Celiac disease is a chronic autoimmune disease, which means that you cannot “grow out” of it.
1 in 100 people worldwide have celiac disease.
Celiac disease affects an estimated three million Americans.
80% of Americans with celiac disease are not diagnosed and are needlessly suffering.
People with a first degree relative with celiac disease have a 1 in 10 chance of developing celiac disease themselves.
More children have celiac disease than Crohn’s, Ulcerative Colitis, and Cystic Fibrosis combined.
Celiac disease can affect every organ in your body.
Lifelong adherence to the gluten-free diet is the only treatment for celiac disease.
Approximately 20% of people with celiac disease do not respond to the gluten-free diet.
There is an average delay of 6-10 years for an accurate celiac disease diagnosis.
Without a timely diagnosis, celiac disease can lead to intestinal cancers, type 1 diabetes, osteoporosis, thyroid disease, multiple sclerosis, anemia, infertility and miscarriage, epilepsy, and more.
There are over 300 symptoms associated with celiac disease.
Approximately 20% of people with celiac disease are asymptomatic, meaning they don’t experience any external symptoms at all. However, everyone with celiac disease is still at risk for long-term complications.
Celiac disease can develop at any age after people start eating foods or medications that contain gluten.
The later the age of celiac disease diagnosis, the greater the chance of developing another autoimmune disorder.
There are two steps to being diagnosed with celiac disease: the blood test and the endoscopy.
People with celiac disease have an increased incidence of microscopic colitis and inflammatory bowel disease (Crohn’s disease and ulcerative colitis).
People with celiac disease may have lactose and/or fructose intolerance, both of which can be diagnosed by a hydrogen breadth test.
People recently diagnosed with celiac disease are commonly deficient in fiber, iron, calcium, magnesium, zinc, folate, niacin, riboflavin, vitamin B12, and vitamin D.
Any food product that is labeled “gluten-free” cannot contain more than 20 parts per million of gluten, which is the safe threshold of gluten consumption for people with celiac disease.
You know better than anyone the challenges of living with celiac disease. As CEO of the Celiac Disease Foundation, I am scheduled to testify on April 9th in front of the Congressional Appropriations Subcommittee responsible for NIH funding for celiac disease research. I want to bring with me stories from...