fbpx
Skip to main content
  • For Researchers
  • Donate

Back to Home
Back to Home
  • For Researchers
  • Donate
  • Search

  • About Celiac Disease

    About the Disease About the Disease

    • What is Celiac Disease?
    • Symptoms of Celiac Disease
    • Testing & Diagnosis
    • Treatment & Follow-Up
    • Celiac Disease in Children
    • Related Conditions & Mental Health
    • What You Need to Know Video Series
    • Symptoms Assessment Tool

    Gluten-Free Resources Gluten-Free Resources

    • What is Gluten?
    • Label Reading & the FDA
    • Eat! Gluten-Free and Recipes
    • Meal Plans
    • Gluten-Free Candy List
    • Patient Brochures
    • Celiac Disease Centers
    • Find a Healthcare Practitioner

    What is
    Celiac Disease?

    Symptoms Assessment Tool

    Find a Healthcare Practitioner

  • Advancing Research

    Research Resources Research Resources

    • Join the iCureCeliac Patient Registry
    • Why Enroll in a Celiac Disease Trial
    • Qualify for a Celiac Disease Trial
    • Future Therapies for Celiac Disease
    • GlutenDetect Gluten Exposure Test Kit
    • Research News

    For Researchers For Researchers

    • Research Awards and Prizes
    • NASPGHAN Diagnosis Tool
    • Patient Recruitment Services
    • Access iCureCeliac Registry Data
    • NIH Funding for Celiac Disease Research
    • Department of Defense Funding for Celiac Disease Research
    • Join the CDF Research Working Group

    Join the
    iCureCeliac Registry

    Qualify for a
    Trial

    Apply for a Research Award

  • Get Involved

    Advocacy Advocacy

    • Become a Policy Advocate
    • Public Policy Priorities
    • Contact Your Members of Congress
    • Federal Benefits
    • Celiac Disease Management in Schools Training Program
    • Advocacy News

    Join the Effort Join the Effort

    • Become a Student Ambassador
    • Join Team Gluten-Free
    • Ways To Give
    • Social Media Toolkit
    • Events
    • Get Phone Advice
    • Sign Up For Email Updates

    Join
    Team Gluten-Free

    Become a Policy Advocate

    Join Team Gluten-Free

  • About the Foundation

    About Us About Us

    • Mission & Purpose
    • Leaders, Advisors & Staff
    • Strategic Plan
    • Financials & Annuals
    • Foundation Press
    • Contact Information
    • Marilyn's Message

    Support the Foundation Support the Foundation

    • Donate
    • Gifts of Stock and Securities
    • Employer Matching
    • Other Ways to Give
    • Research Awards and Prizes
    • Proud Sponsors and Partners
    • Team Gluten-Free Shop

    Make a
    Donation

    Become a
    Research Partner

    Become a
    Proud Sponsor

  • Donate

About Celiac Disease

About the Disease

  • What is Celiac Disease?
  • Symptoms of Celiac Disease
  • Testing & Diagnosis
  • Treatment & Follow-Up
  • Celiac Disease in Children
  • Related Conditions & Mental Health
  • What You Need to Know Video Series
  • Symptoms Assessment Tool
  • What is
    Celiac Disease?
  • Symptoms Assessment Tool
  • Find a Healthcare Practitioner

Gluten-Free Resources

  • What is Gluten?
  • Label Reading & the FDA
  • Eat! Gluten-Free and Recipes
  • Meal Plans
  • Gluten-Free Candy List
  • Patient Brochures
  • Celiac Disease Centers
  • Find a Healthcare Practitioner
  • What is
    Celiac Disease?
  • Symptoms Assessment Tool
  • Find a Healthcare Practitioner

