Patients and caregivers have unique perspectives on the burdens and benefits of various treatment options. As such, their input is invaluable to the drug evaluation process. On April 3, 2018, Celiac Disease Foundation Legislative Analyst, Alana Broe, attended the FDA’s Public Workshop on Keys to Effective Engagement with the Center for Disease Evaluation and Research […]
Accelerating diagnosis, treatments, and a cure for celiac disease and non-celiac gluten sensitivity through research, education, and advocacy.
“I look forward to working together to spotlight celiac disease and gluten-free champions in our community, and to our shared commitment to advance celiac disease research. Gluten-Free Living provides a unique platform to reach the many people following a gluten-free diet who so often feel alone and who struggle to find a supportive community and credible information.”
In a perfect world, every patient with celiac disease would diligently follow a completely gluten-free diet, without a speck of gluten to cause intestinal damage and associated symptoms. Unfortunately, gluten is nearly impossible to avoid entirely. It is also true that not every patient is strict about the diet, as it can be difficult, costly, […]
On February 21, 2018, the Centers for Medicare and Medicaid Services (CMS) released a proposed rule to modify the definition of short-term, limited duration insurance to exclude it from individual health insurance coverage. Short-term, limited duration plans (STLDPs) are not required to meet Affordable Care Act (ACA) requirements, as they are currently only intended for […]
Maintaining political nonpartisanship is an essential component of all 501(c)(3) organizations, including religious congregations, charitable nonprofits, and foundations. Per the IRS tax code, in exchange for their tax-exempt status and the ability to receive tax-deductible contributions, 501(c)(3) organizations agree to not engage in “any political campaign on behalf of (or in opposition to) any candidate […]
Dr. Schär USA, Inc. (Dr. Schär), a global manufacturer of gluten-free foods (brand name Schär), and a supporter of the celiac disease and non-celiac gluten sensitive communities since the 1980s, is a Proud Sponsor of the Celiac Disease Foundation, a nonprofit organization. The Celiac Disease Foundation accelerates diagnosis, treatments, and a cure for celiac disease […]