Privacy Policy & Terms of Use

Personal contact information we collect and what we do with it

When you are making a donation, purchasing a product, submitting an inquiry, utilizing our online tools, completing surveys or subscribing to our eCommunications, the Foundation asks you for personal contact information such as your name, mailing address, phone number and email address. We may use this contact information to provide you with a receipt or financial report; to contact you to clarify or obtain information about an order you placed or a donation you made, to respond to an inquiry, to provide you with requested information or documentation, or to send you additional information about the Foundation or opportunities we think may be of interest to you.

If you make a donation, we may contact you from time to time to thank you for your gift, to offer you an opportunity to volunteer or attend an event or to make another gift. We will always give you the opportunity to opt-out of future communications from us.

Personal contact information may also be shared with certain vendors, i.e., reputable companies we use for services such as fulfilling donation gifts, shipping Foundation products or sending Foundation mail, or providing technology, services, data analysis, research, advertising and marketing assistance and/or content for the operation and maintenance of the Foundation Web Sites. This includes companies on whose behalf the Foundation collects your personal contact and health information when you sign up to participate in a clinical trial, research study, or focus group. We have confidentiality agreements in place with all such companies to protect your privacy.

The Foundation discloses personal information to third parties in aggregate form, that is, in a manner that cannot be traced back to you.  For example, symptoms assessment information may be shared with third parties to advance celiac-related research conducted alone or in collaboration with other organizations or individuals, or the Foundation might tell a sponsor how many males between 20 and 30 years in age have visited the Site over a period of time. In these cases, information is only provided after personally identifiable information such as name, address, telephone number, or email address has been removed.

We want to be very clear: We will not obtain personally identifying information about you when you visit our site, unless you choose to provide such information to us. Providing such information is strictly voluntary. Except and to the extent that the Health Insurance Portability and Accountability Act (“HIPAA“) Privacy Rule applies to any health-related information you provide to the Foundation (in which case such HIPAA Privacy Rule governs), the privacy laws of the State of California will govern. We will retain your personal data for a reasonable period of time as long as the purpose exists for which the personal data have been collected or longer if required by applicable law.

In the event of a corporate change in control resulting from, for example, a sale to, or merger with, another entity, the Foundation reserves the right to transfer your Personal Information to the new party in control or the party acquiring assets. In the event of such a change, your Personal Information will continue to be treated in accordance with this Privacy Policy unless any changes to the Privacy Policy are made in accordance with the section below that discusses “Changes to This Privacy Policy.”

Personal billing information we collect and what we do with it

In addition to personal contact information, we ask for billing information, such as your billing address and credit card number, when you make a donation or purchase a product. We use secure servers to gather and process your billing information. These secure servers are hosted by our agent, Salsalabs, which is bound by our site policies. Your billing information is not shared with any other organizations, and your credit card number is not retained once your transaction has been authorized and processed.

Other contact information we collect and what we do with it

In some instances, we ask for contact information for people other than yourself including, for example, email addresses of friends to whom you send e-cards or a copy of one of our Web pages, or the mailing address of someone you wish us to notify of a donation you have made. The information we collect is used to send the donation notification or information you requested and/or to inform the recipient of the opportunity to subscribe to receive Foundation updates and opportunities to get involved. Such contact information is not shared with any outside parties.

How to view or change your information

If you wish to opt out of future eCommunications from the Foundation, you may contact us at the address and email address below. Also, with the exception of credit card numbers, which are not retained, you can view and request changes to all the information you have given us, including any mailing lists you may be on, by contacting us.

Celiac Disease Foundation
Attention: Donor Relations
5850 Canoga Avenue, 4th Floor
Woodland Hills, CA 91367
E-mail address: [email protected]

In addition, if you have subscribed to Foundation eCommunications, you can unsubscribe by clicking on the Manage Subscriptions link featured at the end of the communication.

Normal browsing

The Foundation does not collect any personally identifying information from you when you visit our website unless you choose to provide such information to us.

You can browse the Foundation website without telling us who you are or revealing any information about yourself. The information we gather during normal browsing comes from two sources: (1) standard server logs collect information such as the IP (Internet Protocol) address, domain name, browser type, operating system and information like the site that referred you to us, the files you downloaded, the pages you visited and the dates/times of those visits; and (2) if you have come into the website from one of our newsletters or from a site that has requested a link, we will ask your browser to accept a “cookie” (defined below) that carries a general marketing source code with you as you browse through the website, in order to help us match referring sites to donations made. This cookie does not capture or hold any personally identifying information about you, and is deleted when you end your session by leaving our website or closing your browser.