Advancing Research

Research Resources

  • Join the iCureCeliac Patient Registry
  • Why Enroll in a Celiac Disease Trial
  • Qualify for a Celiac Disease Trial
  • Future Therapies for Celiac Disease
  • GlutenDetect Gluten Exposure Test Kit
  • Research News
  • Join the
    iCureCeliac Registry
  • Qualify for a
    Trial
  • Apply for a Research Award

For Researchers

  • Research Awards and Prizes
  • NASPGHAN Diagnosis Tool
  • Patient Recruitment Services
  • Access iCureCeliac Registry Data
  • NIH Funding for Celiac Disease Research
  • Department of Defense Funding for Celiac Disease Research
  • Join the CDF Research Working Group
  • Join the
    iCureCeliac Registry
  • Qualify for a
    Trial
  • Apply for a Research Award

Get Involved

Advocacy

  • Become a Policy Advocate
  • Public Policy Priorities
  • Contact Your Members of Congress
  • Federal Benefits
  • Celiac Disease Management in Schools Training Program
  • Advocacy News
  • Join
    Team Gluten-Free
  • Become a Policy Advocate
  • Join Team Gluten-Free

Join the Effort

  • Become a Student Ambassador
  • Join Team Gluten-Free
  • Ways To Give
  • Social Media Toolkit
  • Events
  • Get Phone Advice
  • Sign Up For Email Updates
  • Join
    Team Gluten-Free
  • Become a Policy Advocate
  • Join Team Gluten-Free

About the Foundation

About Us

  • Mission & Purpose
  • Leaders, Advisors & Staff
  • Strategic Plan
  • Financials & Annuals
  • Foundation Press
  • Contact Information
  • Marilyn's Message
  • Make a
    Donation
  • Become a
    Research Partner
  • Become a
    Proud Sponsor

Support the Foundation

  • Donate
  • Gifts of Stock and Securities
  • Employer Matching
  • Other Ways to Give
  • Research Awards and Prizes
  • Proud Sponsors and Partners
  • Team Gluten-Free Shop
  • Make a
    Donation
  • Become a
    Research Partner
  • Become a
    Proud Sponsor
  • Home
  • About
    • Why Join?
    • About Filmmaker Hayley Repton
    • Frequently Asked Questions
    • Your Privacy
    • Contact
  • For Researchers
    • Patient Recruitment & Marketing
    • About iCureCeliac®: the Celiac Disease Patient Registry
    • CDF Advocacy in Clinical Trials
    • Submit a Research Proposal
    • Research Committee
  • Qualify For a Study or Trial
    • Partnered Studies and Trials
    • Why You Should Participate in a Study or Trial
    • Overcoming Barriers to Participation
  • Insights & News
    • iCureCeliac® Infographics
    • iCureCeliac® Studies
    • Research News
    • Other Ways to Participate
  • Home
  • About
    • Agenda
    • Speakers
    • Steering Committee
    • Recording & Highlight Videos
    • Recap
    • Q&A
    • Public Policy Priorities
  • Attend
  • Sponsor
    • Meet Our Sponsors
    • Become a Sponsor
  • FAQs
  •  | About Celiac Disease
  •  | What You Need to Know Video Series

What You Need to Know Video Series

Share

Share on Facebook Share on Twitter Email this page  |  printer-mini Print Friendly
What Does Your Doctor Really Think – Is it Gluten, Wheat Starch, Allergies, the Microbiome or Something Else?
Play Video play-button

Meet Sheila Crowe, MD, FRCPC, FACP, FACG, AGAF

Dr. Crowe is a distinguished member of the Celiac Disease Foundation Medical Advisory Board. She received her medical degree from McMaster University Medical School in Hamilton, Canada, where she completed training in internal medicine and gastroenterology. Dr. Crowe has been active in bench research, clinical care, and teaching in the field of gastroenterology.

She has been named in the Best Doctors in America since 1996. She served as President of the American Gastroenterological Association from May 2017 to June 2018. She has a long-standing interest in celiac disease, and is currently conducting research on celiac disease and other food-related disorders to understand the interactions between the microbiome, the immune system, and dietary factors.

