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X-WR-CALDESC:Events for Celiac Disease Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220310T090000
DTEND;TZID=America/Los_Angeles:20220310T100000
DTSTAMP:20260404T063759
CREATED:20220128T002425Z
LAST-MODIFIED:20220128T002441Z
UID:88496-1646902800-1646906400@celiac.org
SUMMARY:Celiac Peer Perspectives Case Conference
DESCRIPTION:
URL:https://celiac.org/event/celiac-peer-perspectives-case-conference-2/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2022/01/Untitled-design-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220303T080000
DTEND;TZID=America/Los_Angeles:20220303T170000
DTSTAMP:20260404T063759
CREATED:20220303T183737Z
LAST-MODIFIED:20220303T190437Z
UID:91412-1646294400-1646326800@celiac.org
SUMMARY:Registration for Camp Celiac
DESCRIPTION:Celiac Community Foundation of Northern California- Registration for Camp Celiac \nInformation and registration:\nhttps://www.areff.com/celiac/login/login.phpwww.celiaccamp.org \nCamp Celiac serves children ages 9-15 years old by the date of Camp who have been diagnosed by an MD  with celiac disease or gluten intolerance.  Due to limited space\, Camp Celiac is restricted to children who are medically limited to a strict\, lifelong gluten free diet. Thank you for honoring this restriction. \nCampers age 16 at the time of Camp entering 10th grade or lower may choose to register as a junior counselor or camper. Campers ages16-17 who are entering 11th grade or higher must register as a junior counselor. Note that most of our selected junior counselors are entering 12th grade or have just graduated high school due to more applicants than space. \nQuestions: Email campceliac@gmail.com for Camp Celiac questions and info@celiaccommunity.org for everything else. Regardless\, we’ll get your question to the right person. Thanks!
URL:https://celiac.org/event/registration-for-camp-celiac/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2022/03/camp-celiac-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220210T090000
DTEND;TZID=America/Los_Angeles:20220210T100000
DTSTAMP:20260404T063759
CREATED:20220127T230224Z
LAST-MODIFIED:20220127T232438Z
UID:88487-1644483600-1644487200@celiac.org
SUMMARY:Celiac Peer Perspectives Case Conference
DESCRIPTION:
URL:https://celiac.org/event/celiac-peer-perspectives-case-conference/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2022/01/Untitled-design-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220202
DTEND;VALUE=DATE:20220204
DTSTAMP:20260404T063759
CREATED:20220121T200644Z
LAST-MODIFIED:20220121T200644Z
UID:86096-1643760000-1643932799@celiac.org
SUMMARY:2022 State Advocacy Ambassador Training Webinar
DESCRIPTION:
URL:https://celiac.org/event/2022-state-advocacy-ambassador-training-webinar/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2020/01/CDF-Advocacy-404x404-New.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20211120T083000
DTEND;TZID=America/Chicago:20211120T130000
DTSTAMP:20260404T063759
CREATED:20211116T182831Z
LAST-MODIFIED:20211116T182831Z
UID:84308-1637397000-1637413200@celiac.org
SUMMARY:Peripheral and Central Nervous System Implications in Celiac Disease
DESCRIPTION:
URL:https://celiac.org/event/peripheral-and-central-nervous-system-implications-in-celiac-disease/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211107
DTEND;VALUE=DATE:20211108
DTSTAMP:20260404T063759
CREATED:20210608T161944Z
LAST-MODIFIED:20210820T225344Z
UID:78231-1636243200-1636329599@celiac.org
SUMMARY:2021 TCS New York City Marathon
DESCRIPTION:NYC Marathon Team Gluten-Free runners will commit to raising a minimum of $3\,500 in support of the Celiac Disease Foundation. Runners will also agree to federal\, state\, and local health and safety guidelines\, as well as NYRR’s guidelines on race day\, November 7\, 2021. \nMeet part of our incredible Team Gluten-Free! \nTom Barabas: Our family’s celiac story started with my son\, eight years ago\, as a 3-year old. He began to have severe intestinal issues\, he wasn’t growing and his teeth had turned gray\, since he wasn’t getting any nutrients. In general\, he was an absolutely miserable child\, which was demoralizing because he was previously so happy. After way too many trips to the local doctor\, where we were consistently told not to worry about it\, my wife practically begged the doctor to have a blood test. My son’s numbers literally came back off the charts. After getting an endoscopy\, he was officially diagnosed with celiac disease\, and we were able to move towards getting him better.  He is now a healthy\, happy\, athletic child who is amazing at dealing with his disease. Several years later\, my wife\, who by this point had been gluten-free for years\, began to have her own intestinal issues. Testing showed damage to her intestines\, most likely from undiagnosed celiac disease.  While we have learned to manage the disease as a family\, there is much work to be done with regard to outreach and advocacy\, in addition to early diagnosis and ultimately a cure.  