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10/16/2018

iCureCeliac® Study Presented at Digestive Disease Week 2018

In a Medscape Gastroenterology article covering Digestive Disease Week (DDW) 2018, William Balistreri, MD, reported on the studies presented that addressed reliable, cost-effective celiac disease detection. One of the studies highlighted in the article, Forgoing the Duodenal Biopsy for Celiac Disease Diagnosis Among Adults in the United States: Results of a National Survey, analyzed data…

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10/16/2018

The Foundation Submits Letter of Support to FDA on Developing Patient-Focused Clinical Outcome Assessments and Endpoints

On October 15, 2018, the Celiac Disease Foundation submitted a letter of support for the National Health Council’s (NHC) comments to the FDA’s Request for Information (RFI) regarding Standard Core Clinical Outcome Assessment and Endpoint Sets (CCOAES). The NHC’s letter to the FDA included the Foundation’s input from our medical advisory and scientific community. The…

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10/16/2018

Prevalence of Epilepsy in Celiac and Gluten-Sensitive Patients

Previous studies have found celiac disease to be associated with several neurological complications. In a new study, researchers reviewed the available literature to determine the prevalence of epilepsy in patients with celiac disease or gluten sensitivity, and vice versa. For the purposes of this study, the researchers defined “gluten sensitivity” as patients with positive celiac-specific…

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10/10/2018

Hidden Gluten in Restaurant Foods Labeled “Gluten-Free”

At the 2018 ACG Annual Scientific Meeting, Columbia University Medical Center researchers – including Celiac Disease Foundation Medical Advisory Board member Peter Green and Research Committee member Benjamin Lebwohl – presented results from a new study on detecting gluten in restaurant foods. The researchers found 32% of restaurant foods labeled “gluten-free” contained detectable amounts of…

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10/3/2018

Celiac Disease Foundation Granted Membership in the Association of European Coeliac Societies (AOECS)

Los Angeles, CA, September 29, 2018 – The Celiac Disease Foundation is pleased to be accepted as an affiliate member of the Association of European Coeliac Societies (AOECS). Founded in 1988, the AOECS is an independent, non-profit umbrella of national celiac societies who seek to collaborate worldwide. AOECS is actively involved in international initiatives to…

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10/3/2018

Celiac Disease Foundation Attends Genetic Alliance People-Driven Research Meeting

The Celiac Disease Foundation is committed to ensuring the patient perspective is represented in celiac disease research. Through our iCureCeliac® patient registry and Patient Advocate Program, we encourage patients to engage in the research process to help shape the future of celiac disease research toward better diagnostics, treatments, and a cure. On September 20-21, 2018,…

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9/24/2018

Effect of Celiac Disease on Pregnancy Before and After Diagnosis

Previous studies have found celiac disease to be associated with several conditions affecting pregnancy and female reproductive outcomes. In a new population-based study, researchers sought to determine how celiac disease affects pregnancy outcomes, both before and after celiac disease diagnosis. Using data from Danish national registries, researchers compared pregnancy outcomes in women with celiac disease…

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9/5/2018

Marilyn G. Geller Appointed to National Research Institute’s Advisory Panel

Celiac Disease Foundation CEO Marilyn Geller will help bring the patient advocate voice to guiding institute’s patient-centered research efforts August 21, 2018 — Marilyn G. Geller, Chief Executive Officer of the Celiac Disease Foundation has been appointed by the Patient-Centered Outcomes Research Institute (PCORI) as a member of its Advisory Panel on Patient Engagement. Geller…

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8/29/2018

Marilyn’s Message August 2018

I am pleased to announce that I have been selected to be on the Patient-Centered Outcomes Research Institute [PCORI] Advisory Panel on Patient Engagement. I was nominated by the Consumers United For Evidence-Based Healthcare (CUE) organization. CUE is a national coalition of health and consumer advocacy organizations committed to empowering consumers to make the best…

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