Marilyn’s Message

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Marilyn’s Message October 2016

Marilyn Geller

This month, Celiac Disease Foundation launched the Pediatric and Adult Celiac Disease Follow-up Checklists. Based upon recommendations from the world’s leading medical experts, the Follow-Up Checklists specify best practices in post-diagnosis celiac disease management to assure optimal patient care.

Marilyn’s Message August 2016

Marilyn Geller

If you are a parent, you know how challenging the entire back-to-school process can be. Now, imagine that your child has celiac disease or non-celiac wheat sensitivity (NCWS). Currently, parents are confronting the reality of sending their gluten-free children back to school, and I know from experience just how intimidating and frustrating it can be. Our first […]

Marilyn’s Message July 2016

Marilyn Geller

Last month, we shared the statistics from the first 1,200 participants in iCureCeliac®. Our first cut of analysis revealed interesting and, quite frankly, potentially alarming numbers about celiac disease, such as: 33 percent of iCureCeliac® participants reported that diagnosis took longer than five years from the onset of their first symptoms. 53 percent of iCureCeliac® […]

Marilyn’s Message June 2016

Marilyn Geller

Having a child diagnosed with a chronic autoimmune disease can be very scary. When Gabbi Saft was diagnosed with celiac disease, her parents, Warren and Amber, turned to the Celiac Disease Foundation (CDF) to begin researching the challenges that she would face. What they learned was that every time she had a school lunch, went […]

Marilyn’s Message May 2016

Marilyn Geller

Thank you to our more than 1,000 iCureCeliac participants for your amazing commitment to help researchers advance treatments and a cure for celiac disease and gluten sensitivity. I am pleased to share with you that we already have two research studies in place! The first is with Celimmune who is sponsoring clinical trials to test a drug […]

Marilyn’s Message March 29, 2016

Marilyn Geller

There is a growing understanding in the celiac disease community and among the medical professionals who treat the disease that the presence of celiac disease and its many symptoms can adversely impact a patient’s mental health. This can be particularly traumatic for young people. My son, for example, suffered from severe depression before he was […]

Marilyn’s Message March 7, 2016

Marilyn Geller

As part of our agenda to dramatically advance celiac disease research in 2016 and beyond, Celiac Disease Foundation has launched iCureCeliac, a massive patient registry database that promises to shorten the timeframe and lower the cost of developing life-enhancing treatments and a cure for celiac disease. The iCureCeliac database of patient-contributed and patient-controlled data will, for […]

Marilyn’s Message February 2016

Marilyn Geller

Celiac disease and gluten sensitivity research are desperately underfunded around the world, especially here in the United States. The National Institutes of Health’s Estimates of Funding for Various Research, Condition and Disease Categories has 250+ line items. Celiac disease is not among them. This lack of funding by government and private sources is the primary […]

Marilyn’s Message January 2016

Marilyn Geller

Thank you for making our 2015 Gift of Hope campaign a tremendous success! As you know, our goal was $100,000. As of yesterday, our fundraising total had reached $137,000. The average gift for the 2015 Gift of Hope Challenge was almost $200. With our generous Board of Directors Challenge Match of $0.50 for every dollar […]

Marilyn’s Message December 2015

Marilyn Geller

You have surely already received emails from Celiac Disease Foundation (CDF) that tell the stories of many in our community who are living with celiac disease. Some of these emails include videos that really capture the power and passion of the voices speaking about their disease. These emails are part of our annual year-end Gift […]