Advocacy News

As I return to Los Angeles, I would like to take a moment to share with you some of the highlights of our productive two days in Washington, DC. Your consistent support has allowed us to reach this tipping point, and I want to be clear about what your gifts of time, money, and advocacy…

For decades, the celiac disease community has been told that the pain, the suffering, the fog, the depression, and the missed days of work and school were our fault because we failed to adhere to the diet—or in the case of a parent or caregiver, failed to enforce strict adherence by a child or loved…

CEO Marilyn G. Geller’s testimony before the House Appropriations Subcommittee has helped secure report language in the House’s version of the 2020 Labor-HHS-Education bill demanding that the National Institute of Health (NIH) report to Congress in 90 days on its plans to aid celiac disease patients. This acknowledgment that celiac disease is a serious condition…

As a member of the National Coalition of Autoimmune Patients Groups (NCAPG), a coalition founded by the American Autoimmune Related Diseases Association (AARDA), the Celiac Disease Foundation signed onto the proposed rule comments from I Am Essential that would dramatically change the regulations that implement Section 1557, the anti-discrimination provision of the Affordable Care Act. The…

All over the country, parents are getting ready to send their children back to school. Our children, Alexander Solomon, Amanda Solomon, and Draya Ramer, have celiac disease. Returning to school presents special challenges every year…challenges that are magnified if a child is starting a new school or even moving to a new classroom. That is why we are…