Why Join?
Three reasons to join iCureCeliac®
1. As a celiac disease patient or caregiver, you know the disease better than anyone. By sharing your or your loved one’s medical history and experiences living with celiac disease, you directly help researchers find treatments and a cure.
2. You have the opportunity to make your voice heard. By sharing your thoughts and opinions on potential treatments for celiac disease, you are helping to inform what patients want to see in future treatments for celiac disease. The valuable information we have in iCureCeliac® links together the patient community and the research and medical communities.
3. iCureCeliac® is our best path to a cure for celiac disease. Your medical data is incredibly valuable. By aggregating large amounts of data from thousands of patients living with celiac disease, researchers are able to analyze disease patterns and help answer questions that will ultimately lead to a cure.
Why is this important?
Celiac disease affects an estimated 1 in 100 people worldwide, but the majority of those individuals are either undiagnosed or misdiagnosed. This is alarming given that studies show the later the age of diagnosis, the greater the chance of developing another autoimmune disorder, like type 1 diabetes, thyroid disease, and multiple sclerosis (MS).
Furthermore, undiagnosed patients or those who do not maintain a strict gluten-free diet can develop additional serious health conditions including heart disease, anemia, osteoporosis, infertility, epilepsy, migraines, and in some cases, intestinal cancer.
How iCureCeliac® Works
Registration is easy
Registration is quick and easy and is so important. Researchers need to know more about celiac disease and how your health and life are affected. Each person or parent/guardian of a child with celiac disease that registers can have a positive impact on thousands as we journey together toward a cure.
Your data is secure
Ensuring that your medical data remains secure is our utmost priority. We protect your privacy with cutting-edge technology. You control who you share information with and for what purpose. You can allow access to all of your data or only specified portions.
Share your health data
We believe that patients are experts in their own disease. You live it. You know it better than anyone else. Now, you can share your medical information and experience living with celiac disease and help put researchers on the road to finding a cure.
It really makes a difference
Your medical data is incredibly valuable. By aggregating large amounts of data from thousands of patients living with celiac disease, we are able to analyze disease patterns and help answer questions most important to patients. Your data can shape the types of research studies to be conducted that are most beneficial to you—the patient.