The Celiac Disease Foundation’s robust coalition work on behalf of our community advocates for critical healthcare legislation to elevate the voices of those impacted by celiac disease. At the March Digestive Disease National Coalition’ s (DDNC) 35th Annual Public Policy Forum in Washington D.C. Jackson Rau, Celiac Disease Foundation Senior Manager of Public Policy and Government Affairs, was appointed to the DDNC’s Executive Committee as a Member-At-Large and selected as a featured panelist. Jackson spoke to more than 100 passionate disease advocates from across the country as they gathered in the nation’s capital to share best advocacy practices and push for meaningful policy change.
This powerful forum provided the Celiac Disease Foundation the opportunity to provide key insights on celiac disease important to the Foundation’s mission, updating the coalition of our community’s top policy priorities for 2025. The day of advocating in the halls of Congress further ensured celiac disease patient needs are being heard on Capitol Hill.
The DDNC Policy Forum is a strategic gathering of patients, caregivers, healthcare providers, and industry leaders united by a common cause:. Attendees heard compelling patient stories, engaged with presentations from leading medical societies and patient advocacy organizations, and participated in hands-on advocacy training before heading to Capitol Hill to meet with Congressional offices.
The DDNC, a national advocacy organization composed of the major voluntary and professional societies concerned with digestive diseases and conditions, focuses on improving public policy and increasing public awareness of diseases of the digestive system. In Jackson’s new role as the Executive Committe Member-At-Large, he will continue to champion the needs of the celiac disease community, ensuring that the collective voice of our community is represented in national policy discussions.
We’re grateful to the DDNC for providing this incredible platform to amplify awareness and advance legislative initiatives for celiac disease.
Our work on Capitol Hill continues to expand – and we need your voice. Sharing our stories and raising our collective voices will serve to strengthen efforts to build awareness and fight for resources that will advance diagnosis and treatment options for celiac disease.
Please become a Celiac Disease Foundation Policy Advocate today.
