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Marilyn’s Message February 2016

Celiac disease and gluten sensitivity research are desperately underfunded around the world, especially here in the United States. The National Institutes of Health’s Estimates of Funding for Various Research, Condition and Disease Categories has 250+ line items. Celiac disease is not among them. This lack of funding by government and private sources is the primary…

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Marilyn’s Message January 2016

Thank you for making our 2015 Gift of Hope campaign a tremendous success! As you know, our goal was $100,000. As of yesterday, our fundraising total had reached $137,000. The average gift for the 2015 Gift of Hope Challenge was almost $200. With our generous Board of Directors Challenge Match of $0.50 for every dollar…

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Marilyn’s Message December 2015

You have surely already received emails from Celiac Disease Foundation (CDF) that tell the stories of many in our community who are living with celiac disease. Some of these emails include videos that really capture the power and passion of the voices speaking about their disease. These emails are part of our annual year-end Gift…

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Marilyn’s Message November 2015

Because the consequences can be so devastating and persistent, accidental exposure to gluten has always been a leading concern of the celiac disease community. I know from personal experience as the mother of a child with celiac disease that constant vigilance is often not enough. This is why Celiac Disease Foundation joined with other celiac disease advocacy…

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Marilyn’s Message October 2015

For the past 25 years, Celiac Disease Foundation has fought tirelessly for the food industry to provide celiac disease patients, and those with gluten sensitivity, safe, abundant, and affordable dietary options. We were excited, therefore, that General Mills, our partner for many years in their gluten-free initiatives, asked us to share that one of America’s…

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Marilyn’s Message September 2015

In a rare moment of bipartisan cooperation in Washington, D.C., the landmark 21st Century Cures legislation passed the U.S. House in early July by a vote of 344-77. The bill, co-authored by Republican Fred Upton and Democrat Diana DeGette, seeks to bring new drugs and treatments to market faster by encouraging medical innovation in research,…

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Marilyn’s Message August 2015

I have long supported walks and runs for charitable causes. In fact, before I became CEO of Celiac Disease Foundation, my son Henry and I participated in both the Los Angeles and Pasadena Marathon 5K Run/Walks to raise funds for Team Gluten-Free. I walked, Henry ran. This is probably why I was so moved when…

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Marilyn’s Message June 2015

Relatively Rare. Relatively Minor. Relatively Easy to Treat. For more than 50 years, the celiac community has been led to believe that the above statements about the disease were true. We – those of us who live with the disease or who took care of someone with the disease – knew, however, that managing celiac disease…

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Marilyn’s Message May 2015

Every day, I talk to people who, like me, live with celiac disease – either personally or as a caregiver for someone they love. Each of their stories, while unique, share common underlying themes: the incredible suffering they either endured or witnessed until finally someone suggested getting tested for celiac disease, the difficulties adhering to…

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Marilyn’s Message March 2015

We are making progress. I freely admit to you, however, that it isn’t enough. We are not satisfied, but please know that we are in this for the long haul. My hope is that you will stand with us by supporting CDF’s Annual Fund with a tax-deductible contribution. For 25 years, CDF has been the…

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