Tag Archives: Celiac Disease

The Celiac Disease Foundation Submits Comment to the Centers for Medicare and Medicaid Services on Proposed Rule: Short-Term, Limited Duration Insurance

On February 21, 2018, the Centers for Medicare and Medicaid Services (CMS) released a proposed rule to modify the definition of short-term, limited duration insurance to exclude it from individual health insurance coverage. Short-term, limited duration plans (STLDPs) are not required to meet Affordable Care Act (ACA) requirements, as they are currently only intended for […]

The Celiac Disease Foundation Signs Community Letter in Support of Nonpartisanship

Maintaining political nonpartisanship is an essential component of all 501(c)(3) organizations, including religious congregations, charitable nonprofits, and foundations. Per the IRS tax code, in exchange for their tax-exempt status and the ability to receive tax-deductible contributions, 501(c)(3) organizations agree to not engage in “any political campaign on behalf of (or in opposition to) any candidate […]

The Importance of Detecting Celiac Disease in Later Life

Researchers based in Finland and the UK recently conducted a review of existing literature on celiac disease in later life. The article, published in Alimentary Pharmacology & Therapeutics, highlights how celiac disease can often be missed in the elderly population due to the dismissal of subtle celiac disease symptoms, such as fatigue, as being due […]

National Coalition of Autoimmune Patient Groups Meeting Encourages Collaboration Between Autoimmune Patient Organizations

The Celiac Disease Foundation is committed to representing the celiac disease patient voice in policy and healthcare reform, and can better do so alongside strong allies with common goals. To this end, on March 20, 2018, Alana Broe, Legislative Analyst for the Celiac Disease Foundation, attended the National Coalition of Autoimmune Patient Groups (NCAPG) meeting. […]

Digestive Disease National Coalition Public Policy Forum Advocates for Increased Funding for the National Institutes of Health

As part of the Celiac Disease Foundation’s expanding effort to give voice to the celiac disease community in important areas of healthcare policy and federal funding for disease research, Laura Boone, Celiac Disease Foundation Development Manager and Alana Broe, Celiac Disease Foundation Legislative Analyst, attended the Digestive Disease National Coalition (DDNC) Public Policy Forum held […]

The Relationship Between Child Mortality Rates and the Prevalence of Celiac Disease

In recent years, there has been a marked increase in the number of people diagnosed with celiac disease around the world. This pattern suggests that a greater percentage of the population is afflicted than was previously believed. Meanwhile, the rate of child mortality has been decreasing. This is particularly obvious in developing countries where mortality […]

Marilyn’s Message March 2018

Marilyn Geller

TO NETFLIX AND MARVEL: In a recent episode of the Netflix series, “Jessica Jones,” celiac disease was, yet again, trivialized. Saying that celiac disease “doesn’t matter” is cruel and insensitive to the tens of millions of people around the world to whom it matters a great deal. It matters because celiac disease is a serious, genetic […]

The Celiac Disease Foundation Submits Comment to FDA on Draft Guidance Regarding Gluten in Medications

On December 12, 2017, the Food & Drug Administration (FDA) issued guidance to drug manufacturers to voluntarily label medications that do not contain gluten with the following statement: “Contains no ingredient made from a gluten-containing grain (wheat, barley, or rye).” The FDA granted a 60 day period to submit comments and suggestions regarding this draft […]

Early Age Infections and the Onset of Celiac Disease

Using data gathered on children born in Bavaria, Germany between the years 2005-2007, researchers sought to make a connection between gastrointestinal or respiratory infections and the development of celiac disease. In each case, medical records were reviewed for treated infections up to age two, and then for any subsequent diagnosis of celiac disease. The study […]