2020 is starting out BIG, with the Celiac Disease Foundation hosting the National Celiac Disease Patient Advocacy Summit on February 27, 2020, in Washington, DC. Apply today to attend.
Continue ReadingAfter decades of pleading with our federal government to take celiac disease as seriously as it does other diseases with comparable patient impact, yesterday, the U.S. House and Senate each passed, and President Trump has signed, the FY2020 Federal budget resolution.
Continue ReadingAs I return to Los Angeles, I would like to take a moment to share with you some of the highlights of our productive two days in Washington, DC. Your…
Continue ReadingFor decades, the celiac disease community has been told that the pain, the suffering, the fog, the depression, and the missed days of work and school were our fault because…
Continue ReadingCEO Marilyn G. Geller’s testimony before the House Appropriations Subcommittee has helped secure report language in the House’s version of the 2020 Labor-HHS-Education bill demanding that the National Institute of…
Continue ReadingAs a member of the National Coalition of Autoimmune Patients Groups (NCAPG), a coalition founded by the American Autoimmune Related Diseases Association (AARDA), the Celiac Disease Foundation signed onto the proposed…
Continue ReadingAll over the country, parents are getting ready to send their children back to school. Our children, Alexander Solomon, Amanda Solomon, and Draya Ramer, have celiac disease. Returning to school presents special challenges…
Continue ReadingOn June 3, 2019, Marilyn G. Geller, CEO of the Celiac Disease Foundation, submitted Outside Witness Testimony to the Senate Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies.
Continue ReadingOutside Witness Testimony – Fiscal Year 2020 Appropriations Prepared By Marilyn G. Geller, CEO, Celiac Disease Foundation Prepared for the Subcommittee on Labor, Health and Human Services,…
Continue ReadingRepresentatives Tim Ryan (D-OH) and Tom Cole (R-OK) introduced H.R. 2074, the Gluten in Medicine Disclosure Act of 2019. The bill intends to make it easier to identify gluten in prescription medications.
Continue ReadingLast month, the Celiac Disease Foundation had the privilege of sponsoring the 2024 International Celiac Disease Symposium in Sheffield, UK. As the first patient advocate invited to chair and present on a scientific panel, CEO Marilyn Geller co-chaired the End Points in Clinical Trials session with Dr. Francisco Leon, CEO...