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4/6/2020

Marilyn’s Message April 2020

Dr. Dan Leffler, Celiac Disease Foundation Medical Advisory Board Member and clinician and researcher at Harvard Medical School and Takeda, spoke about the profound ineffectiveness and failure of the gluten-free diet as a treatment for celiac disease.

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3/20/2020

Marilyn’s Message March 2020

Even in the midst of the COVID-19 pandemic, celiac disease patients need treatments and a cure. On March 8, the Celiac Disease Foundation sponsored the First SSCD Consensus Workshop: Research Opportunities in Celiac Disease 2020 to inform NIH funding needs.

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12/13/2019

Marilyn’s Message

As I return to Los Angeles, I would like to take a moment to share with you some of the highlights of our productive two days in Washington, DC. Your consistent support has allowed us to reach this tipping point, and I want to be clear about what your gifts of time, money, and advocacy…

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8/5/2019

You Are Invited to the 2019 PCORI Annual Meeting

I’m writing to invite you to join me and others from across the healthcare community at the 2019 Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting, being held September 18-20 at the Marriott Wardman Park Hotel in Washington, DC. As a member of PCORI’s Advisory Panel on Patient Engagement, I know firsthand that PCORI’s staff is…

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3/20/2019

Marilyn’s Message March 2019

You know better than anyone the challenges of living with celiac disease. As CEO of the Celiac Disease Foundation, I am scheduled to testify on April 9th in front of the Congressional Appropriations Subcommittee responsible for NIH funding.

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