In May 2018, Lenna was diagnosed with celiac disease. Lenna is a very rare case, as celiac disease is usually diagnosed in children that are 4 to 6 years of age, and she was only 21 months.
Her parents first noticed that Lenna started to become very irritable. She also had no interest in doing much of anything and her energy was completely gone. In April 2018, Lenna started to vomit. Her vomiting progressively got worse to where she was vomiting every day. After an x-ray, ultrasound, CAT scan and blood work, she was admitted to the hospital, where she finally receive the diagnosis of celiac disease. Lenna was only days away from small intestinal failure, and it will take up to a year for her small intestine to fully recover.
Within 48 hours of being on a gluten-free diet, Lenna returned to being a fun, smiling, energetic girl and is currently doing great.
Lenna’s parents hosted a 5K in September 2018 to raise awareness and funds for celiac disease. They raised over $1,500, which directly funds research, education, and advocacy, so that those living with celiac disease, like Lenna, can have a better quality of life and one day, a cure.