We are continually monitoring and responding to your questions. These FAQs will be updated as more is known about COVID-19. You may also reach us by email and 818.716.1513, x101 with your concerns.

Frequently Asked Questions About COVID-19

What is coronavirus COVID-19, how does it spread, and who is at risk for severe illness?

Coronaviruses are a large family of viruses which may cause illness in animals or humans.  In humans, several coronaviruses are known to cause respiratory infections ranging from the common cold to more severe diseases such as Middle East Respiratory Syndrome (MERS) and Severe Acute Respiratory Syndrome (SARS). The most recently discovered coronavirus causes coronavirus disease COVID-19.

The COVID-19 virus is thought to spread mainly from person-to-person:

  • Between people who are in close contact with one another (within about 6 feet)
  • Through respiratory droplets produced when an infected person coughs, sneezes or talks
  • These droplets can land in the mouths or noses of people who are nearby or possibly be inhaled into the lungs
  • These droplets can land on objects and surfaces around the infected person and be transmitted by people touching them and then touching their eyes, nose or mouth – data from surface survival studies indicate that the risk of surface transmission is minor after 3 days. Surfaces may be cleaned with a simple disinfectant to kill the virus.
  • Anyone infected with COVID-19 can spread it, even if they do NOT have symptoms.

CDC’s most recent list of those at higher risk for severe illness from COVID-19 currently includes:

  • People 65 years or older
  • People who live in a nursing home or long-term care facility
  • People of all ages with underlying medical conditions, especially if they are not well controlled
    • Cancer
    • Chronic kidney disease
    • Chronic lung diseases, including COPD (chronic obstructive pulmonary disease), asthma (moderate-to-severe), interstitial lung disease, cystic fibrosis, and pulmonary hypertension
    • Dementia or other neurological conditions
    • Diabetes (type 1 or type 2)
    • Down syndrome
    • Heart conditions (such as heart failure, coronary artery disease, cardiomyopathies or hypertension)
    • HIV infection
    • Immunocompromised state (weakened immune system, which can be caused by genetic defects that can be inherited, or prolonged use of corticosteroids or other immune weakening medications)
    • Liver disease
    • Overweight (body mass index [BMI] between 25 and 30) and obesity (BMI of 30 or higher)
    • Pregnancy
    • Sickle cell disease or thalassemia
    • Smoking, current or former
    • Solid organ or blood stem cell transplant
    • Stroke or cerebrovascular disease (affects blood flow to the brain)
    • Substance use disorders

As someone with celiac disease am I at increased risk of severe COVID-19 illness and how can I protect myself?

A recent international study conducted by the Colombia University Celiac Disease Center and Farncombe Family Digestive Health Research Institute at McMaster University Medical Center found those with celiac disease are not at increased risk of COVID-19. Out of 18,022 patients that completed the study survey, 10,737 had self-reported celiac disease. Researchers found that participants with celiac disease were no more likely to have a positive COVID-19 test than participants without celiac disease.

The Celiac Disease Foundation Medical Advisory Board states that celiac disease patients, in general, are not considered to be immunocompromised. A small proportion of celiac disease patients with severe malnutrition and weight loss, the rare complication of Type 2 refractory celiac disease, on immunosuppressive medications or with other serious illnesses may be at increased risk of severe illness from COVID-19 and should consult with their physicians.

It is important to know that celiac disease is a chronic medical condition in which there appears to be an increased risk of infections with pneumococcal bacteria that cause pneumonia and herpes zoster (causing shingles). In addition, there appears to be increased risk of worse outcomes with influenza infections and an inadequate response to vaccination with hepatitis B. Still, these risks, while measureable in several studies, are small in magnitude. It is reasonable to consider that those with celiac disease, especially older individuals, may be at a small increased risk of worse outcomes with infections with this new virus.

Get Vaccinated for Pneumococcal Infection and Flu 

To protect against infection, the Celiac Disease Foundation Medical Advisory Board strongly advises people with celiac disease, aged 15-64 years, who have not received the scheduled pneumococcal vaccination series as a child, to consider vaccination. An annual flu vaccine is also recommended. This applies to all people with celiac disease, whether or not they are on a gluten-free diet.