It is an honor to help reach those goals by running for Team Gluten-Free and raising money for the Celiac Disease Foundation. Support Tom here! \n  \nJudy Mikacich: Juggling motherhood and doctoring has been a challenge for me from the start. Trying to fit in a love for running has added yet another challenge. Rarely does a single event allow me to combine all three of those “loves” at once. Training for the New York City Marathon as a member of Team Gluten-Free is one of those rare opportunities\, and I am super excited to be on the task! When our eldest daughter\, Clara\, now 18\, was diagnosed with celiac disease as a sophomore in high school\, it was a TOTAL surprise. I knew no one with the disease and almost nothing about it\, even as a physician.  Running in a cross-country race\, Clara looked far more exhausted than she should have. My husband (also a physician) and I looked at each other bewildered. Was it her Graves’ Disease Hyperthyroidism acting up?  Was she just worn out?  Maybe not suited for running\, after all? A few doctor visits and lab tests later\, we were looking at a 16-year-old with a second autoimmune diagnosis: celiac disease. While we have “answers” in the form of diagnoses\, I have so many more questions about why this happened and what\, if anything\, we could have done to prevent it. Clara is a stalwart\, and she has handled her disease processes beautifully\, but her life could have been so much more carefree. And facing college dorm life (if she gets to attend in the current COVID-19 situation) is daunting…at least for me as her mother! I haven’t run a marathon in almost 30 years. But what could be better than being a mother and a doctor and runner in one of the best athletic events in one of the best cities in the world?! So\, I’ll give it my best shot\, supporting Team Gluten-Free to help the Celiac Disease Foundation find answers and making life easier for kids like Clara and families like ours. Support Judy here! \n  \nAnn Marie Lander: I first learned about celiac disease nine years ago\, when my son Caleb\, now 13\, was just a toddler. After numerous trips to our family doctor for ongoing ear infections\, blood work determined Caleb was silently suffering with dangerously low hemoglobin. Those numbers ultimately led to the endoscopy and colonoscopy that confirmed his diagnosis. To say it was a scary experience is an understatement. As a parent\, to watch your child’s little body be in any pain is simply heartbreaking\, let alone having no knowledge of the disease that is causing it. Although it may be a “simple diet fix”\, it is not a simple transition. Running has been my outlet for over 20 years. I will run for my son Caleb\, my niece Caroline\, and every other child that feels different because they have to eat differently. I will run for every parent that has no clue where to start\, because I was that parent\, crying in the grocery store right after his diagnosis unsure of what was safe to buy. It is an absolute honor to run through the great city of New York for Team Gluten-Free while supporting the Celiac Disease Foundation\, whose mission for a cure is so near and dear to my heart. Support Ann Marie here! \n  \n Brett Saunders: I was never really a runner until I was recalled to Active-Duty in the Navy right after 9-11. That is when I caught the running “bug” and began to run for exercise. Thru the next 15 years\, I increased my distance and ran my first marathon at Disney World just five years ago\, at 54 years old. Since then\, I have run a total of 6 marathons\, but never New York City Marathon.  My bucket list has always been the NYC Marathon. The opportunity to run through all five boroughs has always been a real draw to me\, and now to be able to raise money and run for a charity like Celiac Disease Foundation makes it even better. My wife works with celiac disease patients daily to provide a wonderful and safe way to travel the world\, by offering dedicated gluten-free kitchens for her cruise guests. As her spouse\, I am a great moral supporter in the business and have learned so much about celiac disease.  To be able to raise money and give back to the Celiac Disease Foundation is a real win-win situation.  I turned 60 this year and this will most likely be my last marathon\, so I really want to make this one count; not just for another Marathon Finishing Medal\, but for “Team Gluten Free” in the 2021 TCS New York City Marathon. Support Brett here! \n  \n Emma Quigley: My journey with celiac disease began my senior year of college just about four years ago. As a college student and Division 1 athlete\, the last thing I was hoping to take on were various health issues that kept me from playing the sport I loved\, Field Hockey\, and participating in my college experience to its fullest. After missing almost half a year of training due to a stress fracture in my shin and various other minor injuries that seemed to appear out of nowhere\, I was finally diagnosed with celiac disease. Ever since my diagnosis I have experienced the ups and downs of an autoimmune disease that can bring challenges and victories\, and now I am finally in a place where I have never felt healthier. After moving to New York City post graduation\, running has become an outlet for me – running has allowed me to continue to push myself and enjoy much needed time outdoors exploring the city. In 2019\, I participated in the Brooklyn Half Marathon and have had my eyes set on the New York City Marathon ever since! I am incredibly excited and proud to be able to run for the New York City Marathon as a member of Team Gluten-Free and raise money for the Celiac Disease Foundation\, which is a cause that greatly impacts me and my community.  