Provider & Patient Celiac Disease Education – Marilyn’s Message March 2022
On April 8 and April 9, the Celiac Disease Foundation is sponsoring the Columbia University Celiac Disease Center International Symposium on Celiac Disease.
Continue ReadingOn April 8 and April 9, the Celiac Disease Foundation is sponsoring the Columbia University Celiac Disease Center International Symposium on Celiac Disease.
Continue ReadingTo share with you some insight into our advocacy work, I recently interviewed Mark Van de Water, Senior Advisor at Baker Donelson.
Continue ReadingA few highlights from research studies published in peer-reviewed journals in the last few months are products of the research grants CDF awarded.
Continue ReadingFor the first time ever, the NIH has released a Notice of Special Interest to provide dedicated research funding for the study of celiac disease.
Continue ReadingI am pleased to share a research grant awarded to the Dubcovsky Lab at UC Davis for Development of a Novel Dietary Treatment for Celiac Disease that may significantly reduce the suffering experienced by our patient community.
Continue ReadingMy appointment to PCORI’s Advisory Panel on Patient Engagement has just ended. It was a productive and enlightening three-year engagement that has helped inform my ongoing service to the celiac…
Continue ReadingTo secure increased federal investments in celiac disease research, a group of CDF advocates began discussions in 2019 with key Members of Congress and the NIH.
Continue ReadingPlease take one minute to email your Members of Congress to make it easier and safer for those with celiac disease to purchase food items by requiring labels to list the presence of barley and rye, in addition to wheat.
Continue ReadingPeriodically, the FDA hosts workshops to help researchers understand exactly what the FDA will be looking for (aka “endpoints”) when evaluating the efficacy of a proposed drug.
Continue ReadingPlease join us in supporting the Medical Nutrition Therapy Act of 2021 by using our online Take Action Center to send an email, with a few simple clicks, urging your Members of Congress to sign on as cosponsors.
Continue ReadingAs we continue our journey toward advancing awareness and understanding of celiac disease, it is crucial that we reflect on health equity and the persistent clinical disparities within our community—so that together we can confront these factors and dismantle barriers hindering access to care and support. Health equity represents the...