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8/5/2019

You Are Invited to the 2019 PCORI Annual Meeting

I’m writing to invite you to join me and others from across the healthcare community at the 2019 Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting, being held September 18-20 at the Marriott Wardman Park Hotel in Washington, DC. As a member of PCORI’s Advisory Panel on Patient Engagement, I know firsthand that PCORI’s staff is…

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8/29/2018

Marilyn’s Message August 2018

I am pleased to announce that I have been selected to be on the Patient-Centered Outcomes Research Institute [PCORI] Advisory Panel on Patient Engagement. I was nominated by the Consumers United For Evidence-Based Healthcare (CUE) organization. CUE is a national coalition of health and consumer advocacy organizations committed to empowering consumers to make the best…

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10/19/2015

CDF Invites Medical and Research Community to Comment on Unified Celiac Disease Patient Registry

Celiac Disease Foundation was selected in December 2014 to participate in PCORnet, the national resource designed to harness the power of partnerships and health data to allow researchers to conduct clinical research faster, more efficiently, and less expensively than is possible now. There is a 30 day period for our medical and research communities to review and comment upon the Celiac Disease Specific Questions.

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10/3/2015

Register Now for PCORI Annual Meeting Webcast

The Patient Centered Outcomes Research Institute (PCORI) holds its Annual Meeting October 6-8, 2015, bringing together members of the PCORI community, including Celiac Disease Foundation as a member of the PCORI Community Engaged Network for All (CENA) Patient-Powered Research Network. The two-and-a-half-day conference will update stakeholder communities on the highlights of the PCORI research portfolio, including…

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