Featured News

The Celiac Disease Foundation on May 22 awarded its first Celiac Disease Policy Leadership Award to U.S. Representative Betty McCollum (MN-04) for her distinguished service and advocacy on behalf of the celiac disease patient community. Among other initiatives, she established the bipartisan Congressional Celiac Disease Caucus, which has significantly increased federal recognition of celiac disease.

In March, our Celiac Disease Foundation staff—most of whom are lived experience experts—headed to the halls of Congress for our annual round of bipartisan meetings with key members of Congress to advocate for the interests of our patient and research communities.

Please take one minute to email your Members of Congress to make it easier and safer for those with celiac disease to purchase food items by requiring labels to list the presence of barley and rye, in addition to wheat.

We are well on the way to assembling a grassroots advocacy team that can help make celiac disease a national priority in communities across the country

On April 9, 2019, Marilyn G. Geller, CEO of the Celiac Disease Foundation, testified before the House Appropriations Subcommittee overseeing the funding for the Department of Health and Human Services, including the National Institutes of Health (NIH).

You know better than anyone the challenges of living with celiac disease. As CEO of the Celiac Disease Foundation, I am scheduled to testify on April 9th in front of the Congressional Appropriations Subcommittee responsible for NIH funding.

To ensure our community gets the representation it deserves, we are delighted to announce that we have retained Ben Nicholson, a consultant based in Washington, DC, to provide legislative, policy, and advocacy services for the Foundation.