Support Emma here! \n  \n Molly Shepherd: About six and a half years ago\, I knew very little\, if anything\, about celiac disease. Our 5th grade daughter\, Grace\, was always very small and hovered at the bottom of the growth chart curve. But that year\, she dipped below and off the curve\, and her pediatrician was concerned.  After blood work and a biopsy\, it was confirmed that Grace had celiac disease. The information we received after her initial diagnosis was sparse\, largely on how to avoid gluten with just one visit to the nutritionist and we quickly became students of a gluten-free diet. Trips to the grocery store were stressful\, and I was overwhelmed with concern of keeping her safe\, healthy and well fed. However\, I believe this disease impacts Grace beyond her gut. It is my hope that research will delve deeper into the implications of celiac on mind and body\, equipping providers with comprehensive information to help support patients and families more effectively. Today\, Grace is 16 and has grown in wisdom\, experience and many inches after adopting a gluten-free diet. I am so proud of her. It is my prayer that celiac patients will have diagnoses accelerated\, awareness and research bolstered\, and ultimately a cure. I am thrilled to run in the 2021 TCS New York Marathon and represent Team Gluten-Free. I am running for Grace and all those who bravely navigate life with celiac disease. Support Molly here! \n  \nAaron Kent: Throughout my life\, my biggest fans have always been my parents. They have supported me through every sport that I have ever played\, no questions asked. A few years ago\, I got into endurance sports (marathons\, Ironman triathlons\, etc.) and again they were by my side. My Dad was also into his own endurance sport\, surfing. He was the healthiest 67 year old I knew. He could surf for hours on end (up to 7 hours if the waves were good)\, and wake up the next morning to do it again. He was freshly retired and enjoying surfing even more\, when one day he felt so faint\, he wound up in the emergency room. Fast forward two years\, numerous hospital stays\, every test possible\, and several trips to the Mayo Clinic in Minnesota\, and he was officially diagnosed with celiac disease. Needless to say\, our lives have changed since the diagnosis. To watch him lose so much weight\, become easily fatigued\, and not be able to surf has been heart breaking. But he took it all in stride\, educated himself and us about gluten-free living and is still one of the most positive people I know. Two years ago\, I honestly thought being gluten-free was a hipster fad diet\, but since my Dad’s diagnosis\, I learned how ignorant I was. \nI want to help spread awareness about the dangers of gluten for those with celiac disease. I often think about how my Dad has been able to endure and persevere through his diagnosis on a daily basis. He inspires me as an endurance athlete to keep pushing through my training everyday. To be able to represent him and the Celiac Disease Foundation in the TCS NYC Marathon means so much to me. It is truly an honor and a privilege to represent an organization that is committed to raising awareness and supporting education\, research\, and treatment of celiac disease. Support Aaron here!
URL:https://celiac.org/event/2021-tcs-new-york-city-marathon/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2020/01/cropped-Michelle-Smiling-at-Marathon.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210823
DTEND;VALUE=DATE:20210914
DTSTAMP:20260404T063759
CREATED:20210604T200325Z
LAST-MODIFIED:20210820T215747Z
UID:78069-1629676800-1631577599@celiac.org
SUMMARY:Raise it. Give it. Get it!
DESCRIPTION:
URL:https://celiac.org/event/raise-it-give-it-get-it/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20210722T090000
DTEND;TZID=America/Los_Angeles:20210723T120000
DTSTAMP:20260404T063759
CREATED:20210628T152719Z
LAST-MODIFIED:20210714T195840Z
UID:78989-1626944400-1627041600@celiac.org
SUMMARY:Virtual 2021 CUE Annual Membership Meeting
DESCRIPTION:
URL:https://celiac.org/event/virtual-2021-cue-annual-membership-meeting/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2021/06/Bloomberg-Logo-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210722T090000
DTEND;TZID=America/New_York:20210722T153000
DTSTAMP:20260404T063759
CREATED:20210428T184600Z
LAST-MODIFIED:20210428T184647Z
UID:76315-1626944400-1626967800@celiac.org
SUMMARY:GREAT VI Workshop on Celiac Disease
DESCRIPTION:
URL:https://celiac.org/event/great-vi-workshop-on-celiac-disease/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20210720T150000
DTEND;TZID=America/Los_Angeles:20210720T170000
DTSTAMP:20260404T063759
CREATED:20210713T010329Z
LAST-MODIFIED:20210713T010444Z
UID:79514-1626793200-1626800400@celiac.org
SUMMARY:Schär's School Nutrition Webinar Series
DESCRIPTION:Join the Schär team for their first ever 3-part School Nutrition Webinar Series on managing celiac disease and other dietary restrictions in learning environments! Register for free for all 3 days\, 7/20\, 7/27\, and 8/3\, and be eligible for CEUs and a Schär giveaway!