How to Protect Yourself and Others

Children and adults with celiac disease, like everyone in our communities, are at risk for COVID-19 infection and should exercise careful infection control practices:

  • Social distancing – stay home as much as possible, avoid social gatherings of more than 10 people, and stay at least 6 feet away from others when in public
  • Frequent hand washing – wash hands with soap and hot water for at least 20 seconds or with hand sanitizer that contains at least 60% alcohol, especially after being in a public place or after blowing your nose, coughing or sneezing
  • Cleaning and disinfecting frequently touched surfaces daily – including tables, doorknobs, light switches, countertops, handles, desks, phones, keyboards, toilets, faucets, and sinks
  • Avoiding touching of eyes, nose and mouth with unwashed hands
  • Covering of mouth and nose with a cloth face cover when in public for anyone over the age of 2
  • Ask your healthcare provider about the COVID-19 vaccine and if it may be right for you

What are the symptoms of COVID-19?

People with COVID-19 have a wide range of symptoms, ranging from mild symptoms to severe illness. People with these symptoms may have COVID-19: 

  • Fever or chills
  • Cough
  • Shortness of breath or difficulty breathing
  • Fatigue
  • Muscle or body aches
  • Headache
  • New loss of taste or smell
  • Sore throat
  • Congestion or runny nose
  • Nausea or vomiting

Some people become infected but don’t develop any symptoms and don’t feel unwell.

When to Seek Medical Attention 

If you develop emergency warning signs for COVID-19 get medical attention immediately. Emergency warning signs include*:

  • Trouble breathing
  • Persistent pain or pressure in the chest
  • New confusion
  • Inability to wake or stay awake
  • Pale, gray, or blue-colored skin, lips, or nail beds, depending on skin tone

*This list is not all inclusive. Please consult your medical provider for any other symptoms that are severe or concerning.

Are COVID-19 symptoms the same in children?

Most children with COVID-19 have mild symptoms or have no symptoms at all. However, some children can get severely ill from COVID-19. Symptoms of COVID-19 are similar in adults and children and can look like symptoms of other common illnesses such as colds, strep throat, or allergies. The most common symptoms of COVID-19 in children are fever and cough, but children may have any of these signs or symptoms of COVID-19:

  • Fever or chills
  • Cough
  • Nasal congestion or runny nose
  • New loss of taste or smell
  • Sore throat
  • Shortness of breath or difficulty breathing
  • Diarrhea
  • Nausea or vomiting
  • Stomachache
  • Tiredness
  • Headache
  • Muscle or body aches
  • Poor appetite or poor feeding, especially in babies under 1 year old

Babies under 1 year old might be more likely to have severe illness from COVID-19. Other children, regardless of age, with the following underlying medical conditions might also be at increased risk of severe illness compared to other children*:

  • Asthma or chronic lung disease
  • Diabetes
  • Genetic, neurologic, or metabolic conditions
  • Sickle cell disease
  • Heart disease since birth
  • Immunosuppression (weakened immune system due to certain medical conditions or being on medications that weaken the immune system)
  • Medical complexity (children with multiple chronic conditions that affect many arts of the body, or are dependent on technology and other significant supports for daily life)
  • Obesity

*This list does not include every underlying condition that might increase the risk for severe illness in children. As more information becomes available, the CDC will continue to update and share information about risk for severe illness among children.

Where can I get vaccine information, including ingredients?

The CDC has a comprehensive Frequently Asked Questions page for COVID-19 vaccine information that can be found here.

The FDA maintains an up-to-date website for COVID-19 vaccine information that can be found here.

Society for the Study of Celiac Disease Statement on COVID-19 Vaccination

With the recent news that the Food and Drug Administration has granted Emergency Use Authorization for a vaccine against SARS-CoV-2, the virus that causes Covid-19, patients with celiac disease are asking for guidance about the advisability of this and other Covid-19 vaccines in the context of celiac disease, an immune-mediated condition. As scientists and clinicians who care for people with celiac disease, we urge people with celiac disease to receive a Covid-19 vaccine that has met government regulatory approval. This includes agents comprised of RNA (a vaccine technology that has been in development and has undergone safety testing for years) and peptide (protein) vaccines.