Cookies

When you visit our website, we might store some information on your computer in the form of a “cookie” (i.e., a small piece of data that stores information on your browser in your computer’s hard drive) or similar file. We use conversion tracking cookies as part of campaigns in order to analyze trends, gather broad demographic information and monitor website traffic patterns that can help us further develop and improve the design and functionality of our site. Similarly, we also use cookies for “retargeting” in our Internet advertising campaigns so that third-party vendors, including Google, can show you advertising about the Foundation as you browse the Internet. Retargeting is a marketing tool that identifies you as a previous visitor to the Foundation website and targets you for specific outreach messages, encouraging you to revisit our website or consider donating. The cookies will only be used to obtain non-personal information (you will be anonymous). If you prefer, you can usually set your browser to refuse cookies, or to notify you when you receive a new cookie. You can also opt out of receiving cookies on the Foundation website for Google advertising by visiting the Google advertising opt-out page

(http://www.google.com/privacy/ads/#toc-edit).

Links to other sites

This website contains links to other sites, including ones that may gather personal contact information. The Foundation is not responsible for the privacy practices or content of such websites. However, any personal information obtained by us through other sites is treated as if it was gathered on our site and our privacy policy applies.

Children

We are committed to protecting the privacy of children. You should be aware that this Site is not intended or designed to attract children under the age of 13. We do not collect personally identifiable information from any person we actually know is a child under the age of 13, unless authorized by a parent or guardian.

Privacy Rights Under the EU General Data Protection Regulation (GDPR)

We are not marketing any of our services to individuals in the EU/EEA. The Foundation’s servers are located in the United States. Residents in the EEA who use our services have certain rights regarding your personal information, as described below, which may be subject to the European data privacy laws, such as the GDPR:

• you have the right to access your personal data and to ensure your personal information is accurate;
• you have the right to withdraw your consent at any time for personal information that is processed on your consent (the withdrawal shall not affect the lawfulness of processing based on your consent before its withdrawal);
• you may object to processing of your personal information, including for any direct marketing purposes;
• you have the right to request any correction of your personal data or that we delete your personal information;
• you have the right to request that we restrict the processing of your personal information (this may, however, compromise our ability to provide you with our goods and/or services);
• you also have the right to transfer your personal information to another service provider, where this information is processed on consent, and following your written request to us, we will provide you with your relevant personal information in a machine-readable format to transfer to another service provider.

To exercise these rights, please contact our Data Privacy Officer at: [email protected] or 818.716.1513, x102. If you wish to raise a complaint on how we have handled your personal information, you can contact our Data Privacy Officer who will investigate the matter and respond to you promptly. If you are not satisfied with our response, you can complain to any competent data privacy authority in your country of residence.

Change to this policy

Our Privacy Policy is subject to change from time to time. Any changes to this Privacy Policy will be posted on this Web page, and we will mark the link to our updated Privacy Policy on the home page of this website to note the date of any changes so that you will always know what information we collect, how we use it and what choices you have.

Thank you for taking the time to review our Privacy Policy.  If you have any questions about these policies, or your dealings with this website, you can contact:

Celiac Disease Foundation
5850 Canoga Avenue, 4th Floor
Woodland Hills, CA 91367
818.716.1513

Or you may fill out our Contact form

By viewing and/or using this website, you are agreeing to all of the terms and conditions explained below.

