Interview with Advocacy Counsel Senior Advisor – Marilyn’s Message February 2022
To share with you some insight into our advocacy work, I recently interviewed Mark Van de Water, Senior Advisor at Baker Donelson.
Continue ReadingTo share with you some insight into our advocacy work, I recently interviewed Mark Van de Water, Senior Advisor at Baker Donelson.
Continue ReadingThe Celiac Disease Foundation is pleased to partner with the Crohn’s & Colitis Foundation on the Open Restrooms Movement. Like inflammatory bowel disease, celiac disease can cause an urgent and unexpected need for a restroom.
Continue ReadingFor the first time ever, the NIH has released a Notice of Special Interest to provide dedicated research funding for the study of celiac disease.
Continue ReadingThe findings of the Research Opportunities in Celiac Disease Consensus Workshop, sponsored by the CDF, were published as a Research Roadmap for NIH.
Continue ReadingOn August 24, Rep. Betty McCollum launched the bipartisan Celiac Disease Caucus. We look forward to continuing to work with Rep. McCollum and the Caucus to support innovative research and advance legislation that will ease the suffering of celiac patients.
Continue ReadingPlease take one minute to email your Members of Congress to make it easier and safer for those with celiac disease to purchase food items by requiring labels to list the presence of barley and rye, in addition to wheat.
Continue ReadingPlease take ONE MINUTE to contact your Members of Congress, using our simple, pre-populated form, to make it easier and safer for individuals with celiac disease by disclosing if foods contain rye and barley, in addition to wheat.
Continue ReadingThe FDA hosted the Gastroenterology Regulatory Endpoints and the Advancement of Therapeutics VI (GREAT VI) Workshop on Celiac Disease - the second workshop ever held by the FDA for celiac disease.
Continue ReadingWe are pleased to share that CEO Marilyn Geller will be presenting as the Patient Advocate at the March 18-19 National Institute of Allergy and Infectious Diseases Accelerating Progress in Celiac Disease Workshop. We encourage you to register to attend this seminal virtual meeting.
Continue ReadingThe Senate Appropriations Committee has released their FY2021 funding recommendations, which includes report language directing NIH to support celiac disease research.
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