Celiac Disease Foundation (CDF) is proud to announce that Sheila E. Crowe, MD, FRCPC, FACP, FACG, AGAF of University of California, San Diego (UCSD), a member of CDF’s esteemed Medical Advisory Board, is the new President of the American Gastroenterological Association.
Continue ReadingCeliac Disease Foundation (CDF) is proud to announce that Sheila E. Crowe, MD, FRCPC, FACP, FACG, AGAF of University of California, San Diego (UCSD), a member of CDF’s esteemed Medical Advisory Board, is the new President of the American Gastroenterological Association. A clinician-scientist and Professor in the Division of Gastroenterology in the Department of Medicine…
Continue ReadingThink you have what it takes to win? Do you have a tried and true gluten-free recipe you want to share with the gluten-free community? Submit your favorite appetizer, entrée, or dessert recipe to Celiac Disease Foundation using our social media channels (Facebook, Twitter, or Instagram).
Continue ReadingThe pharmaceutical industry, the Food and Drug Administration, and disease advocacy organizations like Celiac Disease Foundation (CDF) are all seeking meaningful patient engagement in the drug research and development process. There is considerable evidence that when patients are active participants in disease research, the drug development process is not only more cost and time efficient,…
Continue ReadingOne of the leading causes of suffering in the celiac disease community is the significant time gap between when a patient first presents disease symptoms and a correct diagnosis by a physician. Studies show the average delay for a correct celiac disease diagnosis is 6-10 years. Furthermore, we estimate that 2.5 million Americans suffer from…
Continue ReadingCeliac Disease Foundation (CDF) is pleased to announce that over 3,500 people – patients, family members, caregivers, healthcare professionals, researchers, biopharmaceutical and diagnostic company representatives, and gluten-free foodies – attended CDF’s annual National Conference & Gluten-Free EXPO on June 3-4, 2017 in Pasadena. The June 3rd Conference featured the Patients as Partners Research Symposium where attendees…
Continue ReadingThe U.S. Senate is currently deciding how to handle healthcare reform and potentially crafting legislation to “repeal and replace” or otherwise modify the Affordable Care Act (ACA). Celiac Disease Foundation’s Legislative Action Center empowers you, your family, and your friends to quickly and easily contact your elected Representatives and Senators about issues of concern to…
Continue ReadingCeliac Disease Foundation recently administered a survey to gauge community interest in using a simple in-home urine or stool test to monitor gluten intake. Through our iCureCeliac® patient registry, we have found that 53% of people with celiac disease continue to experience symptoms while on a strict gluten-free diet. The most common reason for persistent…
Continue ReadingCeliac Disease Foundation recently administered a survey to gauge community interest in using a simple in-home urine or stool test to monitor gluten intake. Through our iCureCeliac® patient registry, we have found that 53% of people with celiac disease continue to experience symptoms while on a strict gluten-free diet. The most common reason for persistent…
Continue ReadingOn August 2, 2013, the Food and Drug Administration issued a final rule defining “gluten-free” for food labeling to help consumers, especially those living with celiac disease and non-celiac gluten/wheat sensitivity, trust that items labeled “gluten-free” meet a defined standard for gluten content. This rule was officially implemented one year later in August of 2014.
Continue ReadingLast month, the Celiac Disease Foundation had the privilege of sponsoring the 2024 International Celiac Disease Symposium in Sheffield, UK. As the first patient advocate invited to chair and present on a scientific panel, CEO Marilyn Geller co-chaired the End Points in Clinical Trials session with Dr. Francisco Leon, CEO...