Tag Archives: CDF

How More Participation in Drug Trials Can Create Medical Breakthroughs, As Featured in USA Today

The Celiac Disease Foundation (CDF) works tirelessly year-round to advance research toward treatments and a cure. Access to patient data is necessary to better target treatments for those with celiac disease. In CDF’s recent article featured in the December 2017 issue of Media Planet’s Digestive Health campaign of USA Today, titled “How More Participation in […]

Marilyn’s Message December 2017

Marilyn Geller

As we begin this season of giving, I am proud to share with you the work that your gifts and support make possible. In our 2016-2017 Annual Report, you can learn about: iCureCeliac®, the nation’s only celiac disease patient registry, helping researchers to find new treatments and a cure for celiac disease Our Patient Advocacy […]

Podcast on Patient and Caregiver Participation in Celiac Disease Research

On November 15, 2017, Celiac Disease Foundation (CDF) Chief Executive Officer, Marilyn G. Geller, was a guest on the podcast of the Celiac Disease Program at Children’s National Health System. This podcast episode focused on the importance of participating in celiac disease research. We often hear about clinical trials and research in the news, but […]

The Celiac Disease Foundation 2017 Year in Review

Each year, the world’s leading experts representing every aspect of celiac disease research, education, and advocacy gather at the International Celiac Disease Symposium (ICDS). As you know, there are no approved treatments for celiac disease beyond strict adherence to the gluten-free diet. And, as you know, it is estimated that approximately 30% of all celiac […]

CDF Trains Patient Advocates in Celiac Disease Research at the University of Chicago

On October 21, 2017, the Celiac Disease Foundation (CDF) held a Patient Advocacy Program workshop at the University of Chicago Celiac Disease Center’s Annual Celiac Education Day.  Historically, medical research has not tapped the expertise of patients in the design and development of new treatments, often leading to disconnects between therapeutic outcomes and real patient […]

Glutenostics Launches Gluten Detective, the First At-Home Gluten Consumption Monitoring Test

For many patients living with celiac disease or non-celiac gluten/wheat sensitivity, the emergence of almost any new or recurring symptom, even when adhering to a gluten-free diet as instructed, causes anxiety and distress. A new self-administered, home test kit called Gluten Detective, released under license by Glutenostics LLC and developed by a Spanish company, empowers patients […]

Is a Low-FODMAP Diet the Next Big Thing?

Lately, it seems as though gluten is being blamed for a vast host of ailments – everything from irritable bowel syndrome (IBS) to attention-deficit disorder – with an ever increasing number of people seeking relief through a gluten-free diet. While this strict regimen is absolutely critical for people with a confirmed diagnosis of celiac disease, […]

Marilyn’s Message October 2017

Marilyn Geller

In September, CDF presented two studies from the iCureCeliac patient registry at the 2017 International Celiac Disease Symposium (ICDS) in New Delhi, India. ICDS is the world’s largest gathering of experts on celiac disease and non-celiac gluten/wheat sensitivity. This year’s Symposium featured discussions on promising immunological insights and advances related to the disease. In our first study, […]

ImmusanT Finds Celiac Disease Might Be Diagnosed With A Single Gluten Challenge

ImmusanT, a clinical-stage company developing Nexvax2®, a therapeutic vaccine intended to protect against the effects of gluten exposure while maintaining a gluten-free diet, presented data at the 2017 International Celiac Disease Symposium (ICDS) in Delhi, India for a potential blood test that could detect celiac disease with a single gluten challenge. This blood test could also […]