URL:https://celiac.org/event/schars-school-nutrition-webinar-series/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2021/01/Schar-Logo-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20210629T110000
DTEND;TZID=America/Los_Angeles:20210629T114500
DTSTAMP:20260404T063759
CREATED:20210628T152023Z
LAST-MODIFIED:20210628T152023Z
UID:78986-1624964400-1624967100@celiac.org
SUMMARY:Webinar - Achieving health equity for older Black men: Goalposts for beyond the pandemic
DESCRIPTION:
URL:https://celiac.org/event/webinar-achieving-health-equity-for-older-black-men-goalposts-for-beyond-the-pandemic/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2021/06/Screenshot-2021-06-25-121826.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20210417T070000
DTEND;TZID=America/Los_Angeles:20210417T100000
DTSTAMP:20260404T063759
CREATED:20210324T170106Z
LAST-MODIFIED:20210324T170106Z
UID:73850-1618642800-1618653600@celiac.org
SUMMARY:Spring Mini-Symposium - Celiac Disease: Continuum of Care
DESCRIPTION:
URL:https://celiac.org/event/spring-mini-symposium-celiac-disease-continuum-of-care/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2021/03/Celiac-Symposium-Flyer-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20210327T190000
DTEND;TZID=America/Los_Angeles:20210327T210000
DTSTAMP:20260404T063759
CREATED:20210303T201600Z
LAST-MODIFIED:20210303T201600Z
UID:73845-1616871600-1616878800@celiac.org
SUMMARY:Camp Celiac 2021
DESCRIPTION:Virtual Camp Celiac 2021 serves children ages 9-17 years old who have been diagnosed by an MD with celiac disease or gluten intolerance requiring a lifelong strict gluten-free diet. Due to limited space\, our in-person Camp is restricted to children who are medically-limited to a gluten-free diet and our Virtual Camp is similarly limited. Thank you for honoring this restriction. \nVirtual Camp 2021 is not just for those campers who have attended Camp Celiac in the past. We encourage first-time campers ages 9 to 17 from Northern California who have been diagnosed by a medical doctor with celiac or gluten intolerance to register so that they can make new friends who share the same food challenges. We can’t wait to see you all on zoom on March 27th!
URL:https://celiac.org/event/camp-celiac-2021/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2021/03/camp-celiac.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210311T160000
DTEND;TZID=America/New_York:20210311T180000
DTSTAMP:20260404T063759
CREATED:20210303T203149Z
LAST-MODIFIED:20210303T210003Z
UID:73852-1615478400-1615485600@celiac.org
SUMMARY:Celiac Disease in Learning Environments: A Continuing Education Program for Nurses Who Care for Children with Celiac Disease
DESCRIPTION:
URL:https://celiac.org/event/celiac-disease-in-learning-environments-a-continuing-education-program-for-nurses-who-care-for-children-with-celiac-disease/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2021/03/CDMP-Twitter-1200x600-c1-01.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210304
DTEND;VALUE=DATE:20210305
DTSTAMP:20260404T063759
CREATED:20201202T193030Z
LAST-MODIFIED:20201202T193241Z
UID:69716-1614816000-1614902399@celiac.org
SUMMARY:2021 Patient Education & Advocacy Summit
DESCRIPTION:
URL:https://celiac.org/event/2021-patient-education-advocacy-summit/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2020/12/2021-Summit-Header-Proof-1-e1606937551395.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210221T083000
DTEND;TZID=America/Chicago:20210221T123000
DTSTAMP:20260404T063759
CREATED:20210125T161437Z
LAST-MODIFIED:20210125T161437Z
UID:72176-1613896200-1613910600@celiac.org
SUMMARY:UChicago Celiac Disease Center & Family Education Day
DESCRIPTION:
URL:https://celiac.org/event/uchicago-celiac-disease-center-family-education-day/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2021/01/Chicago-Patient-Education-Day-Event.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210126T140000
DTEND;TZID=America/New_York:20210126T150000
DTSTAMP:20260404T063759
CREATED:20210125T220616Z
LAST-MODIFIED:20210125T220616Z
UID:72216-1611669600-1611673200@celiac.org
SUMMARY:Keeping Our Focus on Science: Navigating the Landscape of Science Communication
DESCRIPTION:
URL:https://celiac.org/event/keeping-our-focus-on-science-navigating-the-landscape-of-science-communication/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2021/01/CUE_Annual_Meeting2016-2859-yes-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201214
DTEND;VALUE=DATE:20201215
DTSTAMP:20260404T063759
CREATED:20201202T193610Z
LAST-MODIFIED:20201202T194205Z
UID:69721-1607904000-1607990399@celiac.org
SUMMARY:Mich Bio Patient Advocacy Forum
DESCRIPTION:
URL:https://celiac.org/event/mich-bio-patient-advocacy-forum/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2020/12/Untitled-design-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20201121T083000
DTEND;TZID=America/Chicago:20201121T163000
