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A team of pediatric medical experts convened at the Children’s National Health Center in Washington, D.C. in January 2013 with a single, ambitious goal – to cull from over 40 years of publications and studies relating to celiac disease in children, a list of best practices for the diagnosis, treatment, and management of this potentially devastating disease.

Celiac disease can be difficult to diagnose because it affects people in different ways. There are over 300 known symptoms of celiac disease which may affect every organ in your body, not just your digestive system. Some people with celiac disease are asymptomatic, meaning that they have no external symptoms at all. However, all people with celiac disease are…

Having a child with celiac disease poses unique challenges both for you and your child. The lifestyle changes – and how they are managed – that come with a diagnosis of celiac disease can be difficult during the school-age years. Celiac Disease Foundation has developed this Back-to-School and 504 Plan Guide to help you and your…

Last Updated: January 13, 2022 Celiac disease is a chronic autoimmune disease, which means that you cannot “grow out” of it. 1 in 100 people worldwide have celiac disease. Celiac disease affects an estimated three million Americans. Approximately 60-70% of Americans with celiac disease are not diagnosed and are needlessly suffering. People with a first degree…

To cure celiac disease we must fundamentally shift how celiac disease research is conceptualized and conducted. Why? Because the current research paradigm for celiac disease, one that has existed for four decades, has not delivered a cure. Not only has it not delivered a cure, celiac disease research has produced only a single approved treatment for the disease – the gluten-free diet.

It wasn’t that long ago that the gluten-free diet became popular or even recognizable to the general public. There were very few options available, and even fewer that were appetizing. Today, the gluten-free lifestyle is all the rage – there are hundreds of blogs, recipe pages, and websites dedicated to living happily gluten-free. The gluten-free…

Researchers have confirmed physical evidence of immune system activation and intestinal damage when wheat is consumed by some individuals without celiac disease and wheat allergy.  For decades, but more so in recent years as awareness of celiac disease and the gluten-free diet has grown, patients have presented with severe abdominal issues, neurological complications, and other symptoms…

There is no question that the popularity of “going gluten-free” has risen sharply in recent years. The question is, does a gluten-free diet (GFD) pose a true benefit to those without a diagnosis of celiac disease, or is it doing more harm than good? Norelle Reilly, MD, pediatric gastroenterologist at Columbia University, recently sought to…

In her recent article in the University of Chicago’s Celiac Disease Center newsletter, “Impact,” Dr. Carol Semrad seeks to clarify the important steps needed to accurately diagnose celiac disease. Traditionally, celiac disease has been diagnosed by duodenal (small bowel) biopsy, however, there are a number of different ailments and conditions that can lead to small…

Do you know an adolescent with celiac disease? The University of Chicago Celiac Disease Center is currently conducting a research study for teenagers with celiac disease and their parents, to better understand the feelings and coping skills of adolescent patients with celiac disease and how this affects their adherence to a gluten-free diet later in…