Tag Archives: Celiac Disease

The Celiac Disease Foundation 2017 Year in Review

Each year, the world’s leading experts representing every aspect of celiac disease research, education, and advocacy gather at the International Celiac Disease Symposium (ICDS). As you know, there are no approved treatments for celiac disease beyond strict adherence to the gluten-free diet. And, as you know, it is estimated that approximately 30% of all celiac […]

CDF Trains Patient Advocates in Celiac Disease Research at the University of Chicago

On October 21, 2017, the Celiac Disease Foundation (CDF) held a Patient Advocacy Program workshop at the University of Chicago Celiac Disease Center’s Annual Celiac Education Day.  Historically, medical research has not tapped the expertise of patients in the design and development of new treatments, often leading to disconnects between therapeutic outcomes and real patient […]

Is a Low-FODMAP Diet the Next Big Thing?

Lately, it seems as though gluten is being blamed for a vast host of ailments – everything from irritable bowel syndrome (IBS) to attention-deficit disorder – with an ever increasing number of people seeking relief through a gluten-free diet. While this strict regimen is absolutely critical for people with a confirmed diagnosis of celiac disease, […]

Marilyn’s Message October 2017

Marilyn Geller

In September, CDF presented two studies from the iCureCeliac patient registry at the 2017 International Celiac Disease Symposium (ICDS) in New Delhi, India. ICDS is the world’s largest gathering of experts on celiac disease and non-celiac gluten/wheat sensitivity. This year’s Symposium featured discussions on promising immunological insights and advances related to the disease. In our first study, […]

ImmusanT Finds Celiac Disease Might Be Diagnosed With A Single Gluten Challenge

ImmusanT, a clinical-stage company developing Nexvax2®, a therapeutic vaccine intended to protect against the effects of gluten exposure while maintaining a gluten-free diet, presented data at the 2017 International Celiac Disease Symposium (ICDS) in Delhi, India for a potential blood test that could detect celiac disease with a single gluten challenge. This blood test could also […]

How Will New FDA Strategies to Evaluate Benefits vs. Risks Impact Drug Development and Approval for Celiac Disease, Non-Celiac Gluten/Wheat Sensitivity, and Their Comorbidities?

On September 18, 2017, Celiac Disease Foundation (CDF) representatives attended a Food and Drug Administration (FDA) meeting in White Oak, MD on the ongoing implementation of a benefit-risk framework to inform drug and medical device review and approval processes. Under legislative mandate, the FDA is seeking to formally incorporate the patient experience and perspective into […]