DTSTAMP:20260404T063759
CREATED:20201013T154242Z
LAST-MODIFIED:20201013T154254Z
UID:67694-1605947400-1605976200@celiac.org
SUMMARY:Celiac Disease Autoimmunity & Beyond Virtual Symposium
DESCRIPTION:
URL:https://celiac.org/event/celiac-disease-autoimmunity-beyond-virtual-symposium/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2020/10/UChicago-event.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20201114T080000
DTEND;TZID=America/Los_Angeles:20201115T200000
DTSTAMP:20260404T063759
CREATED:20200113T201837Z
LAST-MODIFIED:20200930T185406Z
UID:57768-1605340800-1605470400@celiac.org
SUMMARY:2020 Virtual Turkey Trot
DESCRIPTION:
URL:https://celiac.org/event/2020-turkey-trot-5k-fun-run-walk/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2020/08/TT-SM-One.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201101
DTEND;VALUE=DATE:20201102
DTSTAMP:20260404T063759
CREATED:20200113T200002Z
LAST-MODIFIED:20200629T223240Z
UID:57766-1604188800-1604275199@celiac.org
SUMMARY:2020 Virtual TCS New York City Marathon
DESCRIPTION:Meet and Support our Incredible Team!\n  \n \nDonna Salsbury: June 2019…“Mrs. Salsbury\, you have celiac disease.”  At 52 years old\, I was diagnosed with a disease about which I knew nothing. After much research\, I began to understand what I was living with and how to successfully live with it. I was determined to not let this diagnosis be negative\, and to make it something positive by supporting the research\, advocacy\, and educational work being done to ensure healthy lives for all with celiac. As a newly diagnosed celiac\, there was a feeling of lost control as I adapted to this new reality.  Running provided me with a break from that reality and provided me with peace.  While running\, everything is in my control and my only concern is the road ahead.  The road ahead now includes being able to combined supporting the work being done for celiac disease with the running that gives me peace and control – I am thrilled to be running the TCS New York City Marathon as part of Team Gluten-Free benefiting the Celiac Disease Foundation! I am hopeful that each step of the 26.2 miles I will run is a step closer to more people understanding what celiac disease is; a step closer to more people getting diagnosed; a step closer to more funding for needed research; and a step closer to that research providing what we all so desperately want – a cure! I am truly honored to be a part of Team Gluten-Free to raise funds for and awareness of celiac disease! Support Donna here! \n  \n Aaron Kent: Two years ago\, my Dad was the healthiest 67 year old I knew.  He could surf for hours on end (up to 7 hours if the waves were good)\, and wake up the next morning to do it again.  He was freshly retired and enjoying surfing even more\, when one day he felt so faint\, he wound up in the emergency room.  Fast forward two years\, numerous hospital stays\, every test possible\, and several trips to the Mayo Clinic in Minnesota\, he was officially diagnosed with celiac disease.  Needless to say\, our lives have changed since the diagnosis. To watch him lose so much weight\, become easily fatigued\, and not be able to surf has been heart breaking.  But he took it all in stride\, educated himself and us about gluten-free living and is still one of the most positive people I know. Two years ago\, I honestly thought being gluten-free was a hipster fad diet.  Since my Dad’s diagnosis\, I learned how ignorant I was.  I want to help spread awareness about the dangers of gluten for those with celiac disease. I often think about how my Dad has been able to endure and persevere through his diagnosis on a daily basis. He inspires me as an endurance athlete to keep pushing through my training everyday. To be able to represent him and the Celiac Disease Foundation in the TCS NYC Marathon means so much to me. It is truly an honor and a privilege to represent an organization that is committed to raise awareness and support education\, research and treatment of celiac disease. Support Aaron here! \n  \n  \n Courtney Morton: I’m so thrilled to be running the 2020 TCS NYC marathon with Team Gluten-Free. I live in Central Ohio and am a stay at home mom of 4 kids. I love cooking and all types of exercise. I started running about 5 years ago and fell in love with the sport and the community that surrounds it. I continue to strive to be a better and stronger runner every day. My husband and I enjoy running together. Our favorite date is a run and lunch! A couple of years ago\, my daughter’s best friend\, Mya\, was diagnosed with celiac disease. This was a huge adjustment for their family\, and I wanted to keep something “normal” for her. The best way I could help was to cook gluten-free meals and have gluten-free snacks for the girls when they came to our house. I didn’t want Mya to have to change her social life because her diet had