Celiac Disease Foundation is proud to have Dr. Shayna Coburn, PhD, as the featured speaker at the CDF Arizona Chapter Medical Night on September 21, 2016. Dr. Coburn was also a featured speaker at CDF’s National Conference on April 30, 2016 where she spoke about the psychological impact of celiac disease. Dr. Shayna Skelley Coburn is…
Continue ReadingPartners and loved ones can find it very challenging to be responsible for the care of someone with a chronic disease. A recent study at Columbia University looked at just how stressful caregiving for a celiac disease patient can be. Specifically, the study found that the more severe a patient’s symptoms, the more burden felt…
Continue ReadingAt Celiac Disease Foundation’s National Conference on April 30, 2016, the “Dine with the Dietitians” session provided simplified guidelines for the gluten-free diet for those with celiac disease and gluten sensitivity. Janelle Smith, CDF’s Registered Dietitian, shared a panel with Emily Luxford, RD, Celiac Disease Foundation Board of Directors, Scott Mandell, CEO of Enjoy Life…
Continue ReadingAre you still learning the ins and outs of celiac disease? Do you feel overwhelmed with all of the information? Celiac Disease Foundation has the perfect resource for you. Our Celiac Disease Fast Facts include important truths and details about living with celiac disease and the gluten-free diet. The CDF Fast Facts discusses how to…
Continue ReadingLast year, Celiac Disease Foundation (CDF) partnered with the North American Society for the Study of Celiac Disease (NASSCD) to award a three-year, $150,000 grant to support young investigator research in finding the cause and treatment for celiac disease. We are pleased to announce that NASSCD is now accepting applications for the Young Investigator Award for Celiac…
Continue ReadingAre you interested in advancing research toward treatment and a cure for celiac disease? The University of Chicago Celiac Disease Center is enrolling patients for a clinical study testing the effectiveness of a pill for celiac disease. CDF is proud to support the efforts of Medical Advisory Board member, Stefano Guandalini, MD, and CDF Research…
Continue ReadingIt is common for those with celiac disease to turn to over-the-counter (OTC) or prescription loperamide (brand name: Imodium) for short-term treatment of diarrhea. The FDA has recently issued a warning that overuse of this medication can lead to serious cardiac issues, and even death. Users of loperamide are encouraged to adhere to recommended dosages…
Continue ReadingWith more than 1,200 participants registered in its first four months, iCureCeliac™ is shaping the type of research that is most important to you - the patient. We are pleased to present a few initial findings.
Continue ReadingIt is a commonly held belief that, in America, celiac disease occurs most frequently in women of Caucasian descent. A recent study, led CDF Research Committee member Benjamin Lebwohl of the Celiac Disease Center at Columbia University, sought to examine that assertion, and turned up some unexpected information about the ethnic distribution of this widespread…
Continue ReadingCeliac Disease Foundation is proud to announce the establishment of the CDF Research Committee, chaired by Daniel Adelman, MD, with members Sonia Kupfer, MD, Benjamin Lebwohl, MD, and Fernando Velayos, MD. Committee members will select two representatives from CDF’s Patient Engagement Celiac Disease Network to join them in overseeing CDF’s research-related activities, including iCureCeliac™. Research…
Continue ReadingLast month, the Celiac Disease Foundation had the privilege of sponsoring the 2024 International Celiac Disease Symposium in Sheffield, UK. As the first patient advocate invited to chair and present on a scientific panel, CEO Marilyn Geller co-chaired the End Points in Clinical Trials session with Dr. Francisco Leon, CEO...