Registration

Who is eligible to attend the Patient Education & Advocacy Summit?

Registration is open to all participants interested in learning more about current topics in celiac disease. Register to receive your personalized link to view any or all sessions. Participants who wish to become a Celiac Disease Foundation State Advocacy Ambassador must participate in all sessions, reside in the United States, and be 12 years of age or older on March 4, 2021. To become a State Advocacy Ambassador, you must successfully complete a short poll at the conclusion of each module to receive a Certificate of Training and be eligible for a $25 gluten-free lunch reimbursement.

How can I register for the Patient Education & Advocacy Summit?

Registration will open on Tuesday, January 12, 2021 at celiac.org/summit. Registration is open to all participants interested in learning more about current topics in celiac disease. If you wish to become a Celiac Disease Foundation State Advocacy Ambassador, you must successfully complete a short poll at the conclusion of each module to receive a Certificate of Training and be eligible for a $25 gluten-free lunch reimbursement. Registration closes on February 24, 2021.

I have multiple addresses. Which one should I use to register?

It is important that you apply using the address where you are currently registered to vote and wish to receive communications from the Celiac Disease Foundation. The Patient Education & Advocacy Summit will train participants to become effective advocates for celiac disease in meetings with their local Congressional representatives. In order to have the biggest impact on the largest number of representatives, we need advocates from a wide variety of districts.

How much does the Patient Education & Advocacy Summit cost?

There is no registration fee. You may use your personalized link to view any or all sessions. Participants who wish to become a Celiac Disease Foundation State Advocacy Ambassador must successfully complete a short poll at the conclusion of each module to receive a Certificate of Training and be eligible for a $25 gluten-free lunch reimbursement.

How do I receive the $25 gluten-free lunch reimbursement?

Participants who wish to become a Celiac Disease Foundation State Advocacy Ambassador must successfully complete a short poll at the conclusion of each module to be eligible for a $25 gluten-free lunch reimbursement. A reimbursement form will be emailed to your registration address within 5 business days of Summit conclusion. A completed and signed reimbursement form must be returned via email to info@celiac.org by March 19, 2021 to receive reimbursement.

What to Expect at the Patient Education & Advocacy Summit

How do I login to the Patient Education & Advocacy Summit?

Upon registration, you will receive a confirmation email with a personalized Zoom link for the Patient Education & Advocacy Summit. With your personalized Zoom link you may login anytime between 8:30 am and 2:20 pm PT on March 4, 2021 with your personalized Zoom link.

Do I need to download any materials prior to the Patient Education & Advocacy Summit?

Information on this coming soon.

This is my first time at a Patient Education & Advocacy Summit. What should I expect?

Welcome! We’re excited to have you at this empowering event. Once you register, and in the weeks leading up to the Patient Education & Advocacy Summit, we will send you emails with useful tips and information to make your experience a success.

You may use your personalized Zoom link to view any or all sessions. If you wish to become a State Advocacy Ambassador, our training and breakout sessions will help prepare you to meet with your Members of Congress and/or their staff when you return to your home state. Children, ages 12 and older, may participate in all training and breakout sessions.

We are here to help you at any time. Contact our office for any questions or concerns at 818.716.1513, x111 or by emailing sierra.manning@celiac.org.

May I set up my own appointments with Members of Congress on Capitol Hill?

We ask that you do not contact any Congressional offices in Washington, DC, to schedule appointments. We have an advocacy team in place who will meet with members of Congress on Capitol Hill. State Advocacy Ambassadors meet with their Congressional representatives in their home states.

However, if you have special connections with individual Members of Congress or their staff, please let us know as soon as possible. Please contact Research and Advocacy Coordinator Sierra Manning at sierra.manning@celiac.org.

General Information

Do I need to participate in the whole training session on Thursday, March 4?

You may use your personalized Zoom link to view any or all sessions. To become a State Advocacy Ambassador, you must attend all sessions and complete a short poll after each. State Advocacy Ambassadors are eligible for a $25 gluten-free lunch reimbursement.

What if I can't make it to the Patient Education & Advocacy Summit?

If you can’t make it to the Patient Education & Advocacy Summit, but still want to make a difference in celiac disease advocacy, you can complete the iAdvocate Training program at iadvocate.celiac.org. 2021 Patient Education & Advocacy Summit videos will be posted in April 2021.

What does it mean that this event is funded by the Patient-Centered Outcomes Research Institute® (PCORI®)?

The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit organization authorized by Congress in 2010 to fund collaboration between patients and researchers to assure that the patient voice drives better informed health and healthcare decisions. PCORI is committed to seeking input from a broad range of stakeholders to guide its work.

The Celiac Disease Foundation Patient Education and Advocacy Summit was partially funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Engagement Award Initiative (EACC-18354). The content does not necessarily represent the views of the Patient-Centered Outcomes Research Institute (PCORI), its Board of Governors, or Methodology Committee.

Sponsorship

Why should I sponsor the Patient Education & Advocacy Summit?

On March 4, 2021, the Celiac Disease Foundation will host celiac disease patients and caregivers from all 50 states who will convene to learn from congressional and federal government representatives, researchers, clinicians, and celiac disease drug developers about how to become involved in celiac disease research and advocacy. Patient Advocates will be provided with the tools, resources, and training to return to their home states to participate in research and to advocate for celiac disease to be a national priority.

We are seeking financial support for this important event so that we can provide the absolute best education and advocacy training program possible. Learn more about our Summit sponsorship packages. If you are interested in sponsoring the 2021 Virtual Patient Education & Advocacy Summit, please contact deborah.ceizler@celiac.org.

How can I sponsor the Patient Education & Advocacy Summit?

If you are interested in sponsoring the 2021 Virtual Patient Education & Advocacy Summit, please email deborah.ceizler@celiac.org to learn more about sponsorship packages.