones,” celiac disease was, yet again, trivialized. Saying that celiac disease “doesn’t matter” is cruel and insensitive to the tens of millions of people around the world to whom it matters a great deal. It matters because celiac disease is a serious, genetic…

Continue Reading
1/10/2018

Marilyn’s Message January 2018

“Fail faster” is a saying in drug research. In 2014, the Tufts Center for the Study of Drug Development estimated that the average cost of bringing a new drug through the development pipeline and Food and Drug Administration (FDA) approval process to market is $2.6 billion. More than 90 percent of all drugs being developed…

Continue Reading
12/1/2017

Marilyn’s Message December 2017

As we begin this season of giving, I am proud to share with you the work that your gifts and support make possible. In our 2016-2017 Annual Report, you can learn about: iCureCeliac®, the nation’s only celiac disease patient registry, helping researchers to find new treatments and a cure for celiac disease Our Patient Advocacy…

Continue Reading
10/9/2017

Marilyn’s Message October 2017

In September, CDF presented two studies from the iCureCeliac patient registry at the 2017 International Celiac Disease Symposium (ICDS) in New Delhi, India. ICDS is the world’s largest gathering of experts on celiac disease and non-celiac gluten/wheat sensitivity. This year’s Symposium featured discussions on promising immunological insights and advances related to the disease. In our first study,…

Continue Reading
7/1/2017

Marilyn’s Message July 2017

After decades of research and the investment of tens of millions of dollars, there are no approved treatments for celiac disease beyond strict adherence to a gluten-free diet. The single best chance for changing this is iCureCeliac®. Your gifts last year helped us expand and improve this revolutionary research resource. Below is a brief accounting…

Continue Reading
4/27/2017

Marilyn’s Message April 2017

In honor of May Celiac Awareness Month, Celiac Disease Foundation (CDF) and the Gluten Intolerance Group (GIG) are proud to announce a partnership that will improve the health and well-being of the celiac disease and gluten-free communities. In order to create the most comprehensive nonprofit source of education, research, advocacy, social networking, and support for…

Continue Reading
2/3/2017

Marilyn’s Message February 2017

Celiac disease research is desperately underfunded. The primary reason that celiac disease research has historically been underfunded relative to other diseases with similar population prevalence and impact is the assumption that lifetime adherence to a strict, gluten-free diet effectively manages the disease. We know now that this assumption is definitely not true for many in our community… and may not…

Continue Reading