As a member of the National Coalition of Autoimmune Patients Groups (NCAPG), a coalition founded by the American Autoimmune Related Diseases Association (AARDA), the Celiac Disease Foundation signed onto the proposed rule comments from I Am Essential that would dramatically change the regulations that implement Section 1557, the anti-discrimination provision of the Affordable Care Act. The…
Continue ReadingElaine Monarch founded Celiac Disease Foundation to give voice to the millions of celiac disease sufferers who were being systematically ignored by doctors, medical researchers, and our government. A major part of our work over the last 30 years has been advocacy, including a successful campaign to secure gluten-free labeling regulations. Today, I am writing to…
Continue ReadingLast month, the Celiac Disease Foundation had the privilege of sponsoring the 2024 International Celiac Disease Symposium in Sheffield, UK. As the first patient advocate invited to chair and present on a scientific panel, CEO Marilyn Geller co-chaired the End Points in Clinical Trials session with Dr. Francisco Leon, CEO...