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8/5/2019

You Are Invited to the 2019 PCORI Annual Meeting

I’m writing to invite you to join me and others from across the healthcare community at the 2019 Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting, being held September 18-20 at the Marriott Wardman Park Hotel in Washington, DC. As a member of PCORI’s Advisory Panel on Patient Engagement, I know firsthand that PCORI’s staff is…

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2/19/2019

Marilyn’s Message February 2019

Our vision is clear: the Celiac Disease Foundation seeks to accelerate research to identify treatments and a cure for celiac disease. Since our founding almost 30 years ago, we have known that successful fulfillment of this vision demanded that we be the voice of the celiac community in the corridors of power in and around…

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10/22/2018

Marilyn’s Message October 2018

Celiac.org has a new look. With more than 6.5 million unique visitors annually, Celiac.org is, by far, the most visited celiac disease site in the world. This new look, created specifically for our online community of celiac disease patients and caregivers, healthcare professionals and researchers, as well as our general visitors, offers a streamlined design,…

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12/1/2017

Marilyn’s Message December 2017

As we begin this season of giving, I am proud to share with you the work that your gifts and support make possible. In our 2016-2017 Annual Report, you can learn about: iCureCeliac®, the nation’s only celiac disease patient registry, helping researchers to find new treatments and a cure for celiac disease Our Patient Advocacy…

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12/6/2016

Marilyn’s Message December 2016

2016 has been another milestone year for Celiac Disease Foundation. We began the year launching the revolutionary iCureCeliac® patient registry, the cornerstone of a systematic and cooperative approach between academia, private industry, and patient advocates to apply the principals of precision medicine to developing treatments and a cure for celiac disease. Over the course of…

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