What is iCureCeliac?
iCureCeliac is a patient-powered research network (patient registry) designed to help researchers better understand and ultimately cure celiac disease and gluten sensitivity. iCureCeliac allows patients to contribute medical information and their experiences living with celiac disease and gluten sensitivity to advance life-changing initiatives in research, education, and advocacy. Your participation will help discover new ways to improve patient lives through better diagnostic tools, treatments for cross-contact and gluten consumption, governmental policy changes, and access to new and innovative clinical trials nationwide which may one day cure celiac disease.
Why Is This Important?
Celiac disease affects an estimated 1 in 100 people worldwide. The majority (83%) of those individuals are either undiagnosed or misdiagnosed. That means only 17% of people with celiac disease are correctly diagnosed. This is alarming given that studies show the later the age of diagnosis, the greater the chance of developing another autoimmune disorder, like Type 1 diabetes, thyroid disease and multiple sclerosis (MS).
Furthermore, undiagnosed patients or those who do not maintain a strict gluten-free diet can develop serious medical conditions including heart disease, anemia, osteoporosis, infertility, epilepsy, migraines and in some cases, intestinal cancer.
1 in 100 worldwide are affected by celiac disease
30% of diagnosed patients still report symptoms while on a gluten-free diet
State Of The Art Technology
With today’s technology, patients are no longer passive bystanders in managing their disease. They can now play an active role in the research process, sharing insights, experiences and valuable health information about celiac disease and gluten sensitivity that can lead to new discoveries.
Your Privacy Is Important
You have control of your medical information. You control who views it, what information you’d like to share and which research studies you’re willing to participate in. Ensuring that your medical data remains secure is our utmost priority. We protect your privacy with cutting-edge technology.
Your medical data is incredibly valuable. By aggregating large amounts of data from thousands of patients living with celiac disease and gluten sensitivity, we are able to analyze disease patterns and help answer questions most important to patients. Your data can shape the types of research studies to be conducted that are most beneficial to you – the patient. iCureCeliac’s research goals are: