Tag Archives: celiac disease foundation

Marilyn G. Geller Joins Gluten-Free Living Magazine Advisory Board

“I look forward to working together to spotlight celiac disease and gluten-free champions in our community, and to our shared commitment to advance celiac disease research. Gluten-Free Living provides a unique platform to reach the many people following a gluten-free diet who so often feel alone and who struggle to find a supportive community and credible information.”

The Celiac Disease Foundation Signs Community Letter in Support of Nonpartisanship

Maintaining political nonpartisanship is an essential component of all 501(c)(3) organizations, including religious congregations, charitable nonprofits, and foundations. Per the IRS tax code, in exchange for their tax-exempt status and the ability to receive tax-deductible contributions, 501(c)(3) organizations agree to not engage in “any political campaign on behalf of (or in opposition to) any candidate […]

The Relationship Between Child Mortality Rates and the Prevalence of Celiac Disease

In recent years, there has been a marked increase in the number of people diagnosed with celiac disease around the world. This pattern suggests that a greater percentage of the population is afflicted than was previously believed. Meanwhile, the rate of child mortality has been decreasing. This is particularly obvious in developing countries where mortality […]

Marilyn’s Message March 2018

Marilyn Geller

TO NETFLIX AND MARVEL: In a recent episode of the Netflix series, “Jessica Jones,” celiac disease was, yet again, trivialized. Saying that celiac disease “doesn’t matter” is cruel and insensitive to the tens of millions of people around the world to whom it matters a great deal. It matters because celiac disease is a serious, genetic […]

iCureCeliac® Reports Two Year Progress

Launched in February 2016, iCureCeliac® is a free online portal for patients, or their caregivers, to provide critical insights into life with celiac disease and gluten/wheat sensitivity. Anonymized questionnaire data, completed by iCureCeliac® participants under informed consent, are made available to researchers and governmental policy analysts to advance life-changing initiatives. Your participation will help create better diagnostic tools and treatments […]

New Testing Option for Possible Celiac Disease Sufferers

The current standard for a celiac disease diagnosis is a positive blood test for specific antibodies, followed by a biopsy of the intestine that reveals damage to the villi (villous atrophy). These tests are certainly invasive and unpleasant, but more than that, they are useless in cases where a patient is already following a gluten-free […]

Marilyn’s Message December 2017

Marilyn Geller

As we begin this season of giving, I am proud to share with you the work that your gifts and support make possible. In our 2016-2017 Annual Report, you can learn about: iCureCeliac®, the nation’s only celiac disease patient registry, helping researchers to find new treatments and a cure for celiac disease Our Patient Advocacy […]

The Celiac Disease Foundation 2017 Year in Review

Each year, the world’s leading experts representing every aspect of celiac disease research, education, and advocacy gather at the International Celiac Disease Symposium (ICDS). As you know, there are no approved treatments for celiac disease beyond strict adherence to the gluten-free diet. And, as you know, it is estimated that approximately 30% of all celiac […]