Tag Archives: iCureCeliac

CEO Marilyn G. Geller Honored with the Center for Nonprofit Management Inspiring Leader Award

We are pleased to announce that Celiac Disease Foundation CEO, Marilyn G. Geller, received the Center for Nonprofit Management Inspiring Leaders Award on June 14th, for her innovative approach in accelerating diagnosis, treatments, and a cure for celiac disease and non-celiac gluten/wheat sensitivity. Marilyn was particularly selected for this award because of the progress made […]

iCureCeliac® Reports Two Year Progress

Launched in February 2016, iCureCeliac® is a free online portal for patients, or their caregivers, to provide critical insights into life with celiac disease and gluten/wheat sensitivity. Anonymized questionnaire data, completed by iCureCeliac® participants under informed consent, are made available to researchers and governmental policy analysts to advance life-changing initiatives. Your participation will help create better diagnostic tools and treatments […]

Marilyn’s Message January 2018

Marilyn Geller

“Fail faster” is a saying in drug research. In 2014, the Tufts Center for the Study of Drug Development estimated that the average cost of bringing a new drug through the development pipeline and Food and Drug Administration (FDA) approval process to market is $2.6 billion. More than 90 percent of all drugs being developed […]

Marilyn’s Message October 2017

Marilyn Geller

In September, CDF presented two studies from the iCureCeliac patient registry at the 2017 International Celiac Disease Symposium (ICDS) in New Delhi, India. ICDS is the world’s largest gathering of experts on celiac disease and non-celiac gluten/wheat sensitivity. This year’s Symposium featured discussions on promising immunological insights and advances related to the disease. In our first study, […]

Marilyn’s Message July 2017

Marilyn Geller

After decades of research and the investment of tens of millions of dollars, there are no approved treatments for celiac disease beyond strict adherence to a gluten-free diet. The single best chance for changing this is iCureCeliac®. Your gifts last year helped us expand and improve this revolutionary research resource. Below is a brief accounting […]

Survey Results: Would You Use an In-Home Gluten-Detecting Test?

Celiac Disease Foundation recently administered a survey to gauge community interest in using a simple in-home urine or stool test to monitor gluten intake. Through our iCureCeliac® patient registry, we have found that 53% of people with celiac disease continue to experience symptoms while on a strict gluten-free diet. The most common reason for persistent […]