Tag Archives: celiac disease foundation

Marilyn’s Message May 2018

Marilyn Geller

In honor of Celiac Disease Awareness Month. I share my National Conference Welcome remarks: I have been the Celiac Disease Foundation for six years now. I have to say, it’s been quite a journey. I was gifted this position by Elaine Monarch, our visionary Founder. Thanks in large part to her efforts, celiac disease began […]

The Celiac Disease Foundation Attends FDA Engagement Workshop

Patients and caregivers have unique perspectives on the burdens and benefits of various treatment options. As such, their input is invaluable to the drug evaluation process. On April 3, 2018, Celiac Disease Foundation Legislative Analyst, Alana Broe, attended the FDA’s Public Workshop on Keys to Effective Engagement with the Center for Disease Evaluation and Research […]

Marilyn G. Geller Joins Gluten-Free Living Magazine Advisory Board

“I look forward to working together to spotlight celiac disease and gluten-free champions in our community, and to our shared commitment to advance celiac disease research. Gluten-Free Living provides a unique platform to reach the many people following a gluten-free diet who so often feel alone and who struggle to find a supportive community and credible information.”

The Celiac Disease Foundation Signs Community Letter in Support of Nonpartisanship

Maintaining political nonpartisanship is an essential component of all 501(c)(3) organizations, including religious congregations, charitable nonprofits, and foundations. Per the IRS tax code, in exchange for their tax-exempt status and the ability to receive tax-deductible contributions, 501(c)(3) organizations agree to not engage in “any political campaign on behalf of (or in opposition to) any candidate […]

The Relationship Between Child Mortality Rates and the Prevalence of Celiac Disease

In recent years, there has been a marked increase in the number of people diagnosed with celiac disease around the world. This pattern suggests that a greater percentage of the population is afflicted than was previously believed. Meanwhile, the rate of child mortality has been decreasing. This is particularly obvious in developing countries where mortality […]

Marilyn’s Message March 2018

Marilyn Geller

TO NETFLIX AND MARVEL: In a recent episode of the Netflix series, “Jessica Jones,” celiac disease was, yet again, trivialized. Saying that celiac disease “doesn’t matter” is cruel and insensitive to the tens of millions of people around the world to whom it matters a great deal. It matters because celiac disease is a serious, genetic […]

iCureCeliac® Reports Two Year Progress

Launched in February 2016, iCureCeliac® is a free online portal for patients, or their caregivers, to provide critical insights into life with celiac disease and gluten/wheat sensitivity. Anonymized questionnaire data, completed by iCureCeliac® participants under informed consent, are made available to researchers and governmental policy analysts to advance life-changing initiatives. Your participation will help create better diagnostic tools and treatments […]