The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved nearly $142.5 million to support the ongoing development and expansion of an ambitious new resource for health research known as PCORnet, the National Patient-Centered Clinical Research Network.
Continue ReadingCDF is committed to advancing the delivery of personalized health solutions emerging from the rapidly developing fields of genomics and data collection and analysis. We are a lead institutional participant in the Community Engaged Network for All (CENA), a ground-breaking initiative to create a massive national patient-driven cohort for disease research. The White House has launched…
Continue ReadingThe 16th International Celiac Disease Symposium (ICDS 2015) was held June 21-23, 2015, in Prague, Czech Republic. The largest international gathering of physicians, dietitians, researchers, and academics in the field of celiac disease, ICDS 2015 included scientific, clinical and patient forums focusing on the latest developments. REPRESENTING YOU To ensure that your voice and the…
Continue ReadingCeliac Disease Foundation Chief Executive Officer, Marilyn G. Geller, was recently appointed to sit on the Royal Caribbean Advisory Board on Disabilities. The Advisory Board held its first meeting in May 2015, and was established by the cruise line to improve the travel experience for guests with disabilities
Continue ReadingCeliac Disease Foundation (CDF) is proud to announce that Marilyn G. Geller, Chief Executive Officer, recently received a national award from Alpha Chi Omega Sorority, recognizing her accomplishments and achievements at CDF. The “Real. Strong. Women. Of Distinction” Award is a new initiative highlighting Alpha Chi Omega women who are on the road to achieving…
Continue ReadingCeliac Disease Foundation (CDF), the nation’s leading disease advocacy organization for celiac disease, is pleased to announce its iPhone and Android app for the celiac.org Gluten-Free Allergy-Free Marketplace.
Continue ReadingSnyder's of Hanover®, maker of the No. 1 gluten-free pretzel in the U.S., is raising awareness and funds to support Celiac Disease Foundation (CDF). For the second year, Snyder's-Lance, Inc. and its Snyder's of Hanover brand will donate $0.05 from the sale of specially marked bags through June 30.
Continue ReadingProbiotics are live microorganisms that, when taken as a supplement, can help establish a healthy balance of bacteria in the gut. For many, the word bacteria often carries a negative connotation; however, bacteria play a crucial role in maintaining normal GI function and protecting the body from infection. Although there is no evidence-based research to…
Continue ReadingCeliac disease is a genetic autoimmune condition triggered by gluten that causes the body’s immune system to attack itself, damaging the small intestine. A wide range of symptoms can occur in different individuals, including but not limited to: unexplained iron-deficiency anemia, fatigue, bone or joint pain, arthritis, seizures or migraines, abdominal bloating and pain, and…
Continue ReadingA member of CDF’s Medical Advisory Board, Peter Green, MD, recently studied the relationship between celiac disease (CD) and neuropathy, along with the expert knowledge of doctors Thawani, Brannagan, Lebwohl, and Ludviggson. Neuropathy is a condition that weakens nerve cells and inhibits normal nerve function. Our nerves are used for communicating with the brain and…
Continue ReadingLast month, the Celiac Disease Foundation had the privilege of sponsoring the 2024 International Celiac Disease Symposium in Sheffield, UK. As the first patient advocate invited to chair and present on a scientific panel, CEO Marilyn Geller co-chaired the End Points in Clinical Trials session with Dr. Francisco Leon, CEO...