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CDF has been approved for a $100,000 funding award through the Eugene Washington PCORI Engagement Awards program. The funds will support the community convening of patient advocates, researchers, and other key stakeholders to create a roadmap for patient advocate engagement in research.

I’m writing to invite you to join me and others from across the healthcare community at the 2019 Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting, being held September 18-20 at…

To ensure our community gets the representation it deserves, we are delighted to announce that we have retained Ben Nicholson, a consultant based in Washington, DC, to provide legislative, policy, and advocacy services for the Foundation.

Celiac Disease Foundation Attends PCORI 2018 Annual Meeting and Advocacy Day

I am pleased to announce that I have been selected to be on the Patient-Centered Outcomes Research Institute [PCORI] Advisory Panel on Patient Engagement. I was nominated by the Consumers…

Celiac Disease Foundation was selected in December 2014 to participate in PCORnet, the national resource designed to harness the power of partnerships and health data to allow researchers to conduct clinical research faster, more efficiently, and less expensively than is possible now. There is a 30 day period for our medical and research communities to review and comment upon the Celiac Disease Specific Questions.

The Patient Centered Outcomes Research Institute (PCORI) holds its Annual Meeting October 6-8, 2015, bringing together members of the PCORI community, including Celiac Disease Foundation as a member of the…

The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved nearly $142.5 million to support the ongoing development and expansion of an ambitious new resource for health research known as PCORnet, the National Patient-Centered Clinical Research Network.