View the PDF version of Sheila Crowe’s presentation slides.
Nexvax2: Vaccine for Celiac Disease, Status 2018
Play Video play-button

Meet Robert Anderson MBChB, BMedSc, PhD, FRACP

Dr. Robert Anderson is a gastroenterologist whose career has focused on developing a vaccine therapy to control celiac disease. His research in Australia and England mapped the key immune targets in gluten that account for its toxicity. He designed Nexvax2, which is now entering Phase 2 clinical trials led by ImmusanT. He is Chief Scientific Officer at ImmusanT, Inc, and based in Cambridge MA.

The Gluten-Free Diet
Play Video play-button

Meet Janelle Smith, MS, RD, UCLA Medical Center

Janelle Smith is a Registered Dietitian Nutritionist with expertise in both gastrointestinal disorders and eating disorders. Janelle is the dietitian for the UCLA Medical Center Celiac Disease Program and works with individuals on an outpatient basis through both the division of digestive diseases and the division of adolescent and young adult medicine.

She was motivated to become a dietitian when she was diagnosed with celiac disease in 2009. Janelle is the current chair of the Dietitians in Gluten Intolerance Disorders within the Academy of Nutrition and Dietetics and is passionate about educating other dietitians about the gluten-free diet.

How Gluten-Free is GF Food?
Play Video play-button

Meet Jennifer A. Sealey-Voyksner, PhD, Chief Scientific Officer, ImmunogenX

Jennifer is the Chief Scientific Officer and co-founder of ImmunogenX™, a biopharmaceutical company focused on developing solutions for the management of celiac disease. ImmunogenX is also involved in food science and is working toward developing more sensitive and efficient ways to measure allergenic peptides and proteins in the food chain.

Jennifer has over 30 years of experience in government and industry-based R&D, both in Canada and the US. Diagnosed with celiac disease in 2002, she has since dedicated her professional and business career to bettering the lives of those who suffer from food-related diseases.

As a pioneering mass spectrometrist she is focused on proteomic approaches to study allergenic proteins. She received her honors B.Sc. in Chemistry at McMaster University in Hamilton, Ontario, Canada and her PhD in analytical chemistry at the University of North Carolina at Chapel Hill.

AMG 714: An Anti-IL-15 Antibody in Development for the Treatment of Celiac Disease and Refractory Celiac Disease Type II
Play Video play-button

Meet Francisco Leon, MD, PhD, Consultant, Amgen

Francisco Leon, MD PhD, is the co-founder of Celimmune, Glutenostics and Provention Bio, companies developing and commercializing medicines, diagnostics and preventative approaches for people with celiac disease and other immunological disorders. Francisco had extensive experience in translational immunology in academia (National Institutes of Health), biotech (Alba Therapeutics, MedImmune) and ‘big pharma’ (Bristol-Myers Squibb, Johnson & Johnson) before becoming an entrepreneur.

Francisco is a clinical immunologist who received his MD and PhD from Autónoma University in Madrid, Spain. Francisco is also Adjunct Professor at Jefferson Medical College (Philadelphia) and has co-authored more than 85 peer-reviewed articles, book chapters and patents.

View the PDF version of Francisco Leon’s presentation slides.
Larazotide Acetate: Innovate Biopharmaceuticals
Play Video play-button

Meet Wendy Perrow, MBA

Wendy Perrow is the Celiac Program lead at Innovate Biopharmaceuticals. Ms. Perrow previously served as CEO of Alba Therapeutics. Under her leadership, Alba Therapeutics completed a licensing agreement with Innovate Biopharmaceuticals, Inc. Alba Therapeutics conducted seven clinical trials in patients with Celiac Disease, completed the largest Phase IIb clinical trial in patients with celiac disease, demonstrated superiority versus the gluten-free diet, and validated the 1st Celiac Disease Patient Reported Outcome (CeD PRO) with the lead compound Larazotide Acetate. Wendy received her MBA in International finance and marketing from The Fuqua School of Business at Duke University and received her bachelor’s degree from Eastern Illinois University.

