Celiac Disease Foundation CEO Marilyn Geller will help bring the patient advocate voice to guiding institute’s patient-centered research efforts
August 21, 2018 — Marilyn G. Geller, Chief Executive Officer of the Celiac Disease Foundation has been appointed by the Patient-Centered Outcomes Research Institute (PCORI) as a member of its Advisory Panel on Patient Engagement.
Geller will join other members of the panel in applying her experience and expertise to helping PCORI refine and prioritize the research it funds. She will also ensure that the research PCORI supports centers on the outcomes that matter to patients and other healthcare decision makers. PCORI is an independent, nonprofit organization authorized by Congress to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed healthcare decisions.
Geller was selected on the basis of her experience, expertise and ability to contribute to the panel’s mission. Panel members represent a broad range of healthcare stakeholder groups and perspectives, including patients, family caregivers, clinicians, drug and device makers and researchers, among others.
Geller’s appointment to PCORI’s Advisory Panel on Patient Engagement further advances the Celiac Disease Foundation’s mission to bring an end to the suffering caused by celiac disease. Geller serves as the Principal Investigator for two of the Foundation’s most important initiatives, the iCureCeliac® patient registry and the Patient Advocate Program, both funded in part by PCORI grants. Though there are still no FDA-approved drugs or treatments, since the inception of these initiatives there has been an explosion of celiac disease drugs in the development pipeline, including a handful moving through the clinical trial process.
More information about the Advisory Panel on Patient Engagement including its scope of work and a list of all members, is available on the PCORI website: http://bit.ly/1thgoss.
Marilyn G. Geller, CEO of the Celiac Disease Foundation