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On behalf of our patient community, CDF has either directly invested or fought to secure investments in diagnostics, research, and treatment for celiac disease. We have always known that this was a serious disease with broad and often devastating impacts if left undiagnosed and/or untreated. Our 25 years of hard work continues to yield returns. This is from a NY Times article published on April 29, 2015, "Pharmaceutical companies are racing to develop the first drugs for celiac disease, which researchers say is much more common than previously thought."

On May 11, 2015, the Food and Drug Administration (FDA) will conduct a public meeting on Functional GI Disorders Patient-Focused Drug Development. Celiac Disease Foundation was requested by the FDA to provide commentary about the impact of celiac disease on patients’ daily lives, the types of treatment benefit that matter most to patients, and patients’ perspectives on the adequacy of the available therapies.

Considering the rising number of cases of celiac disease, and its extremely detrimental effects on childhood development, leading to malabsorption and failure to thrive, it is becoming more necessary to find a means to properly diagnose young children.

Newly diagnosed patients with celiac disease were found to be at risk of metabolic syndrome and hepatic steatosis upon adopting a gluten-free diet. An in-depth nutritional assessment is recommended at diagnosis and during follow-up.

CDF CEO, Marilyn Geller, will present the celiac patient voice at the May 11 FDA Patient-Focused Drug Development meeting. Have your voice be heard. Complete the CDF Celiac PFDD Survey now.

Celiac Disease Foundation (CDF) – the nation’s leading disease advocacy organization for celiac disease - has received a prestigious Service Grant from The Taproot Foundation, valued at $45,000, to produce its annual report, in celebration of the Foundation’s 25th anniversary.

Celiac Disease Foundation Chief Executive Officer, Marilyn Geller, attended The State of Autoimmune Disease: A National Summit at the National Press Club in Washington, D.C. The Summit explored the current trends in diagnosis, treatment, and therapies, presented by experts in research, environment, advocacy, and patient issues.

New drugs on the research horizon could spare people with celiac the pain of accidentally eating pizza or pasta. Even with the best intentions, living gluten-free is much easier said than done. It was almost impossible to tell which packaged “gluten-free” foods lived up to their claims until late last year when the U.S. Food and Drug Administration (FDA) began enforcing gluten-free labeling guidelines. And it's hard to guarantee you won’t accidentally consume gluten at a restaurant or on an occasion, such as a well-meaning relative’s dinner party.

The Kansas Wheat Commission is spending $200,000 to identify everything in wheat’s DNA sequences that can trigger a reaction in people suffering from celiac disease, an autoimmune disorder in which eating even tiny amounts of gluten can damage the small intestine.

On March 30-31st, 2015, Celiac Disease Foundation Chief Executive Officer, Marilyn G. Geller, attended the FDA Public Workshop on Gastroenterology Regulatory Endpoints and the Advancement of Therapeutics (GREAT3) near Washington,…