Marilyn’s Message

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Marilyn’s Message June 2015

Marilyn Geller

Relatively Rare. Relatively Minor. Relatively Easy to Treat. For more than 50 years, the celiac community has been led to believe that the above statements about the disease were true. We – those of us who live with the disease or who took care of someone with the disease – knew, however, that managing celiac disease […]

Marilyn’s Message May 2015

Marilyn Geller

Every day, I talk to people who, like me, live with celiac disease – either personally or as a caregiver for someone they love. Each of their stories, while unique, share common underlying themes: the incredible suffering they either endured or witnessed until finally someone suggested getting tested for celiac disease, the difficulties adhering to […]

Marilyn’s Message March 2015

Marilyn Geller

We are making progress. I freely admit to you, however, that it isn’t enough. We are not satisfied, but please know that we are in this for the long haul. My hope is that you will stand with us by supporting CDF’s Annual Fund with a tax-deductible contribution. For 25 years, CDF has been the […]

Marilyn’s Message February 2015

Marilyn Geller

I cannot stress enough how important your generous commitment is to our ongoing work here at Celiac Disease Foundation. I am pleased to report that we are making real progress in focusing resources and attention on celiac disease. For example, next month, the Food and Drug Administration (FDA) will be hosting a two-day meeting at […]

Marilyn’s Message January 2015

Marilyn Geller

I will spare you my righteous indignation (I did not, however, spare my spouse who got an earful yesterday morning). You and I both know that the comedian, Joy Behar, is a TV personality who gets paid by offending any and all. In case you missed her outrageous comments on MSNBC’s Morning Joe Show yesterday […]

Marilyn’s Message November 2014

Marilyn Geller

The holiday season is a time of reflection, and each of us at Celiac Disease Foundation want to thank you for all that you have done this year. You can read about everything you have helped make possible in our Year in Review. You should also know that we are not the only ones who […]

Marilyn’s Message September 2014

Marilyn Geller

One year ago, Celiac Disease Foundation introduced our School Nurse Awareness Plan (SNAP!) Back-to-School outreach campaign. Since then, with your generous support, our Chapters have educated more than 2,000 school nurses and health aides throughout the country in the diagnosis and treatment of celiac disease and gluten sensitivity. This fall, we are extending our Back-to-School […]

Marilyn’s Message August 2014

Marilyn Geller

This month Celiac Disease Foundation launches the CDF Online Advocacy Program designed to empower the celiac community to advocate for our disease.  The Advocacy Program features CDF’s public policy priorities, tools and resources for taking action on both a national and local basis, a Legislative Action Center in partnership with the American Celiac Disease Alliance […]

Marilyn’s Message – June 2014

Marilyn Geller

June has been a whirlwind of activity for the CDF National Office with the presenting of the 2014 National Conference & Gluten-Free EXPO in Pasadena, California.  In keeping with CDF’s mission of educating medical providers about celiac disease diagnosis and treatment, CDF kicked off the Conference weekend on Friday with Grand Rounds at Cedars-Sinai and […]

Marilyn’s Message May 2014

Marilyn Geller

May is Celiac Disease Awareness Month.  It is the month where we make an extra effort to let those outside our community know the statistics:  1 in 100 people worldwide have celiac disease; only 17% of people with celiac disease are diagnosed in the United States; 6-10 years is the average time to diagnosis in […]