During the onset of the Covid-19 pandemic, there was initial concern that people with celiac disease might be at a slightly increased risk of severe outcomes from SARS-CoV-2 infection, given prior studies suggesting risks related to pneumonia and viral infections. Studies thus far, including the international registry www.covidceliac.org, have indicated no increased risk of severe outcomes. Even though the risk among people with celiac disease is comparable to that of the general population, we have seen that Covid-19 can nevertheless have devastating effects, and we share in the consensus belief by the public health community that mass vaccination is crucial. As the safety and efficacy data on Covid vaccination has emerged, there is no evidence to suggest that people with celiac disease would be more prone to an adverse effect of vaccination. Celiac disease is not considered an allergy, and by itself does not prompt additional precaution when proceeding with vaccination. Patients with concerns about vaccination and their particular circumstance should speak with their health care provider. We will undergo Covid-19 vaccination as soon as it is offered to us, and we urge our patients to do so.

Ciarán P. Kelly, MD, President
Benjamin Lebwohl, MD, MS, President-Elect
Alessio Fasano, MD, Secretary
Dawn W. Adams, MD, MS, Treasurer
Elena F. Verdú, MD, PHD, Past President
Sheila Crowe, MD, Councilor
Amy R. DeFelice, MD, Councilor
M. Ines Pinto-Sanchez, MD, MSc, CNSC, Councilor
Ritu Verma, MBChB, Councilor

Why do I need pneumococcal vaccination and what is hyposplenism in celiac disease?

Pneumococcal infection is a common complication of reduced spleen function, known as hyposplenism. About 30% of celiac patients have hyposplenism. Since this is not routinely assessed, not everyone will know if they have reduced spleen function and are at higher risk for developing infections.

The spleen is an organ in the body which plays an important role in the immune system, controls the level of blood cells, and filters the blood to remove old or damaged red blood cells. It also has a specific immune function in helping to protect against a small number of bacterial infections such as pneumonia.

There doesn’t seem to be an increased risk of viral infection if someone has hyposplenism, but there is a small risk of having a “secondary bacterial infection” like pneumonia during or after another infection, like a virus. Because of this potential, the Celiac Disease Foundation Medical Advisory Board recommends that all people with celiac disease  be vaccinated against pneumococcal infection with a booster every five years.

How can I prepare to Stay-At-Home or quarantine during the COVID-19 pandemic?

  • Create a Stay-At-Home and Quarantine plan
  • Stock up on staples and gluten-free foods
    • Finding gluten-free food is a challenge for many due to panic buying. We have coordinated with our sponsors and vendors to assure a steady supply of direct-to-you and in store products at Gluten-Free Resources.
  • Plan your gluten-free meals
    • Whether you are now learning to cook or have been cooking for years, planning for 3 gluten-free meals a day plus snacks can be overwhelming. Browse our Gluten-Free Meal Plans to determine which is the right fit for you.
  • Try new gluten-free recipes
  • Pay attention to your mental health and practice self-care to reduce stress and anxiety
  • Learn how to talk to your children about COVID-19

Is it safe for a person with celiac disease to use hand sanitizer?

The Centers for Disease Control (CDC) recommends the use of alcohol-based hand sanitizers with greater than 60% ethanol or 70% isopropanol to inactivate COVID-19. While gluten cannot be absorbed through the skin, we know there is concern in our community about inadvertently ingesting gluten through transfer to food or by touching your mouth after using hand sanitizer. While the basic active ingredients in hand sanitizer are gluten-free, some may contain gluten-derived products, like wheat germ oil. Though wheat germ oil is highly processed and likely gluten-free, some less processed additives may contain traces of gluten. As with all products that you might ingest, careful label reading is recommended.

To find gluten-free hand sanitizer, please visit our Gluten-Free Resources.

According to the CDC, hand sanitizer should be applied to one palm then rubbed all over the surfaces of both hands until they are dry. If you wipe sanitizer off your hands, it will not be fully effective.

I can't find any gluten-free essentials in my local grocery store. What should I do?

Gluten-Free Foods and Products

We know that finding gluten-free food is a challenge for many due to panic buying. We are working with our sponsors and vendors to assure a steady supply of direct-to-you and in store products.

Please visit our Gluten-Free Resources for our company list and be sure to check back frequently as more are added.

Gluten-Free Meal Plans and Recipes

Whether you are now learning to cook or have been cooking for years, planning for 3 gluten-free meals a day plus snacks can be overwhelming. Our nutritionally-balanced  7-Day, Pediatric, Senior and Diabetic Gluten-Free Meal Plans with simple and delicious recipes can make quarantine a little easier.