changed. Fast forward to today; it is our new normal to eat gluten-free at gatherings and even on vacation together. Last year\, Mya’s mom\, Michelle\, ran the TCS NYC marathon with Team Gluten-Free\, and she asked me if I would run this year. I am honored to be a part of this team and help support the Celiac Disease Foundation for families like Mya’s. Support Courtney here! \n  \n  \nTom Barabas: Our family’s celiac story started with my son\, eight years ago\, as a 3-year old. He began to have severe intestinal issues\, he wasn’t growing and his teeth had turned gray\, since he wasn’t getting any nutrients. In general\, he was an absolutely miserable child\, which was demoralizing because he was previously so happy. After way too many trips to the local doctor\, where we were consistently told not to worry about it\, my wife practically begged the doctor to have a blood test. My son’s numbers literally came back off the charts. After getting an endoscopy\, he was officially diagnosed with celiac disease\, and we were able to move towards getting him better.  He is now a healthy\, happy\, athletic child who is amazing at dealing with his disease. Several years later\, my wife\, who by this point had been gluten-free for years\, began to have her own intestinal issues. Testing showed damage to her intestines\, most likely from undiagnosed celiac disease.  While we have learned to manage the disease as a family\, there is much work to be done with regard to outreach and advocacy\, in addition to early diagnosis and ultimately a cure.  It is an honor to help reach those goals by running for Team Gluten-Free and raising money for the Celiac Disease Foundation. Support Tom here!  \n  \n  \nJudy Mikacich: Juggling motherhood and doctoring has been a challenge for me from the start. Trying to fit in a love for running has added yet another challenge. Rarely does a single event allow me to combine all three of those “loves” at once. Training for the New York City Marathon as a member of Team Gluten-Free is one of those rare opportunities\, and I am super excited to be on the task! When our eldest daughter\, Clara\, now 18\, was diagnosed with celiac disease as a sophomore in high school\, it was a TOTAL surprise. I knew no one with the disease and almost nothing about it\, even as a physician.  Running in a cross-country race\, Clara looked far more exhausted than she should have. My husband (also a physician) and I looked at each other bewildered. Was it her Graves’ Disease Hyperthyroidism acting up?  Was she just worn out?  Maybe not suited for running\, after all? A few doctor visits and lab tests later\, we were looking at a 16-year-old with a second autoimmune diagnosis: celiac disease. While we have “answers” in the form of diagnoses\, I have so many more questions about why this happened and what\, if anything\, we could have done to prevent it. Clara is a stalwart\, and she has handled her disease processes beautifully\, but her life could have been so much more carefree. And facing college dorm life (if she gets to attend in the current COVID-19 situation) is daunting…at least for me as her mother! I haven’t run a marathon in almost 30 years. But what could be better than being a mother and a doctor and runner in one of the best athletic events in one of the best cities in the world?! So\, I’ll give it my best shot\, supporting Team Gluten-Free to help the Celiac Disease Foundation find answers and making life easier for kids like Clara and families like ours. Support Judy here!
URL:https://celiac.org/event/2020-tcs-new-york-city-marathon/
CATEGORIES:Marathon
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2019/10/New-York-Marathon.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201022T184500
DTEND;TZID=America/New_York:20201022T210000
DTSTAMP:20260404T063759
CREATED:20201012T171056Z
LAST-MODIFIED:20201014T225059Z
UID:67669-1603392300-1603400400@celiac.org
SUMMARY:19th Annual Virtual Gala Benefit
DESCRIPTION:
URL:https://celiac.org/event/19th-annual-virtual-gala-benefit/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2020/10/Columbia-Gala.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200718
DTEND;VALUE=DATE:20200725
DTSTAMP:20260404T063759
CREATED:20200123T220437Z
LAST-MODIFIED:20200403T225827Z
UID:58282-1595030400-1595635199@celiac.org
SUMMARY:Cancelled: Camp Celiac
DESCRIPTION:
URL:https://celiac.org/event/camp-celiac/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2020/01/Camp-celiac.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20200613T100000
DTEND;TZID=America/Los_Angeles:20200614T150000
DTSTAMP:20260404T063759
CREATED:20200113T195126Z
LAST-MODIFIED:20200405T224107Z
UID:57762-1592042400-1592146800@celiac.org
SUMMARY:Cancelled: CDF Gluten-Free EXPO
DESCRIPTION:
URL:https://celiac.org/event/cdf-gluten-free-expo-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200306
DTEND;VALUE=DATE:20200308