Latiglutenase: ImmunogenX
Play Video play-button

Meet Jack A. Syage, PhD

Dr. Jack Syage is currently CEO and co-founder, with Jennifer Sealey-Voyksner, of ImmunogenX and is proud to be leading a company that is developing therapeutic and diagnostic solutions for celiac disease. He has over 30 years of experience in creating and leading innovative technologies, particularly in analytical instrumentation. Jack has started and run several companies and currently sits on the board of five companies.

Jack has published over 130 papers, delivered about 100 invited talks, has over 30 U.S. patents issued or pending, and appears on the list of the Most Highly Cited Chemists. His honorary positions include Visiting Professor at UC Irvine, Visiting Professor at the Université de Paris-Sud, Editorial Board member of the Journal of Physical Chemistry, and invitee to the Nobel Symposium in Chemistry. He received his PhD from Brown and won the Potter Prize for Best Thesis and went on to postdoc at Caltech under Nobel Laureate Ahmed Zewail.

Celiac Disease Diagnostic Landscape
Play Video play-button

Meet Annette Taylor, MS, PhD, Scientific Director, Molecular Genetics at Colorado Coagulation, LabCorp

Dr. Annette Taylor is a clinical molecular geneticist and genetic counselor with a history of contribution to the celiac disease diagnostic arena since the early 2000s. Her company at that time, Kimball Genetics, was a pioneer offering celiac genetic testing on buccal swabs. She is currently the Scientific Director of Molecular Genetics at Colorado Coagulation, a LabCorp company in Denver, and she leads the celiac and pharmacogenetics programs at LabCorp.

Footnotes

    Related Links Icon

    Related Links

    • iCureCeliac® Patient Registry Join the iCureCeliac® Patient Registry.
    • Future Therapies for Celiac Disease Read about future therapies for celiac disease.
    • Become a Patient Advocate Make your voice heard in celiac disease research.
    • Qualify For a Study or Trial Enroll in trials & studies for which we are currently recruiting.
    • Stay Informed Join our email list.
    • Donate Today
    • For Researchers
    • For Professionals
    • Sponsorship
    • Shop
    • Events
    • Careers
    • FAQs
    • iCureCeliac Registry
    • Email Us

    Celiac Disease Foundation

    5850 Canoga Ave | 4th Floor
    Woodland Hills, CA 91367
    • Phone
      (818) 716-1513
    Contact Us
    • Email Us
    • Visit Our Facebook Page
    • Visit Our Instagram Profile
    • Follow us on Twitter
    • Visit Our Youtube Channel
    • Visit Combined Federal Campaign
    • Visit GuideStar Certificate
    • Visit Health Medical Research Certificate
    • America's Best Local Charities
    • National Health Council
    • Visit Combined Federal Campaign
    • Visit GuideStar Certificate
    • Visit Health Medical Research Certificate
    • America's Best Local Charities
    • National Health Council
    • Privacy Policy and Terms of Use
    • Sponsor and Conflict of Interest Policy

    Medical information provided on this site has been prepared by medical professionals and reviewed by the Celiac Disease Foundation’s Medical Advisory Board for accuracy. Information contained on this site should only be used with the advice of your physician or health care professional.

    © 1998-2023 Celiac Disease Foundation. The Celiac Disease Foundation is a recognized 501(c)(3) nonprofit organization. All contributions are tax deductible to the extent allowable by law. EIN: 95-4310830. All Rights Reserved.

    • Visit Combined Federal Campaign
    • Visit GuideStar Certificate
    • Visit Health Medical Research Certificate
    • America's Best Local Charities
    • National Health Council
    Back to top
    Continue to link

    Sign up for our mailing list