Celiac Disease Foundation advocacy priorities are focused to provide more information to those living with celiac disease so that they can confidently live a healthy gluten-free life, and to advance research to drive diagnosis and ultimately find a cure. The current public policy priorities include:
- Continued and expanded application of the FDA Gluten-Free Labeling Rule: In August 2014, the Food and Drug Administration required that all foods labeled gluten-free must contain less than 20 parts per million of gluten. This ruling, 10 years in the making, was a great victory to the gluten-free community, allowing consumers to buy gluten-free products with confidence. One of the first disease advocacy organizations to advocate for gluten-free labeling standards, Celiac Disease Foundation continues to work with the FDA to ensure this rule is upheld, and to clarify its application to food service establishments, as well as medications and supplements.
- Passage of the 21st Century Cures Act: In a rare moment of bipartisan cooperation in Washington, D.C., the landmark 21st Century Cures legislation passed the U.S. House in early July, 2015, by a vote of 344-77. The bill, co-authored by Republican Fred Upton and Democrat Diana DeGette, seeks to bring new drugs and treatments to market faster by encouraging medical innovation in research, and streamlining some FDA requirements. It also includes almost $9 billion in new funding for NIH for research, and more than $500 million in new funding for the FDA to implement structural changes in the review of medical treatments. This legislation is far from perfect, however. We acknowledge the real concerns of public health specialists who believe that the legislation will weaken safety reviews, especially of medical devices. But we cannot let perfection be the enemy of the good. Celiac Disease Foundation urges you to contact your Senator and demand that the Senate take up and pass this critical bipartisan legislation during the fall session.
- Recognition by the National Institutes of Health for federal research grants: Research is limited by the amount of funding provided. Federal research grants will give celiac disease researchers the funding they need to make great strides in advancing treatment, driving diagnosis, managing symptoms, and finding a cure for celiac disease.