DTSTAMP:20260404T063759
CREATED:20200113T194721Z
LAST-MODIFIED:20200113T194755Z
UID:57751-1583452800-1583625599@celiac.org
SUMMARY:Celiac disease now and the future
DESCRIPTION:
URL:https://celiac.org/event/celiac-disease-now-and-the-future/
LOCATION:Columbia University\, 64 Morningside Drive\, New York\, NY\, 10027\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200227
DTEND;VALUE=DATE:20200228
DTSTAMP:20260404T063759
CREATED:20200113T184640Z
LAST-MODIFIED:20200113T184640Z
UID:57745-1582761600-1582847999@celiac.org
SUMMARY:National Celiac Disease Patient Advocacy Summit
DESCRIPTION:
URL:https://celiac.org/event/national-celiac-disease-patient-advocacy-summit/
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2020/01/ADVOCACY-FINAL-e1606256929883.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200117
DTEND;VALUE=DATE:20200121
DTSTAMP:20260404T063759
CREATED:20200113T182148Z
LAST-MODIFIED:20200113T182514Z
UID:57739-1579219200-1579564799@celiac.org
SUMMARY:Celiac Cruise
DESCRIPTION:
URL:https://celiac.org/event/celiac-cruise/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2020/01/Cruise-logo-scaled.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20200115T173000
DTEND;TZID=America/Los_Angeles:20200115T200000
DTSTAMP:20260404T063759
CREATED:20191211T010237Z
LAST-MODIFIED:20191212T225411Z
UID:56374-1579109400-1579118400@celiac.org
SUMMARY:Stick with the Science Lecture Series
DESCRIPTION:
URL:https://celiac.org/event/stick-with-the-science-lecture-series/
LOCATION:Columbia University\, 64 Morningside Drive\, New York\, NY\, 10027\, United States
ATTACH;FMTTYPE=image/png:https://celiac.org/wp-content/uploads/2019/12/columbia.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191103
DTEND;VALUE=DATE:20191104
DTSTAMP:20260404T063759
CREATED:20190117T001425Z
LAST-MODIFIED:20190911T181446Z
UID:42032-1572739200-1572825599@celiac.org
SUMMARY:2019 TCS New York City Marathon
DESCRIPTION:Team Gluten-Free runners from across the country will unite in New York to run the 26.2 miles with one common goal: to accelerate diagnosis\, treatments\, and a cure for the three million Americans affected by celiac disease. The money raised by Team Gluten-Free participants funds the Celiac Disease Foundation’s research\, education\, and advocacy programs.\n \nOn your mark\, get set\, GO! \n  \nMeet Our Runners\n  \nMichelle Potridge: I’m thrilled to have been chosen to run the TCS NYC Marathon to represent the Celiac Disease Foundation (and\, let’s keep it real….I’m also terrified!) My 13 year old daughter\, Mya was diagnosed last September with celiac disease. The last year has been a tough one for her\, with multiple hospital stays and three different new medical diagnoses\, including celiac disease. Celiac disease had never even been on our radar prior to her getting so sick last summer. Thank goodness her doctors knew enough to include it in her battery of tests\, despite not having traditional GI symptoms. We’ve learned that celiac disease can present in many different ways\, and we want to help spread awareness and early detection of the disease. Since Mya has been on a strict gluten-free diet\, her body has healed in ways we could not have predicted. It’s taken a lot of work on her part\, but we’re so lucky she’s been given the tools to continue to keep moving forward and take control of her health. As a mom\, it’s incredibly difficult to see your kids struggle and not be able to fix whatever is wrong.  One of the things I can do\, however\, is run. And these 26.2 miles are dedicated to my girl\, who reminds me everyday that WE CAN ALL DO HARD THINGS. Help Michelle reach her goal! \n  \nCharles “Smitty” Lavin: In 2014\, after years of struggling with hospital stays\, tests\, needles and doctors – my son Teddy (then age 3) was diagnosed with celiac disease.  Shortly thereafter\, I was shocked to get my own diagnosis and – with the great love\, support\, and effort of my wife Dayna – our family was reborn as a gluten-free one.  I joined up with CDF’s Team Gluten-Free that fall.  I ran the race of my life through New York City – a personal record into a driving wind.  That was my last marathon.  In February 2019\, my son was ‘glutened’ (and hospitalized) on a family vacation.  I realized if this could happen in one of the most allergy-friendly places on earth\, there is still so much we could do.  More I could do.  For awareness\, and a cure\, and all the GF kids and their futures.  So for all those reasons\, and thanks to the Celiac Disease Foundation\, here I am five years later.  And baby\, you better believe – I’M BACK.  Back in the New York groove! Help Charles reach his goal! \n  \n \nJulie Lemery: My daughter was diagnosed with celiac disease in January 2019 when she was 10 years old.  She has always been behind on the growth charts since birth\, but both my husband and I developed late so we weren’t too concerned.  