Mission and Purpose
Accelerating diagnosis, treatments, and a cure for celiac disease and non-celiac gluten/wheat sensitivity through research, education, and advocacy.
Since its founding in 1990, Celiac Disease Foundation has funded and executed national initiatives in three principal areas to bring an end to the suffering caused by celiac disease: medical research, patient and healthcare provider education, and public policy advocacy. Mission and Purpose
- Collaborate with physicians, dietitians, mental health professionals, researchers, and industry, as well as retail manufacturers, medical societies, associations, and colleges, to expand research output and to better understand, and ultimately cure, celiac disease.
- Fund researchers at academic medical research centers nationwide to advance knowledge of the causes, progression, and consequences of celiac disease through partnership with the North American Society for the Study of Celiac Disease (NASSCD).
- Market and maintain iCureCeliac®, the largest and ever-growing celiac disease patient registry, supporting the search for outcome-driven treatments and a cure by facilitating patient-centered research.
- Recruit patients through iCureCeliac® to participate in clinical trials, studies, and focus groups to accelerate the development of celiac disease therapeutic treatments and better diagnostic tools.
- Drive participation in clinical trials to further the development of drugs and treatments through the CDF Clinical Trial Finder.
- Develop and distribute innovative digital tools to healthcare professionals, patients, and family members through initiatives such as the NASPGHAN Clinical Guide for Pediatric Celiac Disease, the Symptoms Checklist, and the Gluten-Free Marketplace iOS and Android.
- Expand, create, and fund educational programming and resources for healthcare providers through partnerships including the USC Keck School of Medicine Celiac Disease Training Program, Children’s National Psychological Health & Celiac Disease Training Program, and the Anthem of California Clinical Practice Guidelines for Celiac Disease.
- Collaborate with national partners and government agencies to translate research findings into accessible and usable information for healthcare professionals, celiac disease patients, and their caregivers.
- Host the annual National Conference & Gluten-Free EXPO, where more than 3,500 attendees can receive the latest information on celiac disease, the gluten-free diet, and therapies in the pipeline, as well as sample the latest gluten-free products from over 100 companies.
- Recruit and train a national network of Celiac Disease Patient Advocates to engage as active partners in the research process and to speak on behalf of the three million Americans suffering from celiac disease to the researcher and public policy communities.
- Educate policymakers about the critical unmet needs of people with celiac disease.
- Collaborate with federal and state policymakers to establish and expand programs for people with celiac disease.
- Broaden and strengthen the outreach of CDF’s grassroots advocacy network to secure urgently needed funding for outcomes-driven research and education programs.
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