On February 21, 2018, the Centers for Medicare and Medicaid Services (CMS) released a proposed rule to modify the definition of short-term, limited duration insurance to exclude it from individual…
Continue ReadingMaintaining political nonpartisanship is an essential component of all 501(c)(3) organizations, including religious congregations, charitable nonprofits, and foundations. Per the IRS tax code, in exchange for their tax-exempt status and…
Continue ReadingThe Celiac Disease Foundation is committed to representing the celiac disease patient voice in policy and healthcare reform, and can better do so alongside strong allies with common goals. To…
Continue ReadingAs part of the Celiac Disease Foundation’s expanding effort to give voice to the celiac disease community in important areas of healthcare policy and federal funding for disease research, Laura…
Continue ReadingIn an effort to give voice to the celiac disease community in important areas of healthcare reform, on February 15, 2018, Alana Broe, the Celiac Disease Foundation’s Legislative Analyst, attended…
Continue ReadingOn December 12, 2017, the Food & Drug Administration (FDA) issued guidance to drug manufacturers to voluntarily label medications that do not contain gluten with the following statement: “Contains no…
Continue ReadingThe Food & Drug Administration (FDA), on December 12, 2017, issued guidance to drug manufacturers to voluntarily label medications with a statement indicating that gluten-containing ingredients were not used to…
Continue ReadingSave the date for the University of Chicago Celiac Disease Center’s Annual Celiac Education Day on Saturday, October 21, 2017. Celiac Disease Foundation (CDF) is proud to be a co-sponsor…
Continue ReadingSenators Lindsey Graham (R-SC), Bill Cassidy (R-LA), Dean Heller (R-NV), and Ron Johnson (R-WI) recently introduced legislation known as Graham-Cassidy to repeal and replace the Affordable Care Act (ACA). The…
Continue ReadingOn September 18, 2017, Celiac Disease Foundation (CDF) representatives attended a Food and Drug Administration (FDA) meeting in White Oak, MD on the ongoing implementation of a benefit-risk framework to…
Continue ReadingLast month, the Celiac Disease Foundation had the privilege of sponsoring the 2024 International Celiac Disease Symposium in Sheffield, UK. As the first patient advocate invited to chair and present on a scientific panel, CEO Marilyn Geller co-chaired the End Points in Clinical Trials session with Dr. Francisco Leon, CEO...