Celiac disease research is desperately underfunded. The primary reason that celiac disease research has historically been underfunded relative to other diseases with similar population prevalence and impact is the assumption that lifetime adherence…
Continue ReadingElaine Monarch founded Celiac Disease Foundation to give voice to the millions of celiac disease sufferers who were being systematically ignored by doctors, medical researchers, and our government. A major part…
Continue Reading2016 has been another milestone year for Celiac Disease Foundation. We began the year launching the revolutionary iCureCeliac® patient registry, the cornerstone of a systematic and cooperative approach between academia,…
Continue ReadingThis month, Celiac Disease Foundation launched the Pediatric and Adult Celiac Disease Follow-up Checklists. Based upon recommendations from the world’s leading medical experts, the Follow-Up Checklists specify best practices in post-diagnosis celiac disease management to assure optimal patient care.
Continue ReadingIf you are a parent, you know how challenging the entire back-to-school process can be. Now, imagine that your child has celiac disease or non-celiac wheat sensitivity (NCWS). Currently, parents…
Continue ReadingLast month, we shared the statistics from the first 1,200 participants in iCureCeliac®. Our first cut of analysis revealed interesting and, quite frankly, potentially alarming numbers about celiac disease, such…
Continue ReadingHaving a child diagnosed with a chronic autoimmune disease can be very scary. When Gabbi Saft was diagnosed with celiac disease, her parents, Warren and Amber, turned to the Celiac…
Continue ReadingThank you to our more than 1,000 iCureCeliac participants for your amazing commitment to help researchers advance treatments and a cure for celiac disease and gluten sensitivity. I am pleased to share…
Continue ReadingThere is a growing understanding in the celiac disease community and among the medical professionals who treat the disease that the presence of celiac disease and its many symptoms can…
Continue ReadingAs part of our agenda to dramatically advance celiac disease research in 2016 and beyond, Celiac Disease Foundation has launched iCureCeliac, a massive patient registry database that promises to shorten the…
Continue ReadingLast month, the Celiac Disease Foundation had the privilege of sponsoring the 2024 International Celiac Disease Symposium in Sheffield, UK. As the first patient advocate invited to chair and present on a scientific panel, CEO Marilyn Geller co-chaired the End Points in Clinical Trials session with Dr. Francisco Leon, CEO...