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For the first time ever, the NIH has released a Notice of Special Interest to provide dedicated research funding for the study of celiac disease.

I am pleased to share a research grant awarded to the Dubcovsky Lab at UC Davis for Development of a Novel Dietary Treatment for Celiac Disease that may significantly reduce the suffering experienced by our patient community.

My appointment to PCORI’s Advisory Panel on Patient Engagement has just ended. It was a productive and enlightening three-year engagement that has helped inform my ongoing service to the celiac disease patient community. The Patient-Centered Outcomes Research Institute (PCORI) was created by the Affordable Care Act in recognition that patients and their caregivers lack the…

To secure increased federal investments in celiac disease research, a group of CDF advocates began discussions in 2019 with key Members of Congress and the NIH.

Please take one minute to email your Members of Congress to make it easier and safer for those with celiac disease to purchase food items by requiring labels to list the presence of barley and rye, in addition to wheat.

Periodically, the FDA hosts workshops to help researchers understand exactly what the FDA will be looking for (aka “endpoints”) when evaluating the efficacy of a proposed drug.

Please join us in supporting the Medical Nutrition Therapy Act of 2021 by using our online Take Action Center to send an email, with a few simple clicks, urging your Members of Congress to sign on as cosponsors.

We are determined to use every resource at our disposal, including strategic funding of research and advocacy, to help discover and bring to the celiac disease patient community therapeutic alternatives to the gluten-free diet.

The NIH Accelerating Progress in Celiac Disease Workshop is a direct outcome of our advocacy efforts in Washington, DC. CEO Marilyn Geller was invited to speak about what our celiac community needs. Watch her presentation here.

Rep. Betty McCollum (D-MN) and Rep. Steve Stivers (D-OH) announced the formation of the Congressional Celiac Disease Caucus at the 2021 Celiac Disease Foundation Patient Education & Advocacy Summit.