If you are a parent, you know how challenging the entire back-to-school process can be. Now, imagine that your child has celiac disease or non-celiac wheat sensitivity (NCWS). Currently, parents are confronting the reality of sending their gluten-free children back to school, and I know from experience just how intimidating and frustrating it can be. Our first…
Continue ReadingTo cure celiac disease we must fundamentally shift how celiac disease research is conceptualized and conducted. Why? Because the current research paradigm for celiac disease, one that has existed for four decades, has not delivered a cure. Not only has it not delivered a cure, celiac disease research has produced only a single approved treatment for the disease – the gluten-free diet.
Continue ReadingLast month, the Celiac Disease Foundation had the privilege of sponsoring the 2024 International Celiac Disease Symposium in Sheffield, UK. As the first patient advocate invited to chair and present on a scientific panel, CEO Marilyn Geller co-chaired the End Points in Clinical Trials session with Dr. Francisco Leon, CEO...