Just to be sure there wasn’t  anything else going on\, however\, we initiated some testing.  The celiac screen was one of the blood tests she was given\, and we were surprised to find out she had celiac disease which was confirmed with an endoscopy.  We feel fortunate that it was identified before she had any other symptoms.  I was then subsequently diagnosed.  I have also been fortunate to not have symptoms (that I noticed) but am grateful I am now aware.  We are new on the gluten-free eating journey and learning as we go.  So\, when this opportunity arose I was excited.  I have always been an avid runner and have completed 4 marathons\, including the Boston during its 100th anniversary\, among many other events\, but it has been several years since my last one.  So\, I can’t wait to have the chance to run in New York while doing it on behalf of an organization that is now very personal to our family. Help Julie reach her goal! \n  \n \nWhitney DeMille: I was diagnosed with celiac disease in March of 2016. At the time I was juggling a busy schedule. I was a month away from college graduation\, studying for finals\, completing an internship in addition to working in a lab\, preparing for my dance ensemble’s summer dance tour\, and interviewing for jobs across the country. I remember walking to a dance class when the gastroenterologist called to discuss the results of my blood test. I was shocked to hear that I had celiac disease. I cried in class when I realized that cupcakes were my own personal poison. Shortly after my diagnoses\, and the day before leaving for my final college dance tour\, I broke my foot during our final dance rehearsal. My body was weak as a result of celiac disease. Even my bones had been affected and now I couldn’t even dance. Celiac disease affected my life more than I knew was possible. After graduating\, I moved across the country to North Carolina. I was blessed to live next to a beautiful\, large park with running trails. This is where I taught myself how to run. Since then\, I have enjoyed developing this new hobby and participating in events with my college friends. Fortunately\, I have a bachelor’s degree in food science and a job where I work each day to develop products that are gluten-free.  I am grateful for food scientists who have developed gluten-free products that taste great and make living with celiac disease feel possible. I’m especially thankful for gluten-free cupcakes! I am running the NYC marathon for people like me. We can live happy\, normal\, gluten-free lives and still eat great tasting food even though we have celiac disease.  We can even run marathons! Help Whitney reach her goal! \n  \nMarisa Forti: I was diagnosed with celiac disease in January 2017. While on a family vacation in Disney World\, I thought I had food poisoning after eating fish tacos. Boy\, was I wrong! It took 6 months to figure out what was going on with this crazy stomach of mine. Six months of  doctor appointments\, trips to the ER\, endless bloodwork\, unexplained weight loss & weight gain\, fatigue\, and stomach pain. Oh yea\, how about that extreme bloat and all those pregnancy tests I bought! At times\, I looked 9 months pregnant. There was a colonoscopy\, and last but not least\, swallowing a camera! I’ll never forget the day the doctor told me\, “YOU HAVE CELIAC DISEASE.” So\, it’s that simple\, avoid gluten?!? Well\, it sounds simple\, it’s just food\, right? Well\, how about everything else they forget to mention that could have gluten in it! Some lotions\, toothpastes\, & shampoos – just to name a few! There is the fear of cross contamination and the stress of eating outside of your kitchen! It hasn’t been an easy road\, but that “road” has been the one thing that gets me through the days. The miles I can log\, the pavement under my feet – it makes me feel free. I am so excited to be running with Team Gluten-Free and hope that the funds raised will help find a cure for this disease.  Help Marisa reach her goal!
URL:https://celiac.org/event/2019-tcs-new-york-city-marathon/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2017/01/GÇô-NYCM14_DG-394-e1522088683612.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191102
DTEND;VALUE=DATE:20191103
DTSTAMP:20260404T063759
CREATED:20190708T190151Z
LAST-MODIFIED:20190919T234739Z
UID:50475-1572652800-1572739199@celiac.org
SUMMARY:2019 Turkey Trot 5K Fun Run/Walk
DESCRIPTION:Gather your teams\, lace up your shoes\, and join us for the NY\, LA\, & NJ Turkey Trot 5K Fun Run/Walks! This is your chance to meet others in the gluten-free community while raising awareness for celiac disease. Don’t miss gluten-free prizes\, coupons\, snacks\, and swag. Register now!
URL:https://celiac.org/event/2019-turkey-trot-5k-fun-run-walk/
ATTACH;FMTTYPE=image/jpeg:https://celiac.org/wp-content/uploads/2019/06/Turkey-Trot-4-scaled.jpg
END:VEVENT
END:VCALENDAR