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Use the Power of Your Story to Advocate for Federal Funding and Awareness Join the Celiac Disease Foundation’s Congressional District Days from August 5 to September 6, 2024, and help…

The Celiac Disease Foundation on May 22 awarded its first Celiac Disease Policy Leadership Award to U.S. Representative Betty McCollum (MN-04) for her distinguished service and advocacy on behalf of the celiac disease patient community. Among other initiatives, she established the bipartisan Congressional Celiac Disease Caucus, which has significantly increased federal recognition of celiac disease.

On May 20 the Disease Foundation hosted its third annual award reception at Digestive Disease Week in Washington, D.C. From prestigious global research prizes to inaugural student and policy leadership awards, the event spotlighted the extraordinary contributions of individuals dedicated to improving the lives of those affected by celiac disease.

In March, our Celiac Disease Foundation staff—most of whom are lived experience experts—headed to the halls of Congress for our annual round of bipartisan meetings with key members of Congress to advocate for the interests of our patient and research communities.

The Celiac Disease Foundation is proud to share that for the second year in a row, access to funding for celiac disease research is being made available through the U.S. DOD Congressionally Directed Medical Research Programs (DOD-CDMRP)Peer Review Medical Research Program.

On behalf of the entire celiac disease patient community, thank you for your participation in the Celiac Disease Foundation’s 2023 Gift of Hope campaign! Our annual year-end initiative to raise awareness and funds for celiac disease research was extraordinary – all thanks to YOU.

We are pleased to share that the Medical Nutrition Therapy (MNT) Act of 2023 has been introduced in both the U.S. Senate and in the U.S. House of Representatives. Securing insurance coverage for registered dietitian nutritionist visits for celiac disease patients is a priority, and we are encouraged to see progress toward this goal.

The Celiac Disease Foundation is proud to continue our partnership with the Boston Children's Hospital in presenting "Celiac Smarts," a live-streamed symposium for the health care and celiac patient communities. Recording available now.

At CDF, we deeply value hearing stories from our patient community. Your stories are a pivotal part of our efforts to build awareness and fight for research funding. 

Jax Bari and his family have dedicated much energy to raising awareness of celiac disease and promoting the need for alternative treatments to the gluten-free diet and a cure for celiac disease.