Browse our Gluten-Free Meal Plans to determine which is the right fit for you.

Want more delicious gluten-free recipes? Visit Eat! Gluten-Free or download the free app for iPhone or Android.

What should I do if I think I have COVID-19?

If you think you have COVID-19 symptoms or have been exposed to someone who has it:

  • Stay home.
  • Call your healthcare provider and let them know about your symptoms. Tell them that you have or may have COVID-19. This will help them take care of you and keep other people from getting infected or exposed.
  • If you are not sick enough to be hospitalized, you can recover at home. Follow CDC instructions for What to Do if You Are Sick.
  • Though there is currently no approved antiviral treatment for COVID-19, some over-the-counter (OTC) medications may help relieve fever, body aches and nasal congestion.
    • Although rare, some OTC medications can contain traces of gluten. Learn how to effectively evaluate the ingredients in these products.

Look for emergency warning signs* for COVID-19. If someone is showing any of these signs, seek emergency medical care immediately:

  • Trouble breathing
  • Persistent pain or pressure in the chest
  • New confusion
  • Inability to wake or stay awake
  • Pale, gray, or blue-colored skin, lips, or nail beds, depending on skin tone

*This list is not all inclusive. Please consult your medical provider for any other symptoms that are severe or concerning.

Call 911 or call ahead to your local emergency facility: Notify the operator that you are seeking care for someone who has or may have COVID-19.

If you must be hospitalized, reference our Healthcare Facility Guide for important questions to ask to assure that you are able to maintain a gluten-free diet in the hospital.

How do I cope with my stress and anxiety?

For those living with celiac disease, stress and anxiety can be a part of everyday life, and at this time, the COVID-19 pandemic has added an additional layer of concern. Please review our COVID-19 and Mental Health resources.

If you or someone you care about are feeling overwhelmed with emotions like sadness, depression, anxiety, or feel like you want to harm yourself or others:

People with preexisting mental health conditions should continue with their treatment and be aware of new or worsening symptoms. Additional information can be found at the Substance Abuse and Mental Health Services Administration (SAMHSAexternal icon) website.

What is SECURE-Celiac?

SECURE-Celiac is a new international patient registry to study coronavirus COVID-19 in people with celiac disease. The Celiac Disease Foundation has partnered with The Celiac Disease Center at Columbia University to encourage celiac patients diagnosed with COVID-19 to ask their doctor to go to covidceliac.org and report their case.

SECURE-Celiac contains only de-identified data which means no one can link reported data to you. Reporting a case should take your doctor no more than 5 minutes. Only laboratory-confirmed COVID-19 cases should be reported.

With the help of the entire celiac community, we will rapidly be able to define the impact of COVID-19 on patients with celiac disease and how factors such as age, comorbidities, and treatments impact COVID-19 outcomes.

What is the Celiac Disease Foundation doing to help me during this pandemic?

We are committed to providing you with the most up-to-date health information on the COVID-19 outbreak. Steps we’ve taken:

  • Joined with the nation’s disease advocacy organizations in lobbying Congress to make sure that protections for patients with chronic conditions remain in place and that nonprofits are included in federal aid so that we may continue to provide services to you
  • Consulted with our Medical Advisory Board to create the COVID-19 and Celiac Disease Resource Center providing you with evidenced-based information from our world experts in celiac disease and resources to keep you and your family healthy and safe during this pandemic
  • Partnered with Columbia University to support SECURE-Celiac, an international registry of celiac patients diagnosed with COVID-19, to rapidly define the impact of COVID-19 on patients with celiac disease and how factors such as age, comorbidities, and treatments impact COVID-19 outcomes
  • Worked with our nation’s celiac disease doctors and dietitians to offer you an ever-growing list of telehealth services
  • Coordinated with our valued sponsors and vendors to provide you with continued access to gluten-free foods and products
  • Collaborate regularly with our counterpart celiac societies worldwide to exchange best practices and information
  • Continue to work with biopharmaceutical companies on patient recruitment for clinical trials so that there will be adjunct treatments to the gluten-free diet in the future
  • Continue to (virtually) meet with Congressional and NIH members and staff to assure celiac disease research funding dollars for FY2021
  • Continue to offer hotline support through telephone, email and social media

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