I am pleased to announce that 2020 is starting out BIG, with the Celiac Disease Foundation hosting the National Celiac Disease Patient Advocacy Summit on February 27, 2020, in Washington, DC. In our meetings with representatives from Congress, NIH, and the FDA, we have been told what we need to do in order to accomplish our advocacy goals for celiac disease. Our next step requires your help. On February 27th, a group of celiac patients and caregivers from all 50 states will convene in Washington, DC to hear from researchers, federal government representatives, and celiac advocates for a National Patient Advocacy Summit to learn how to become Celiac Disease Foundation State Advocacy Ambassadors.
At the Patient Advocacy Summit, you will receive professional training to prepare you to meet with members of Congress, so that you can return to your home state ready to advocate for the celiac disease community as a Celiac Disease Foundation State Advocacy Ambassador. The Patient Advocacy Summit will include talks from celiac disease researchers, government representatives working on celiac disease advocacy initiatives, and a panel of patient advocates who will share their experiences as Celiac Disease Foundation State Advocacy Ambassadors. This is your opportunity to learn how to raise awareness for celiac disease, to speak on behalf of the celiac community, and to improve the lives of everyone living with celiac disease.
I encourage everyone who is passionate about making a difference for the celiac disease community to apply for an invitation to this event. Since space is limited, please apply as soon as possible. All celiac patients, ages 12 and up, caregivers, and advocates are invited to complete a short application for participation. The application deadline is January 15th, 2020.
We have reached a pivotal point in celiac disease advocacy that makes our communal efforts more important than ever, and we need your help to make this happen. Please apply now to make your voice heard!
To Our Health,
Marilyn G. Geller, Chief Executive