Marilyn’s Message March 2018
TO NETFLIX AND MARVEL: In a recent episode of the Netflix series, “Jessica Jones,” celiac disease was, yet again, trivialized. Saying that celiac disease “doesn’t matter” is cruel and insensitive…
Continue ReadingTO NETFLIX AND MARVEL: In a recent episode of the Netflix series, “Jessica Jones,” celiac disease was, yet again, trivialized. Saying that celiac disease “doesn’t matter” is cruel and insensitive…
Continue ReadingOn December 12, 2017, the Food & Drug Administration (FDA) issued guidance to drug manufacturers to voluntarily label medications that do not contain gluten with the following statement: “Contains no…
Continue ReadingUsing data gathered on children born in Bavaria, Germany between the years 2005-2007, researchers sought to make a connection between gastrointestinal or respiratory infections and the development of celiac disease.…
Continue ReadingClostridium difficile (C.diff) is a widely prevalent bacterium that causes abdominal cramping and diarrhea in affected individuals. In the United States, close to half a million people contract C.diff infection…
Continue ReadingParty City, one of the nation’s largest party supply stores, has pulled from the air and apologized for a television ad that mocks and shames individuals who eat gluten-free. The…
Continue ReadingLaunched in February 2016, iCureCeliac® is a free online portal for patients, or their caregivers, to provide critical insights into life with celiac disease and gluten/wheat sensitivity. Anonymized questionnaire data, completed by…
Continue Reading“Fail faster” is a saying in drug research. In 2014, the Tufts Center for the Study of Drug Development estimated that the average cost of bringing a new drug through…
Continue ReadingThe current standard for a celiac disease diagnosis is a positive blood test for specific antibodies, followed by a biopsy of the intestine that reveals damage to the villi (villous…
Continue ReadingThe Celiac Disease Foundation works tirelessly year-round to advance research toward treatments and a cure. Access to patient data is necessary to better target treatments for those with celiac disease.…
Continue ReadingThe Food & Drug Administration (FDA), on December 12, 2017, issued guidance to drug manufacturers to voluntarily label medications with a statement indicating that gluten-containing ingredients were not used to…
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