1. General.  This World Wide Web site with its home page in the domains “celiac.org” and “celiac.salsalabs.org” (the “Site”) is a complimentary information service offered by Celiac Disease Foundation (“the Foundation”) at no charge to you as a user of the World Wide Web, with the express condition that you agree to be bound by the terms and conditions set forth in this User Agreement. The Foundation reserves the right to change these Terms and Conditions any time, and you must consult the most recent version of this User Agreement and Terms and Conditions (not an older cached version) each time you view the Site. Do not use the Site if you do not agree to all of the following terms and conditions.
2. Intellectual Property/Hyperlinks.  You agree to be bound by the terms and conditions set forth under the Service Marks, Copyright and Hyperlinks sections of this User Agreement and Terms and Conditions.
3. Representations and Warranties.  You acknowledge that the information on the Site is provided “as is” for general information only. The Foundation makes no representations or warranties of any kind regarding this Site, including but not limited to any warranties of accuracy, completeness, currency, reliability, merchantability or fitness for a particular purpose, or any warranty that these pages, or the server that makes them available, are free of viruses or other harmful elements, and all such warranties are expressly disclaimed.
4. Indemnification.  You agree that you will hold harmless the Foundation and its officers, directors and employees from all claims arising out of or related to your access or use of, or your inability to access or use, this Site or the information contained in this Site or other websites to which it is linked, including but not limited to claims that you have found something you have heard, viewed or downloaded from this Site or another website to which it is linked to be obscene, offensive, defamatory, or infringing upon your intellectual property rights or the intellectual property rights of a third party. In no event will the Foundation or the contributors of information to this Site be liable to you or anyone else for any decision made or action taken by you in reliance on such information or for any consequential, special or similar damages, even if advised of the possibility of such damages.
5. Opinions/Recommendations.  You acknowledge that opinions and recommendations contained in this Site are not necessarily those of the Foundation or endorsed by the Foundation.
6. Linked Sites/Third-Party Content.  These Terms and Conditions apply only to this Site.  The Foundation may provide links on the Site to other websites which are not under the control of the Foundation. These links are provided for convenience of reference only and are not intended as an endorsement by the Foundation of the organization or individual operating the Site or a warranty of any type regarding the Site or the information on the Site.  Under no circumstances will the Foundation be held liable, directly or indirectly, or any loss or damage that is caused or alleged to have been caused to you in connection with your use of, reliance on, or any content, goods or services available on any other website to which this Site links.  You should direct any concerns to that website’s administrator.
7. Governing Law and Jurisdiction.  This Site (excluding linked sites) is controlled and operated by the Foundation, which is headquartered in the State of California, United States of America. It can be accessed from all 50 states, as well as United States territories and other countries around the world. By accessing this Site you agree that any action at law or equity arising or in any way relating to this Site, shall be filed only under the statutes and laws of the State of California, without regard to conflicts of law principles thereof. You also agree and hereby submit to the exclusive personal jurisdiction and venue of the Superior Court of the State of California in and for the County of Los Angeles, and the United States District Court for California with respect to such matters. CDF makes no representation that materials on the Site are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this Site from other locations do so of their own initiative and are responsible for compliance with local laws.
8. As between you and the Celiac Disease Foundation, all right, title and interest in and to the Site and any and all materials and information on/in the Site, including without limitation the Healthcare Provider Directory design, text and images together with all intellectual property rights embodied therein (collectively, the “Site Materials”), are the property of the Foundation. The Site and Site Materials are protected by law, including but not limited to U.S. and international copyright law, trademark law, trade secret law, as well as other state, federal, and international laws, regulations and treaties (collectively, “IP Laws“). The Foundation does not claim any rights in unaltered government data.
9. You agree not to engage in any activity that would constitute copyright infringement with respect to the Site Materials, including without limitation the Healthcare Provider Directory, Symptoms and Conditions Checklist and their respective methodology. You acknowledge that the Foundation selected, compiled, arranged and adjusted data and information regarding Healthcare Providers and Symptoms and Conditions Checklist are original compilations (as defined by the 1976 Copyright Act, 17 U.S.C. § 101) containing material wholly and exclusively original to the Foundation. You may not reproduce, create derivative works of, distribute, publicly perform or publicly display the Site Materials or any portion thereof without the Foundation’s prior written consent. By way of illustration but not limitation, except as expressly permitted in this User Agreement or otherwise permitted by us in writing, you may not, directly or indirectly, transmit, download, upload, post, sell, rent, license, transfer, disclose, mirror, frame, reverse engineer, decompile, disassemble, or use any aspect of this Site or any Site Materials (including, but not limited to, any Ratings), in whole or in part, in any form or by any means. Also by way of illustration but not limitation, except as expressly permitted in this User Agreement or otherwise permitted by us in writing, you may not, directly or indirectly, use any of the Healthcare Provider Directory listings for any purposes other than your personal, non-commercial evaluation of Healthcare Providers, to compile mailing lists or other lists of Healthcare Providers for commercial purposes, to establish independent data files or compendiums of statistical information or in violation of any applicable laws or regulations. Additionally, you may not use any metatags or any other “hidden text” utilizing the name “Celiac Disease Foundation” or “CDF” without our prior written permission.
