On June 10th and 11th 2017, I held a fundraiser for The
Celiac Disease Foundation at the annual New York Club
Soccer League Cup Finals at HBC Soccer Park in Huntington,
NY. My goal was to raise money by selling raffle tickets to
the players and parents who attended the event. They had
the chance of winning some incredible prizes that were
donated to the fundraiser by various restaurants, stores and
Upper 90 Soccer in Hicksville, NY. The money donated by
the attendees is going to help spread awareness of Celiac
Disease and help continue with research as well. With the
support from Craig Pinto, my family members, Upper 90
Soccer, and Milton’s Gluten Free Chips, the fundraiser was a
complete success! Not only did I raise $900, but also I was
able to share my knowledge of celiac disease.
At 12 years old, Maizy Boosin competed on Chopped Junior against three other junior chefs, but Maizy had a unique challenge – she chose to cook everything exclusively gluten-free while given the same basket of ingredients as her competitors. On the show, Maizy shared that she cooks gluten-free because she has celiac disease; she started cooking after her diagnosis at age seven. When Maizy won the competition, she donated a portion of her award to Celiac Disease Foundation (CDF), and plans to continue fundraising for CDF. Maizy’s generous donation to the Foundation will advance research toward treatments and a cure for celiac disease.
Maizy also registered as a Celiac Disease Foundation Student Ambassador, where she is working to raise awareness of celiac disease in her school and local community. The Student Ambassador Program helps children, teens, and young adults become role models for others with celiac disease while fostering a greater understanding in the community and educating their peers.
Maizy’s success story was featured in the April 2017 issue of Gluten-Free Living magazine. Maizy plans to contribute kid-friendly recipes and cooking demos to the CDF website and to share her experiences in dining out with the CDF audience. CDF welcomes Maizy as we look forward to her continued involvement with Celiac Disease Foundation.
Growing up, Skylar Weitz was self-conscious and shy about having celiac disease – she didn’t like feeling different from her peers. Today, at 11 years old, five years after her diagnosis, Skylar is proud to educate people about her disease and about how it affects a patient’s everyday life.
In order to help raise awareness and funds to advance research toward a cure for celiac disease, Skylar began The Skylar Project where she makes and sells beautiful bracelets. Since last fall, Skylar has raised $3,000 for Celiac Disease Foundation which will bring us that much closer to finding a cure. Skylar plans to continue donating her proceeds toward celiac disease research.
Skylar’s commitment to raising awareness of celiac disease and advocating for a cure is encouraging and admirable. Her efforts, together with the many other active members of our community, are helping to improve the quality of life for everyone affected by celiac disease.
My name is Brooke Elmore, I am sixteen, I was diagnosed with celiac in November of 2015, and I became a student ambassador in September of 2016. In my community, I have found that the best way to educate people about celiac disease is by word of mouth. Whenever I go out to eat or I am at an event where there is food, I explain to people what celiac disease is. Most of my school soccer team, who would have not known about it, now understands what living with celiac disease is.
Also, this year I participated in an exchange program with my high school. I took this as an opportunity as an ambassador and educated a lot of French students about what celiac disease was. I was trying to spread the word internationally! I also posted about my disease on my school’s technology portal, to allow kids at my own school to read and learn about what celiac disease is.
Recently, I have started an Instagram and YouTube channel to share my experiences and discoveries within my gluten-free lifestyle! They are both called “Celiactivist” and on both platforms I share things such as my favorite foods, recipes I’ve tried, restaurants that are accommodating, and much more. I hope to grow my audience within the next year to help create a community of celiacs who can support each other in their journey!
I also have plans to do presentations about celiac disease at the middle school in my area. Finally, I am on the food service committee for my district for the next year, with a goal of getting gluten free options in all school cafeterias. I love being a celiac disease Student Ambassador, and I hope I can continue to educate my school and community about a cause that’s so important to me!
As a Celiac Disease Student Ambassador, I have informed my community not only of the severity of celiac disease, but also of research that I have conducted involving a connection between celiac disease and the brain. I have also distributed the brochures to health teachers in my school district. Within the next month, as it is celiac awareness month, I have great aspirations. Some of these include working with the MLB Mets team to sell tickets in which proceeds will go to celiac research, as well as working with Buffalo Wild Wings to earn some money as well.
As a newly diagnosed teen with Celiac Disease, I’m always looking for ways to expand my knowledge and create something that I will be proud of. Then I came across this Student Ambassador gig and I really did not want to miss this chance. I completed my first presentation with my family by my side, where we learned new things, shared some tears because they truly knew this journey that I was on was indeed a difficult one. My next steps as a Student Ambassador will be to organize an event so I can raise funds for this foundation and lastly attend the National Conference this upcoming June!
I am 16 years old and I have been raising awareness for celiac disease since I was diagnosed at 11 years old. My friends never heard of it or knew anything about a gluten free diet. Over the past few years I have raised money for research at the Celiac Disease Center at Columbia University. The attached picture is a presentation I made to my sisters Girl Scout troop.
On this day, I presented the Celiac Disease video to a Family Consumer science class, and presented a muffin lab. This is where I gave a students two muffins, of the same brand. But, one cupcake was gluten free, and one cupcake wasn’t. They had to tell me the difference, and their opinions on the matter.
Mia Golden knew she wanted to make a difference to help cure Celiac disease so she asked her school to pick the CDF for their walk-a-thon fundraiser. Mia and her mom went into every classroom and explained how people with Celiac disease have to be good detectives in order to keep themselves safe and healthy. She raised over $7,000!
As a Celiac Disease Foundation Student Ambassador, I took part in Food Allergy Awareness Week at my school where I was able to talk about celiac disease. There were also many things that happened around the school:
A bulletin board was put up.
A flyer went out to all the parents.
I did a News @ 9 interview that was shown to the whole school.
As the daughter of active TGF member Shira, it comes as no surprise that Ayelet is a natural celiac disease advocate and educator. Ayelet began her classroom presentation with an educational celiac disease video, and then gave a speech. Next, each child got a different box of food and had to determine if it contained gluten or was gluten-free. Classmates then sorted the boxes onto two tables that were labeled “gluten” or “gluten-free”. This game was a fun way to inform her peers!
“Even though Ayelet has been diagnosed with a chronic illness, she shines wherever she goes and touches many with her smile and spirit.”
Vivi presented her Celiac Disease Project to spread awareness and teach her peers about celiac disease. A program at her school, Genius Hour, allows students one class period a week for a semester to work on a project that makes a difference, and she chose celiac disease awareness. She spoke for 7 minutes, classmates and the teacher asked questions, and she was able to answer them all. She even sent them home with informational brochures. Additionally, Vivi had a gluten-free bake sale and baked everything herself! The funds raised from the bake sale went directly to the Foundation to support celiac disease research, education, and advocacy.
In April 2018, Jackson planned and hosted his second annual “Hoops for a Cure Basketball Tournament” in Los Angeles. Jackson knows how to put the fun in fundraising and raised over $7,500 to accelerate research for a cure! He is grateful to all his friends who participated in the tournament and everyone who supported the event. Jackson and his brother, Jordan, created a comic to illustrate the struggles of dining out with celiac disease and the hope for a cure in his lifetime. Celiac Disease Foundation staff were excited to attend the event and are deeply appreciative for his commitment to raising funds and awareness for research.