2019 Year in Review
For decades, the celiac disease community has been told that the pain, the suffering, the fog, the depression, and the missed days of work and school were our fault because…
Continue ReadingFor decades, the celiac disease community has been told that the pain, the suffering, the fog, the depression, and the missed days of work and school were our fault because…
Continue ReadingCEO Marilyn G. Geller’s testimony before the House Appropriations Subcommittee has helped secure report language in the House’s version of the 2020 Labor-HHS-Education bill demanding that the National Institute of…
Continue ReadingAs a member of the National Coalition of Autoimmune Patients Groups (NCAPG), a coalition founded by the American Autoimmune Related Diseases Association (AARDA), the Celiac Disease Foundation signed onto the proposed…
Continue ReadingAll over the country, parents are getting ready to send their children back to school. Our children, Alexander Solomon, Amanda Solomon, and Draya Ramer, have celiac disease. Returning to school presents special challenges…
Continue ReadingOn June 3, 2019, Marilyn G. Geller, CEO of the Celiac Disease Foundation, submitted Outside Witness Testimony to the Senate Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies.
Continue ReadingOutside Witness Testimony – Fiscal Year 2020 Appropriations Prepared By Marilyn G. Geller, CEO, Celiac Disease Foundation Prepared for the Subcommittee on Labor, Health and Human Services,…
Continue ReadingRepresentatives Tim Ryan (D-OH) and Tom Cole (R-OK) introduced H.R. 2074, the Gluten in Medicine Disclosure Act of 2019. The bill intends to make it easier to identify gluten in prescription medications.
Continue ReadingIn partnership with NASPGHAN and Children’s National Health System (CNHS), the Celiac Disease Foundation launched the Celiac School Action Guidelines for Education (SAGE) Initiative.
Continue ReadingYou know better than anyone the challenges of living with celiac disease. As CEO of the Celiac Disease Foundation, I am scheduled to testify on April 9th in front of the Congressional Appropriations Subcommittee responsible for NIH funding.
Continue ReadingTo ensure our community gets the representation it deserves, we are delighted to announce that we have retained Ben Nicholson, a consultant based in Washington, DC, to provide legislative, policy, and advocacy services for the Foundation.
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