The March 19, 2017 Summit brought patients and consumer advocates together with guideline developers, methodologists, and other stakeholders in the clinical guideline enterprise for the purpose of constructive dialogue and initiation of durable relationships between them.
Continue ReadingAt the March 9 and 10, 2017 Genetic Alliance Conference, Celiac Disease Foundation worked to determine best strategies to help grow our iCureCeliac® patient registry, and to encourage patients and their family members to engage in the research process to influence the future of celiac disease research toward treatments and a cure.
Continue ReadingAt the March 5 and 6, 2017 Digestive Disease National Coalition Public Policy Forum, Celiac Disease Foundation, together with representatives from digestive disease organizations across the United States, developed common agendas to influence healthcare policy.
Continue ReadingCeliac Disease Foundation, in partnership with the University of Southern California (USC) Keck School of Medicine, and CDF Board member Dr. Michael S. Karp, Chief of the Division of Geriatric, Hospital, Palliative and General Internal Medicine, is proud to launch a pioneering celiac disease training program for Internal Medicine residents. This program is made possible…
Continue ReadingImmusanT, a Cambridge, MA-based biotechnology company, has announced that Nexvax2®, an immunotherapy drug designed to protect celiac disease patients from gluten exposure, has successfully completed a Phase 1b clinical trial and is advancing to a Phase 2 trial. Currently, strict, lifetime adherence to a gluten-free diet is the only disease management protocol for celiac disease…
Continue ReadingIn 1992, M.N. Marsh published a study aimed at measuring degrees of change seen in the structure of intestinal villi under microscopic scrutiny. Villi are finger-like projections which line the intestinal walls; their thin walls and large surface area are what allow for efficient absorption and digestion of nutrients. In patients with celiac disease, the…
Continue ReadingIn addition to improving treatments and finding a cure for celiac disease, iCureCeliac® is helping researchers appreciate the realities of living with celiac disease, helping to influencing what they choose to research and why.
Continue ReadingPatients with chronic diseases and their caregivers are demanding that any new health plan that emerges from Congress retains specific patient protections, including prohibiting pre-existing condition discrimination.
Continue ReadingCeliac Disease Foundation (CDF) and the North American Society for the Study of Celiac Disease (NASSCD) are proud to announce Matthew Shale, MD, PhD as the recipient of the Young Investigator Award.
Continue ReadingCeliac Disease Foundation has launched a new Legislative Action Center to empower you, your family, and your friends to quickly and easily contact your elected Representatives about issues of concern to the celiac disease and non-celiac wheat/gluten sensitive community. We are urging you to use the Legislative Action Center right now to demand that your…
Continue ReadingLast month, the Celiac Disease Foundation had the privilege of sponsoring the 2024 International Celiac Disease Symposium in Sheffield, UK. As the first patient advocate invited to chair and present on a scientific panel, CEO Marilyn Geller co-chaired the End Points in Clinical Trials session with Dr. Francisco Leon, CEO...