Adult & Pediatric Follow-Up Checklists
A diagnosis of celiac disease is just the beginning of your care journey. Ongoing follow-up with knowledgeable healthcare providers is essential to support healing, prevent complications, and ensure long-term health.
To help you stay on track, we’ve created Adult and Pediatric Follow-Up Checklists that you can download and bring to appointments with your physician and dietitian. These checklists outline recommended monitoring, testing, and nutrition guidance to support comprehensive post-diagnosis care.
Why Follow-Up Care Matters
Celiac disease requires lifelong management. Even after starting a strict gluten-free diet, regular medical follow-up is essential to support full healing and long-term health.
Follow-up care helps to:
- Confirm intestinal recovery after diagnosis
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Monitor symptom improvement and address persistent symptoms
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Assess for nutrient deficiencies
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Screen for associated autoimmune conditions
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Evaluate bone health and growth
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Provide ongoing dietary education and support
- Support overall quality of life and mental well-being
Follow-up care also provides an opportunity to ask questions, troubleshoot challenges, and stay informed about evolving research and recommendations in celiac disease management.
Expert-Informed Recommendations
These checklists were developed by the Celiac Disease Foundation’s medical experts to reflect current best practices for post-diagnosis care. They cover the key monitoring, testing, and nutrition steps that help patients and their families achieve optimal outcomes.
Because not all healthcare providers are familiar with the latest celiac disease follow-up guidelines, bringing these checklists to your appointments is like having an expert in the room with you. They guide important conversations, help ensure no aspect of care is overlooked, and make it easier to collaborate with your healthcare team on a personalized plan that meets your needs.
Using these checklists empowers you to take an active role in your care, ask informed questions, and advocate for the testing and support that research shows is critical for long-term health.