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10/16/2018

iCureCeliac® Study Presented at Digestive Disease Week 2018

In a Medscape Gastroenterology article covering Digestive Disease Week (DDW) 2018, William Balistreri, MD, reported on the studies presented that addressed reliable, cost-effective celiac disease detection. One of the studies highlighted in the article, Forgoing the Duodenal Biopsy for Celiac Disease Diagnosis Among Adults in the United States: Results of a National Survey, analyzed data…

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1/22/2018

iCureCeliac® Reports Two Year Progress

Launched in February 2016, iCureCeliac® is a free online portal for patients, or their caregivers, to provide critical insights into life with celiac disease and gluten/wheat sensitivity. Anonymized questionnaire data, completed by iCureCeliac® participants under informed consent, are made available to researchers and governmental policy analysts to advance life-changing initiatives. Your participation will help create better diagnostic tools and treatments…

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7/10/2017

iCureCeliac® Reports 16 Month Progress

iCureCeliac® is the only public celiac disease patient registry designed to help researchers better understand, and ultimately cure, celiac disease and non-celiac gluten/wheat sensitivity. iCureCeliac® allows patients to contribute medical information and their experiences living with celiac disease and non-celiac gluten/wheat sensitivity to advance life-changing initiatives in research, education, and advocacy. Your participation in iCureCeliac® will help…

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6/19/2017

National Health Council Conference Focuses on Good Practices for Patient Engagement in Research

The pharmaceutical industry, the Food and Drug Administration, and disease advocacy organizations like Celiac Disease Foundation (CDF) are all seeking meaningful patient engagement in the drug research and development process. There is considerable evidence that when patients are active participants in disease research, the drug development process is not only more cost and time efficient,…

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6/8/2017

Survey Results: Would You Use an In-Home Gluten-Detecting Test?

Celiac Disease Foundation recently administered a survey to gauge community interest in using a simple in-home urine or stool test to monitor gluten intake. Through our iCureCeliac® patient registry, we have found that 53% of people with celiac disease continue to experience symptoms while on a strict gluten-free diet. The most common reason for persistent…

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