10. The contents of the Site, such as text, graphics, images, information, and other material contained on the Site (“Content”) are for informational purposes only. The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on the Site. The Foundation does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned on the Site. Reliance on any information provided by the Foundation, Foundation employees or volunteers, others appearing on the Site at the invitation of the Foundation, or other visitors to the Site is solely at your own risk.
11. The Celiac Disease Foundation is not a referral service and does not recommend or endorse any particular healthcare provider or practitioner. Rather, the Foundation is only an intermediary that provides selected information about Healthcare Providers. We do not offer advice regarding the quality or suitability of any particular Healthcare Provider for specific treatments or health conditions, and no information on this Site should be construed as health or medical advice. The selected Healthcare Provider information consists of information obtained through primary source verification of state medical license or certification, that submitted by the Healthcare Provider, or other publically available information.  This information is not to be used as a recommendation to utilize the services of any specific healthcare provider or practitioner. You should obtain any additional information necessary to make an informed decision prior to utilizing any specific Healthcare Provider.
12. You assume all responsibility in connection with choosing any healthcare provider or practitioner, whether or not you obtained information about such Healthcare Provider on or through this Site. The Foundation and its licensors, suppliers and affiliates (collectively, the “Affiliates“), and the directors, officers, agents, and representatives of each, assume no (and hereby disclaims all) responsibility or liability of any kind, for any advice, treatment or other services rendered by any healthcare provider or practitioner, or for any malpractice claims and other claims that may arise directly or indirectly from any such advice, treatment or other services.
13. The use of the Site by any entity or individual to verify the credentials of Healthcare Providers is prohibited.  The database of Healthcare Provider information which drives the Site does not contain sufficient information with which to verify Healthcare Provider credentials under the standards of the Joint Commission on Accreditation of Healthcare Organizations (JCAHO), National Committee for Quality Assurance (NCQA) of the Utilization Review Accreditation Committee (URAC).
14. All uses of the Celiac Disease Foundation’s federally registered and common law trademarks, service marks and trade names, including but not limited to those listed below, must be approved in writing by the Foundation. You further acknowledge that other names and logos contained in this Site or in the Site Materials are trademarks and service marks of third parties and may not be used without the permission of the trademark or service mark owner.
    1. Celiac Disease Foundation
    2. CDF
    3. celiacdotorg
    4. CDF Team Gluten-Free
    5. Team Gluten-Free
    6. Consider Celiac. Request the Test.
    7. Are You the One?
    8. Is Your Child the One?
    9. Is Your Patient the One?
    10. The Face of Celiac Disease
    11. iCureCeliac
    12. NASPGHAN Clinical Guide for Pediatric Celiac Disease
    13. CDF Clinical Trial Finder
    14. Eat! Gluten-Free
    15. Gluten-Free Marketplace
    16. iQualifyCeliac
15. The works of authorship contained in this Site, including but not limited to the Site Materials, are owned or licensed by the Foundation and may not be copied, reproduced, transmitted, displayed, performed, distributed, rented, sublicensed, altered, stored by subsequent use, or otherwise used in whole or in part in any manner without our prior written consent.  Unless permitted otherwise in writing, you may only access the Materials located within the Site for your personal use.  This means you may download copies of Materials for personal, noncommercial use only, so long as you neither change nor delete any author attribution, trademark, legend or copyright notice.  When you download Materials, you do not obtain any ownership rights to the Materials.
16. You may provide a hypertext link to the Celiac Disease Foundation Site on another website, provided that:
    1. the link must be an active, text-only link or approved banner or artwork provided by the Foundation  (you may NOT use our logo without prior written approval) clearly marked “Celiac Disease Foundation”;
    2. the link, when activated by a user, must display this Site full-screen and not within a “frame” on the linked website;
    3. the appearance, position and other aspects of the link may not be such as to disparage the Foundation or its services, damage or dilute the goodwill associated with the Celiac Disease Foundation name and service marks, or to create the false appearance that an entity other than the Foundation is associated with, benefiting, or sponsored by the Foundation;
    4. the link may not be associated with the sale of any products or services, or the promotion of any lottery, raffle, sweepstakes or other games of chance benefiting the Foundation;
    5. the link will not appear on pages including content which the Foundation, in its sole discretion, finds to be objectionable, or which includes obscene, pornographic, violent, intolerant, tasteless, denigrating or sexually-oriented content or materials; and
    6. the Foundation reserves the right to revoke its consent to the link at any time in its sole discretion by amending these Terms and Conditions. You acknowledge and agree that you are responsible for keeping up with any such changes.
    7. All other hypertext links to this Site must be approved in writing by the Foundation. To inquire, please complete our Contact Form.
    8. Use of a hypertext link does not indicate or create any endorsement, approval, sponsorship or affiliation of or with your website by the Foundation. This permission to link is provided without warranties of any kind, express or implied, including without limitation, warranties of title of non-infringement.

Thank you for taking the time to review our User Agreement and Terms and Conditions.  If you have any questions about these policies, or your dealings with this Site, you can contact:

Celiac Disease Foundation
5850 Canoga Avenue, 4th Floor
Woodland Hills, CA 91367
818.716.1513

Or you may fill out our Contact Form.